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Ulcerative Colitis
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Posted 6/22/2011 8:14 AM (GMT 0)
Had my second colonoscopy yesterday. The only part of my colon that showed active disease was the area around the cecum. I think this is odd, because I thought the rectum was always the last place to heal. There were also a lot of scars from past ulcers. Anyone have any idea about those healing in time? Overall I was pretty happy. I have been doing well for a while now, let's just hope it stays this way.
Posted 6/22/2011 8:20 AM (GMT 0)
interesting just around the cecum...have you been on oral 5ASA as well?

Is your entire colon involved or just cecum/rectum?

Definitely sounds positive...hope all stays well for a long while.

What meds are you taking now?

q
Posted 6/22/2011 12:35 PM (GMT 0)
Yes, I find it interesting as well - but my GI has told me it's not unusual for the cecum to be inflamed with UC. Last fall I had inflammation in the rectum and at the cecum (the rest being well address by rectal meds, I'd guess.)

In regard to the healing of scars, my best guess is that we would all heal differently in our colons, just as we all heal differently on our shins or wherever else. So...... maybe they'll heal, and to what extent, likely impossible to predict.
Posted 6/22/2011 2:53 PM (GMT 0)
It may be possible that they don't see inflammation but when the biopsies come back there may be some. That's what happened to me the last time. He said I only had inflammation at the end but the biopsies came back as minor inflammation up the whole left side.
Posted 6/22/2011 4:20 PM (GMT 0)
sobroken..that's definitely true and it could be extremely mild inflammatory cell changes. But mumbles states it showed active inflammation visually...


q
Posted 6/22/2011 6:43 PM (GMT 0)
Quincy right now I am on no medications. The active inflammation was only small ulcers around the area of the cecum. I have been off meds for about 6 months now. I know that it could come back at any time, even though my diet is working quite well as of now. Yes, the biopsies will most likely show some mild inflammation or such. My idea is that cecum may not be healed because it is next to the appendix. Thus maybe being host to many bacteria different than that of the rest of the colon.
Posted 6/23/2011 2:12 AM (GMT 0)
You should get on an oral 5ASA at the very least..I'd suggest Pentasa actually.   And....probiotics and fibre supplements..

The cecum shouldn't be inflamed..when are you going for your biopsy results?.

q
Posted 6/23/2011 4:13 AM (GMT 0)
I am considering going on a 5ASA, but they didn't seem to help me at all in the past. It is so nice though not being on medications at all. I just started taking some probiotics too, for a post-colonoscopy measure. I shouldn't need a fiber supplement because I get insane amounts of fiber already. I should get my biopsy results sometime next week probably.
Posted 6/23/2011 4:54 AM (GMT 0)
Since you're already using enough fibre, the probiotics will work better for you. They are released into the small intestine anyway so that will be good considering what's inflamed.


What part of your colon was originally affected...throughout or just rectum initially? or were you one of the cecum/rectum UCer's?

What meds were you on at any given time?
q

Posted 6/23/2011 5:23 AM (GMT 0)
I had active inflammation throughout my whole entire colon, aka pancolitis. I used to be on Lialda, Prednisone, Asacol, and 6-MP at different points. The 5ASAs showed a little improvement. The efficacy of them is tough to balance with cost, potential long term effects, or braking my "fixed" (as of now) system. 6-MP helped me a good amount, however it was tough on my liver at a higher dose. Also I don't think I am needed something that harsh as of now. My body seemed to respond very well to probiotics with saccromyces boulardii in it, and I am considering another course of it.
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