Proctitis excessive bleeding

I was diagnosed with proctitis in July after suffering almost a year of diarrhoea and mild bleeding (started about 6 months into pregnancy). I was originally put on Pentasa suppositories twice daily, these helped a bit but I was still having many episodes of diarrhoea per day. My consultant then added Mezavant tablets, suggesting 2 tablets twice daily and the Pentasa supps at night. This also had little effect and I felt as though something 'didnt agree' with me if you know what I mean, the bleeding has been getting steadily worse.

He has been threatening me with steroids, but im keen to stay away if possible, so he prescribed a Steroid suppository (Predsol), which is not available at the moment (manufacturing problems). So, I have for the last 10 days been using Colifoam, it is having absolutely no effect. I am bleeding everytime i use the bathroom, whether i have a bm or not. When i do have a bm, the toilet bowl is completely bright red with fresh blood, and also lumps of what look like blood clots or flesh!

I have an appointment on 23rd November. In the meantime i;m not sure what to do. Can anyone offer any words of wisdom??

Thanks in advance,

Emma 

Thanks IBDISTHEPITS. Im not using anything at the moment other than the Colifoam, was hoping it might be a miracle cure!

emmer25,

Suppositories wont do much, I agree ask for Hycort enemas they will definately reach farther and I find them to work great.  When I was bleeding alot I added the oil from the vitamin e 400iu or higher (8capsules) into the hycort bottle and lubricated the tip with more vit e.  Vit e helps to heal and stop the bleeding and the hycort takes the inflammation down.  You can put vit e into an enema bottle and mix it with a little warm water and insert and retain.  It doesnt mix the best but some of the vit e will get in there.

During the day I used cortifoam I think it is a little stronger than the colifoam.  Foam during the day enemas nightly until bleeding and symptoms decrease.

Watch your diet certain foods like lettuce and raw veggies can irritate a bleeding colon and make things worse.

Increase your probiotics to a few times a day on an empty stomach to add good bacteria back into the colon. (2 good ones in my sig)

If you're bleeding that much, you need to call your GI - don't wait until the 23rd!

Excessive bleeding is BAD. I ended up in the ER many times in need of a blood transfusion. At one time my hemoglobin dropped to 4.2 which is practically dead. Even the 16th is still a week away...please be careful. If you start feeling really poorly, go to the emergency room.

Ok but I felt generally okay too when in reality I was is really bad shape. The thing is if you have been slowly bleeding everyday your body adjusts to it rather than if you lost a lot of blood very quickly. So you may feel alright but your blood count could be really low. The day I was admitted to the hospital with the 4.2 blood count I was out Christmas shopping when my doc called my cell phone with my lab results and told me to get to the hospital asap! You just have to be careful when there is bleeding like you are describing. Hope you feel better soon!

I started with UP two yers ago, went on to be UC, now it's PC in the space of 2 years.

I was beelding and with little medication ended up in Hospital about three times over three months and had 13 units of blood. Have recently been in hospital again and had 2 units of blood.

You will know if you have lost too much blood as you will feel tired and not want to do anything other than lie down all day, take a look under your bottom eye lid to check the colour, if it's pale you may need blood.

Don't be afraid of Prednisone, it's not great with it's side effects, but better than lieing in hospital for weeks on end, any day.

I am still bleeding now and I have been home only two months, I am back in for a check up next week on my blood. I take an iron tablet everyday too.

I would like to know how much bleeding we can take without having to go into hospital and are there folk out there who bleed a little but often without the need to go in?

I'm not bleeding too heavily at the mo but am feeling like I will have to go in again for blood soon, and I want to stop it.

I would appreciate any ideas.

Best of luck to you, try Pred it's pretty good at helping the condition but has side effects that, it seems, can affect everyone differently.

Oh and supositories never seemed to do much good for me.

Post Edited (lifesover) : 11/10/2011 1:19:09 PM (GMT-7)