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Ulcerative Colitis
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Posted 9/24/2011 11:27 PM (GMT 0)
UC is a catchall for GI issues they have no answer for. I was told that by a GI. I was also told running/blading did not cause my flare, he said exercise would probably help it.

I have either ran,hockey style bladed hard, rode bike - every day for the last 120 days but did not flare as usual at summers end. I also weightlift a lot. Hydration plays a bigger role for me. I will say I am trying to have days with no physical activity to avoid building up too much inflammation.

Food: well I can induce a flare by eating the wrong foods over and over again. I can get out of one this way too.

Since UC is catchall for various causes :

I bet there are several large groups

Group I 100% determined by whims of the immune response
Group II Dominated by food choice
Group III Dominated by difficulty clearing inflammation from the body

I am primary Group II and secondary Group III, I overlap those two in a venn diagram.
Posted 9/24/2011 11:59 PM (GMT 0)
This thread has been very telling in many ways.
I have a similar story to the original poster, but have been basically ganged up on by the haters & doubters that haunt this forum.
To say and many here do, that there is somehow blame assigned to sufferers of UC simply by being positive about diet and exercise is ridiculous.
If any of us are going to move forward, we need to be open minded and willing to take steps to get well. Not every thing will work for everyone, but knowledge is power especially to all of us who suffer with this disease.
Posted 9/25/2011 1:02 AM (GMT 0)
I agree with beatUC.

We need to be open minded and this forum is a good source to hear other perspectives. They may not work for everyone but it sure gets me thinking of alternatives to try.

Besides the poster has already apologized if it appear he/she came across wrong. Can't we just let this go now?
Posted 9/25/2011 1:44 AM (GMT 0)
Who are you referring to as a "hater" or "blamer?" lol... Everyone on this thread who said diet didn't work for them also said they are glad it works for some people....so who exactly isn't being open-minded? All anyone here is doing is sharing what works for them. If diet works, great. If meds work, great. It come off as blaming because the OP said we caused our UC due to poor diet and exercise....not sure how else to explain it or what you don't understand.

I agree with quincy...I don't see any positivity in this thread.
Posted 9/25/2011 3:08 AM (GMT 0)

aguywithuc said...
UC is a catchall for GI issues they have no answer for. I was told that by a GI...

Since UC is catchall for various causes :

I bet there are several large groups

Group I 100% determined by whims of the immune response
Group II Dominated by food choice
Group III Dominated by difficulty clearing inflammation from the body

I am primary Group II and secondary Group III, I overlap those two in a venn diagram.

UC is actually colitis when no external factors are the cause. Thus some say this disease has to have a genetic component. The problem is that there are so many factors involved with this disease that it's really difficult for doctors to rule out external factors. In my case, antibiotics are most likely the cause; however, there is no proof. And, thus, I've been diagnosed as having UC. And there are some who will insist that I have to be predisposed. So yes I agree with you, it really is a catch all phrase.

Post Edited (subdued) : 9/24/2011 9:24:44 PM (GMT-6)

Posted 9/25/2011 3:14 AM (GMT 0)

Alinus said...
regarding those that do not believe diet has an impact on UC or CD - think about liquid diet that is provided in hospitals for extreme cases of UC/CD (especialy in kids).
while under this kind of diet - the gut will restore to it's normal state. when they are taken of it (since it's an extreame measure) most of the patients are going down the hill again...

Hate to tell you this, but during my most severe flare, all I could stomach was liquid. It did not restore my gut. In fact, it probably made things worse due to the high level of fructose.
Posted 9/25/2011 3:19 AM (GMT 0)

Alinus said...
i too don't like the fact that usually when someone posts about success diets stories or asks questions about it there's a lot of people here that come up and post: "nonsense, it did not worked for me" or other stuff like this.

Whether or not diet works for many has to do with the cause of the disease. For some people, they are extremely predisposed to flaring. There isn't much they can do in terms of diet, no matter what stage their flare is in. Even if they are eating very healthy, they can still flare. For others, poor diet has weakened their colon. Improving their diet can help. For some people, diet is so important that it can be the sole reason for being in remission.

Most people who don't have IBD will automatically assume that it's all diet. I feel for those who are very predisposed. They are constantly being blamed for getting a disease that is not their fault that they have.

And BTW, diet does make a difference for me. However, I get serious skin inflammations, which I would have even if all I consumed was water. So I know that for some diet has little if no baring on their IBD.

Post Edited (subdued) : 9/24/2011 10:57:46 PM (GMT-6)

Posted 9/25/2011 3:28 AM (GMT 0)

Sara14 said...
Who are you referring to as a "hater" or "blamer?" lol...

I feel this way too. Some people think forums are for supporting each other, and therefore we should only provide encouragement. However, for me, forums are for discussing, sharing our experiences, and learning. Just because I don't agree, doesn't make me a hater or blamer. It would be impossible for everyone to agree. We've all have had different experiences.
Posted 9/25/2011 4:53 AM (GMT 0)

imagardener2 said...

I feel blameless in getting UC and I think everyone here probably feels the same about theirs. My lifestyle was not to blame for inflammation, this I am 100% positive about.

I am to blame for my IBD; however, my skin inflammations are a different story. Hormones and genetics are to blame. So I can understand fully that there are many who have UC through no fault of their own.
Posted 9/25/2011 5:50 AM (GMT 0)

subdued said...

aguywithuc said...
UC is a catchall for GI issues they have no answer for. I was told that by a GI...

Since UC is catchall for various causes :

I bet there are several large groups

Group I 100% determined by whims of the immune response
Group II Dominated by food choice
Group III Dominated by difficulty clearing inflammation from the body

I am primary Group II and secondary Group III, I overlap those two in a venn diagram.

UC is actually colitis when no external factors are the cause. Thus some say this disease has to have a genetic component. The problem is that there are so many factors involved with this disease that it's really difficult for doctors to rule out external factors. In my case, antibiotics are most likely the cause; however, there is no proof. And, thus, I've been diagnosed as having UC. And there are some who will insist that I have to be predisposed. So yes I agree with you, it really is a catch all phrase.

I too started with back to back doses of antibiotics 3 in a row the last being cipro. Apparently three simultaneously can be a remedy. This set the stage for me to get UC when I was 42 years of age - a very ODD age group to get UC in.

So in my case its not my immune system so I am not a member of Group I - those people get no relief from diet changes. I can compound the resulting inflammation ( btw everyones gut is in a state of very mild inflamation in a sense and is normal ) by creating lots of more inflammation from too much working out too often and lack of sleep used to also contribute to the inability to clear inflammation. Now that I sleep with 5-htp I am able to work 36 hours straight and get very little sleep for weeks with no flare.
Posted 9/25/2011 9:49 AM (GMT 0)

aguywithuc said...
This set the stage for me to get UC when I was 42 years of age - a very ODD age group to get UC in.

I had my first flare in 2006 when I was 44. Yes. It's an odd age to get UC.
Posted 9/25/2011 11:10 AM (GMT 0)
I do not discuss the treatment options people choose , but the fact that some people constantly discourage alternatives. There are many ways in which we arrive to control our UC - because we are different. Disconsidering them or minimizing their importance for other users, showing pessimism when it's not asked for them, this is what bothers me.

I usually do not post my opinions on subjects that i know little about or on solutions that seemed not to work for me or that i disagree with - simply because i know the most important fact in this disease is to stay positive, no matter what treatment / alternatives we choose.

Let people choose their own alternative and not crowd them with negative opinions.


And since diet seems to me to be the most battered alternative on this forum - i've never seen such attitude towards other options - maybe a subforum in UC section for diet is required. Those who share or want to share this alternative and have benefits from it can post their experiences without offending or being offend from other members.
Posted 9/25/2011 2:03 PM (GMT 0)
The "mob" here chose to latch on to the "he's blaming me for my UC" bus while ignoring the exercise/activity part of the original post.
I firmly believe that exercising between flares and even during them makes you stronger and more resilient when the bad times come.
Even a brisk walk or gardening are wonderful ways to increase blood flow, get rid of toxins, and generally just feel better.
as far as diet goes, different foods work for different people, BUT there is good food and bad food, fast food and donuts aren't doing anyone any good. Whatever food works for you, just make sure it's whole grains and mainly plant based.
I've been called "bitter" and "a gloater" by some of you, but my message is one of hope and success against this disease.
I was hospitalized, transfusions, pic line, and just one day away from emergency surgery a few short years ago, Now I have my health and a great life.
I would hope this forum is a way of sharing optimism and ways that some of us have gone on to live full lives despite our UC.
Posted 9/25/2011 4:09 PM (GMT 0)
oh my...one thread compared to an entire forum to say you hope we have optimism? I bet many people don't read most of the threads on here and only read what's of interest to them exclusively.
Exercise, diet, medications, optimisn, etc is discussed in most threads, based on subjective need.

Actually a newbie coming with a thread titled as such shows little knowledge of the workings and commitment to the forum.

There's nothing positive about blanket statements. Dealing with issues is so personal....just basic functioning can be a struggle.

And to put it bluntly...not one person has NO hope. That too is subjective. Plus, most of us don't only deal with UC.  Gee, life is a struggle without dealing with illness...all the suggestions are for basic good living.  Most of us know that and to repeat...discussed in most threads/posts.

We've seen suicdes of most valued members who still shared hope on their death day.

We get it...really we do. 3 posts of a newbie commenting as such are a dime a dozen.

q
Posted 9/25/2011 5:43 PM (GMT 0)
I exercise as much as I can, although have cut back recently. I swim, 60 laps 3x a week at the local Y. But when it's start to get cooler, in Fall, I have a hard time jumping into the pool, so generally swicth to yogs. During both forms of exercise I have come REALLY close to having an accident- once I had to literally leap out of the pool & head to the locker room, all the while going in my bathing suit! And sometimes yoga, with all it's postures & bending, doens't sit right with my gut. Sooo... while exercise *generally* is a good thing, it doesn't always equal better intestinal health. If it did, my recent scope would not show such inflammation & ulcerations. And sometimes I've just been too sick & tired to do anything but go to bed. Beatuc, you have said asked in the past why people in remission continue to post... why do you, I guess? I'm not sure either what exactly you've done to get yourself into remission- are you med-free, do you follow a specific diet or lifestyle? Just curious, really- share, if you do! Obviously what you're doing is working for you. I don't like being called part of a "mob"- believe me, if all the dietary & lifestlye changes I've made have done anything noticeable for my UC, I'd still be doing them.
Posted 9/25/2011 6:23 PM (GMT 0)

quincy said...
Actually a newbie coming with a thread titled as such shows little knowledge of the workings and commitment to the forum.

We get it...really we do. 3 posts of a newbie commenting as such are a dime a dozen.

q

Do you suggest that newbies should not be allowed to post into the forum their personal opinions? Or better to close the forum for them?


So, what's a "newbie" then?
How many years must one be registered in this forum in order to have the right to post his opinions and be taken into consideration? 2? maybe 5 will suffice?

If one is a newbie into this forum does it makes him a newbie in UC also? How many inches of ones colon must be affected before being considered and "experienced" uc'er?
Or we should rate the forum members based on the number of medications they are on?

Since when the status / registration date onto this forum is a criteria to judge peoples experiences or dismiss their opinions?
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