bad flare- going more at night :( no sleep at all

I was put on 40 mg of pred a day. and I was told to take it all at once in the morning since it can cause you to not sleep. Worked better for me all at once too because at first I was splitting the dose up. Maybe try that. Three days isn't that long yet...sometimes it takes longer. My first flare I saw improvement already by that point but I was on a higher dose also and taking Lialda too. I also use Rowasa enemas which work great for me.

Krissy, nice to see you but very sorry it's because of a flare up.

I have had the situation where I can't get any sleep becayse of going to the bathroom and it's very difficulr. I think you may ned a higher dose of pred to nip this. 30mg isn't typically the starting dose, most start at 40, some even higher. I hate to say that because I know how evil prednisone is but if 30mg isn't doing it, you may need more. That and you may need to accept that it's time to start a stronger medication. Have you been on any of the immunosupressants? Are you still using rectal mesalamine? Can you use steroid enemas at night and mesalamine during the day? Are you still on 10 salofalk? You could try increasing that to 12 or try a different mesalamine medication. Some do better on Colazal or Lialda. I didn't have luck changing but it's worth a try. Also, if your anxiety is high, you should speak to someone and getmedication to treat it. When I was on prednisone, I had to take ambien to sleep but not becuase of going to the bathroom, because it made me wired. Have you tried immodium? I haven't but my GI mentioned that I could try it last time I was flaring. Ask your GI if it is something you could try.

oh gee Krissy, didn't realise you were going through such a bad time.

I hope the pred kicks in soon to give you some relief so that you can get some sleep.

When exactly did your flare start? I see you were tapering Salofalk in October, were you at every second night and then flaring?

I think you should get the doc to do stool testing for you to make sure you don't have anything else going on.....I think that could help ease your mind a bit.

I know it's difficult, but try to not worry about work at this point...take a good block of time off to get better enough to function.

Welcome back Krissy...
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It can take a few days for pred to work. When I relapsed, it took about 10 days for my flare to subside at 40mg! Have you considered foam enamas? They are much easier for me to retain when I am flaring.

If I dont see any results by thursday I am going to call my doc to see about upping me to 40mg. I keep alternating from diarea to constipation thats another thing that has me stumped.