MLD...call me. I am not in your area but I have a list of questions that I prepared when I went for our second opinion ( and third opinion). Since Brandon was first diagnosed, I have gone for two "second opinions" (one a pediatric GI like the one he regularly sees, and the other a Pediatric specialist from Miami Childrens Hospital- she had a resume a yard long from Harvard Medical to Boston Mass Childrens' Hospital and) and with it all, they were all on the same page. They all agreed with his medication protocal and have all told me that the treatment for UC in adolescents is pretty standard protocol.... not what I wanted to hear. But after hearing it 3X, I am starting to get the picture.
If you are not comfortable with your doctor....change Doctors. If nothing else, maybe it will put your daughter more at ease. My son is going to visit his father up north for a week. His dad is taking him to see a Homeopathic doctor in the NYC area, just to see what he thinks. Advised him not to start on anything until I check for interactions with his current meds. '
Has your daughter's physician had her on any anti-depressants or anti-anixiety meds? It might help, even if she is on a mild dose. No child should have to go through what they are going through.
Sorry I had to hang up so quickly yesterday.. it was good to talk to you...but my son came out and hates it when I am talking to people about his disease. Can't say I blame him. It's been all-consuming lately. We just worry so darn much.
Feel free to call me or email me any time. I feel like a beginner compared to what you have gone through.. But I can honestly say that I have researched and read more about this disease than anything I have ever done. When he was diagnosed in February, I thought "oh, it's just colitis...we can deal with that". Little did I know then what I know now, and boy, was I wrong. But we will get through this. That I am sure of.