Hi Secc - welcome to HW.
I think you may get a better response to your situation on the ostomy board. https://www.healingwell.com/community/default.aspx?f=33
You may also want to try the Chron's board, I believe people with Chron's are more prone to fistulas. I have seen a few people here with fistulas but not too many.
I am sorry you're feeling uncomfortable. I hope you find some answers.