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4th remi infusion a week ago, still have some symptoms

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Ulcerative Colitis
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Posted 8/12/2011 5:03 PM (GMT 0)
It has just been 2 mos since I was off pred.  Last time I got off pred at month two I went into a flare up.

Maybe I need a higher dose and/or closer intervals??

I don't know if it's working well enough or not....will see GI after 5th dose to discuss. 

I hope it doesn't get any worse.

current symptoms are some blood (just smeared on my poo) and urgency (but I can hold if I need to) and gassiness.

Posted 8/12/2011 5:58 PM (GMT 0)
Do you use rectal meds at all Beth? I recently started an antidepressant for my migraines and I think it slowed my bowels down and I feel better. Have you ever considered giving something like this a try? I am not 100% sure it is linked to my UC improving but I can tell you, I was flared up badly and now I am not.
Posted 8/12/2011 6:57 PM (GMT 0)
the only rectals I can use are steriods, which I want to stay off of.

I was thinking about an antidepressant. I think I need it I am very upset a lot but I am afraid to take more meds, I seem to get all the bad side effects. What do you take?

That is great you are doing better!!
Posted 8/12/2011 7:14 PM (GMT 0)
Can you use Canasa? I know you've had problems with 5ASAs. What about entocort enemas? (i've seen a few here using those)

I am taking pristiq. I feel a lot less stressed. I avoided taking something for years because I didn't want too take another pill but honestly, I am feeling like I may be able to reduce the dose of some of my medication if I continue to feel as well as I have been lately. I don't want to get too ahead of myself, I know this conditon can turn around at any moment. I don't know what the bad side effects of pristiq are, I haven't had any side effects. It's one of the antidepressants that can actually help some to lose weight. Many of them have weight gain as a side effect. I haven't gained or lost. I am still trying to lose my last 10 pred pounds. My chin is still not normal too. I really think I will have to get it lipoed.
Posted 8/12/2011 8:43 PM (GMT 0)
I am sure your chin will come back!! That is great that you are doing well on the medication. Weight gain was another reason I did not want to try an antidepressant.

I will talk to my Doc about it. Which Doc prescribed to you?
Posted 8/13/2011 12:23 AM (GMT 0)
I got it from my neurologist for migraine prevention but I've seen a lot of positive benefit from it in other ways. I also haven't had migraines so it kills a few birds with one stone. I think most people get it from a psychiatrist or a GP. It's similar to Effexor.
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