an update on me

Hi all

well I went to the new GI who immediately cast doubt on the first GI's diagnosis and had me stop all UC meds to see what happened. Well so far after getting sick for about a week (which she predicted) with exhaustion and headaches as much as the gut, I am feeling better. Not getting so crushingly exhausted and headachy. My gut has settled a bit too still have bit of pain etc but I am better without the meds than on them.

I will be very interested to see what the colonscopy reveals though I am not looking forward to the prep which I found harsh on my system.

I am even exercising again but taking it slowly because I find if I excercise intensely it wipes me out rather than giving me energy.

Interesting times I think.

she thinks it might be microscopic colitis rather than UC because it wasn't visible. She isn't sure though because she just had the reporting letter rather than the photos and I tend to get constipated rather than having D though still having to go fairly often to produce very little though that seems to be changing a bit without the meds - just the UC meds. She told me me to ring her if I need to go on other meds but so far its ok.
I am having the scope on 19 December I could have had it on 30 November but that's the anniversary of my Dad's death so its the last thing I want to do that day.
Thanks for the tip re gallon prep and found taking the stuff ok but I just had to keep going long after there was anything there and it burnt as was painful when there was nothing there.
Its all a bit wierd really, something isn't right but I think the sulfazine was making it worse (though initally it helped) and the first GI didn't listen.
I'll let you know what happens.

After I had the gallbladder out and I went to a nutritionist because I was having lots of problems which led to going to the GI. I tend to be a fairly plain eater. I avoid restaurants unless I feel really well because I really rich foods disagree with me. I have been using that GI app to try and keep better track of things. I haven't been able to identify a particular food that sets it off. Oh the GI reccomended physillim husk which I have been taking which seems to help.

Re the sulfa I think the increase must have been a problem as for the first year it was fine then I went up and seemed fine for a while but then it wasn't really being effective and I had the exhaustion headache and blood tests didn't come up with anything else.

I was lucky that there was a cancellation at the new GI's office so I got in really quickly. I like her as she really listened and she bulk billed! I have never had a specialist bulk bill (I am in Australia basically that means I didn't have to pay anything)

All sounds positive, and it's a huge support you like your GI.

I suggest you do the research on MC (LC and CC) and make sure you compile a list of questions for when you have your scope, afterward or when you go back and get the results.

Get a copy of the results....and a copy of the previous results from your other c-scope.

q