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Who's tried LDN, and what are your results? PART II

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Ulcerative Colitis
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Posted 11/3/2011 9:30 PM (GMT 0)
I am so happy to see so many people having luck with LDN.

Hopeful, sorry if you mentioned this already, are you on oral LDN?

Boxermom, you're on transdermal right?

I wouldn't mind losing about 10 pounds.
Posted 11/3/2011 9:33 PM (GMT 0)
If anyone would like to submit an LDN success story for the success stories thread:

 

https://www.healingwell.com/community/default.aspx?f=38&m=2235755

 

Please email me. 
Posted 11/3/2011 10:50 PM (GMT 0)
I am on transdermal. I have lost 25 pounds. I feel great though. Not sure if I am just losing because I am not on Zoloft, birth control pills and Pred. I am usually around 165. Now I am 140. Maybe the LDN is doing it?
Posted 11/3/2011 11:07 PM (GMT 0)
Didn't change my diet. I eat lots of junk.
Posted 11/4/2011 2:46 AM (GMT 0)

Boxermom2 said...
Didn't change my diet. I eat lots of junk.


haha. Amen to that.

Pred is well known to make people gain weight. It's also estimated to take up to two months to completely leave the system. How long have you been off pred?
Posted 11/4/2011 3:11 AM (GMT 0)
I've been off the Pred since April I think. I've been researching and think its the Welchol I take. I take it before meals. It's a binds to the fat and bile acids. Kind of works like diet pill Alli I think. I will stop it and see if I out weight back on.
Posted 11/4/2011 11:50 AM (GMT 0)
Boxermom2,

Weight gain is probably due to prednisone, so now that you're off the prednisone, your body is re-adjusting and you're losing the weight.

Posted 11/4/2011 11:58 AM (GMT 0)
I have never been this small. The Pred weightloss probably took me to 155 or so.
Posted 11/4/2011 12:03 PM (GMT 0)
Boxermom2,

Maybe it is the Welchol then, what did your research say about it in regards to weight loss?

Posted 11/4/2011 1:24 PM (GMT 0)
It is a bile acid reducer type of thing. It attaches to the fat . I was taking it before meals.
Posted 11/4/2011 1:24 PM (GMT 0)
It is a bile acid reducer type of thing. It attaches to the fat . I was taking it before meals.
Posted 11/11/2011 6:34 PM (GMT 0)
Hello All:

Here's my update....I'm doing great on LDN!!  I still take only 1 VSL#3 with evening meal and only 1 tsp of psyllium seed powder with yogurt or apple sauce daily.  I feel great, I can eat just about anything, even eggs (which I used to have an interance to), but not anymore.  It has been July 14th so that would be almost 4 months tongue    I totally got my life back.  I'm so thankful for this medication...so many thanks to this forum, it has helped me piece this all together for myself.

I urge anyone to at least try it.  Give it time to work, remember it is working with your own bodies cells and takes time to work.  I did feel really tired the first month and it was because my body was taking so much energy to heal, but now feel just wonderful.

Take care all!  (Oh, hot chocolate has been my thing now...love it) tongue

Posted 11/11/2011 8:04 PM (GMT 0)
Great news Hopeful!! Keep it up.
Posted 11/11/2011 8:34 PM (GMT 0)
Hopeful4uc,

Thanks for your update.

It's great news, do keep us posted.

So glad to hear - you can't see it - but I'm smiling from ear to ear, lol.

Posted 12/24/2011 3:35 PM (GMT 0)
Update! :-)
I was diagnosed with severe pan colitis 4 years ago. (aged 44) My disease took a while to control, but eventually Azathioprine seemed to work. Most symptoms were gone or were very mild. Unfortunately my hair began to fall out and I was getting infections easily. I feared the cure may be worse in the long term than UC itself, eg increased cancer risk.

In June 2008 I started on 4.5mg LDN. Within 2 weeks I was symptom free! Even my aching joints had gone.

I am pleased to report that I remain free of ulcerative colitis and my asthma is barely noticeable even when I go on a 5 mile run. This is despite intense stress and pressure at work.

I did have a minor flair around Easter 2011 triggered by antibiotics again! I just needed to know where the nearest toilet was for a few days. It is also likely that I had gotten complacent about dietary supplements, so since then I have stuck to them religiously.

It is tantamount to criminal negligence that LDN is being passed by so often by UK doctors. The need to know of its great potential. Why is nobody telling them? The NHS have not approved LDN for treatment for anything and pleas to the current government to fund research and trials have fallen on deaf ears.

I am not your typical conspiracy theorist but I do believe that the drug companies do not want LDN to become accepted because it is a potential therapy for so many diseases and conditions where the immune system requires boosting or rebalancing. LDN costs very little and could potentially displace some of the great profit generating medications now used. I also believe that the UK government is in the pocket of the drugs industry and that many of its MPs and ministers have interests in it. (Rant over!)

Post Edited (hardkaur) : 12/24/2011 1:51:09 PM (GMT-7)

Posted 12/26/2011 4:21 PM (GMT 0)
Great news!
Thanks for posting.
Posted 12/29/2011 3:13 AM (GMT 0)
Hi. Just checking in. The UC is still doing good and I am still on the LDN. I posted on here a while ago about losing weight. I have lost 30 pounds so far. Just found out why. I have Graves Disease. Lucky me.

Hope everyone else is still doing good.
Posted 12/29/2011 12:20 PM (GMT 0)
Boxermom

So sorry to read of your extra burden, like UC isn't enough. Best wishes going forward.
Posted 12/29/2011 5:57 PM (GMT 0)
Box, I am so sorry to hear about the graves disease. Have you asked your endocrinologist or perhaps even Skip's Pharmacy, in particular Skip, if perhaps the LDN might help with the Graves disease? I know that it has an effect on Hashimoto's.

Are you by chance a DES daughter? I recently read the DES progeny have a 50% increased risk of getting multiple auto-immune diseases.

I hope you start feeling better soon. Glad at least hour UC is under control.
A big hug to you!
Posted 12/29/2011 6:10 PM (GMT 0)
what is a DES daughter? This is my third autoimmune disease. I will look into the LDN and thyroid.
Posted 12/30/2011 7:47 PM (GMT 0)
Box, DES daughters and sons, are whose mother took:
Diethylstilbestrol (DES, former BAN stilboestrol) is a synthetic nonsteroidal estrogen that was first synthesized in 1938. It is also classified as an endocrine disruptor. Human exposure to DES occurred through diverse sources, such as dietary ingestion from supplemented cattle feed and medical treatment for certain conditions, including breast and prostate cancers. From about 1940 to 1970, DES was given to pregnant women in the mistaken belief it would reduce the risk of pregnancy complications and losses. In 1971, DES was shown to cause a rare vaginal tumor in girls and women who had been exposed to this drug in utero. The United States Food and Drug Administration subsequently withdrew DES from use in pregnant women. Follow-up studies have indicated that DES also has the potential to cause a variety of significant adverse medical complications during the lifetime of those exposed. The United States National Cancer Institute recommends that women born to mothers who took DES undergo special medical exams on a regular basis to screen for complications as a result of the drug. Individuals who were exposed to DES during their mothers' pregnancies are commonly referred to as DES daughters and DES sons.

http://www.desaction.org/faq.htm
Posted 12/30/2011 8:17 PM (GMT 0)
Box,

Here's some info on LDN and auto-immune diseases:

http://fourfoldhealing.com/2010/06/08/moods-and-the-immune-system/

Scroll down to "Autoimmune Disease" and read what this doctor says:
You may need LDN - Low Dose Naltrexone if you have MS, Crohns, Lupus, Thyroid, Psoriasis, Arthritis
Autoimmune Disease

According to the New England Journal of Medicine (November 13, 2003), "Preclinical evidence indicates overwhelmingly that opioids alter the development, differentiation and function of immune cells, and that both innate and adaptive systems are affected." Bone marrow progenitor cells, macrophages, natural killer cells, immature thymocites, T- cells and B-cells are all involved. Thus the whole gamut of cells that we associate with the immune response is dependent on naturally produced opiates. In other words, autoimmune disease is really an endorphin deficiency—that's the proper diagnosis. These diseases are not caused by an over-activity of the immune system, as we've been told. They are caused by the immune system not getting what it's looking for.

Hope this helps.

Let me know.


 

Posted 1/7/2012 12:10 AM (GMT 0)
Happy New Year!

badslinke, collegestudent, colgone1, probiotic, mamabee, boxermom2, astar, hopeful4uc,

hardkaur, peace&harmony, jray1971, janec, linahawk, and the others of you on LDN - -

Just checking in with everyone who's on LDN - to get an update on your progress.

How are you each doing?

Thankfully, I am doing great. Enjoying full remission. I'm still on transdermal LDN and don't intend to stop its use. My diet is Paleo - lots of veggies, salads, salmon, and grass-fed products: lamb, beef, bison, eggs,. I still do my protein shakes 2 x per day. And am on several supplements (which you can see in my sig). I feel great. I've seen other benefits from changing to Paleo diet - which is anti-inflammatory - a great decrease in joint and bone pains, and my fibromyalgia symptoms have been greatly reduced as well.

Posted 1/7/2012 12:19 AM (GMT 0)
Hi everybody! I'm still doing great. Just went to dinner in a small Italian place with one restroom. That's a big thing. Ate an Italian Stromboli with no problem. No diet restrictions here. Hope all are well?
Posted 1/8/2012 1:36 AM (GMT 0)
Great news Box!

Ate a stromboli, wow....so glad to hear it.

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