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Bad urgency...what should I do?

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Ulcerative Colitis
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Posted 11/16/2011 7:19 PM (GMT 0)
Hi everyone! Its been awhile since I last posted anything. :) So I am having some trouble again. I stopped Remicade last January as I was afraid of the long term effects of the drug. Since then, I've noticed frequent urgencies, blood, and mucous. Today, for example, was really bad. I woke up this morning with a little pain and discomfort. As I was eating breakfast, I realized I had to go to the bathroom. As I started walking I couldn't control myself and the mucous and blood went all over! I haven't had this problem since I was first diagnosed 10+ years ago. I am seeing a new gastro doc Monday, but in the meantime, what can I do? It's always worse int he morning before work. Is there anything I can do to control it? I've noticed that eating out frequently aggravates my colon and the mucous increases as well as the blood. Other than making my own food, is there anything else I can do? Thanks! :)

 

I am on the following medications:

 

Lialda

Firociet (which I am weaning off of-took them for migraines)

Hyomax

 

Thanks again!

 

Heather

Posted 11/16/2011 10:23 PM (GMT 0)
Hey Heather, wonderful to see you here. I am sorry you're not feeling so well.

For urgency, I definitely recommend trying rectal medication. Are you using anything? How many Lialda are you taking? Did your GI give you a hard time about stopping Remicade? Do you have symptoms on a dialy basis or do they come and go?

I started taking Pristiq to control my migraines and it has helped immensely. I haven't had a migraine in a few months. Are you going to take somethiing in place of the fiorcet?
Posted 11/17/2011 12:58 AM (GMT 0)
Hi notsosicklygirl,

Yep, my GI doctor did indeed giving me a hard time about stopping Remicade. This is why I am getting a second opinion. In addition, I have symptoms on a daily basis whether its frequent stools (but never diaherra) or mucous, there is usually blood.

Is a Pristiq a as needed medication for your migraines?

Thanks!
Heather
Posted 11/17/2011 2:11 AM (GMT 0)
It's an antidepressant, I take it daily. I was taking zomig as needed but this is better for me. I think you should ask about enemas. Have you ever considered 6mp or Imuran?
Posted 11/17/2011 3:58 PM (GMT 0)
Enemas are very difficult for me to administer due to being a teacher during the day. I do not have time to continuously run back and forth to the bathroom, which the enemas do have that effect on me. As far as the Pristiq goes, how does it help you as its an antidepressant? Just curious about that. :) I've been on 6mp and did not like how it made me feel. My fiance and I are talking about starting a family in a year or two, so I really want to get my body in tip-top shape for that nutrition wise as well as lose some weight. I've been on too many medications over the years and I am trying to find healthier and natural ways to handle the UC and migraines. However, I am going to the doctor on Monday to get a second opinion. Thanks!
Posted 11/17/2011 4:48 PM (GMT 0)
While flaring, I do a canasa supp at bed time & a hydrocortisone supp during the day. This combo is helping a lot and they both are so easy to use. Maybe you can do one during a break at work so you can lay down for a few minutes after?
Posted 11/17/2011 5:56 PM (GMT 0)
Heather, the enemas are to be used at night, so that will help your urgency. And...use the supps during the day.

q
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