Accidents

Ugh, 2 today. My disease is defi itely changing. Always when i'm driving. I need to make time to go before I get in the car. Plus it's a stick shift. Good thing depends are so well made. Surgery is looking better every day.

That was really the clincher for me having surgery. You kind of feel less than human if you constantly pooping yourself. Toward the end, I couldn't even make the 10 minute drive to my kid's school to drop them off without having an accident. I can sympathize with you. :(

I'm sorry hun. Accidents are the worst. I still remember my very first accident... right in the middle of Shaws as a child. UC can be one of the most depressing things ever sometimes. :\

I've never had an accident in public but have had them at home but only of course when flaring. For me it was needing to go and not having enough time to run to the potty because I was trying to get the dogs outside before they had an accident. LOL UC stinks.

Pooped in the car in a DQ parking lot once.

I've had one in a hospital parking garage after an excruciating one and a half hour (freeway) drive (visiting someone).  Luckily I was able to 'assume the position' behind my parked vehicle, out of view of others and cctv.

I'd popped a couple of immodium earlier to no avail which proves they are quite useless in a bad UC flare.

I hope I never have to go through that again but it certainly strenghthens ones resolve.   Just how to deal with it again if faced with a longish drive, well it....depends......

The anxiety part of having this DD...I was so embarassed and tired of having public accidents (no wonder I confined myself to my home for 3 yrs at one point, which was the longest confinement I had done in my 20 yrs of having IBD) which is why I ended up selling my car (which I miss dearly, sold it to my MIL/FIL so it's still in the family at least) and bought a minivan, took the very back bench seat out and bought one of those port-o-potty's from a camping store so that I could leave my house and still have a toilet with me.

Isn't it amazing how this stupid disease can make one really have to use their head in order to have somewhat of a life! Never in a million years did I ever think I would have to make advanced plans and crazy ideas just to try and be a little part of society....DEPRESSING! And after all these year, even with feeling somewhat better but still living with the unpredictability of this disease I'd still rather just be at home and I used to be so spontaneous/get up and go kinda person....I want my life and my body back :(

Well, still having accidents. I woke up and wanted to start coffee, 1/2 caf, before tha bathroom. That was a mistake. I am really thinkinking of surgery, but I am frustrated because I want to try the fecal thing first. I tried the scd for eight weeks while on pred, and once off pred the blood came back, although nothing like what I have now. I don't know what to do?

If you want to try the fecal thing, then go for it. If it works...great and if not then at least you know you tried everything you could before having surgery and you won't have that feeling of "what if". I tried everything I could possibly stand before having surgery. I didn't try the fecal transplant because that just sounded too weird for me. That's just ME. It has worked for some people. In my case I just wanted to be done with UC forever and not ever have to worry about the proverbial shoe to drop ever again.

Oh the humiliation, I remember that well. Back when I was having accidents there was no one to talk to about them. I felt so alone. I also had surgery, almost 11 years ago, and have never regretted it. Definitely do all that you are willing to do to gain remission just so that you know you exhausted what you were willing to try. It makes the surgery decision much easier, not that it's ever easy.

Sue

allswell-

I hope you get some relief soon or at least come to terms with your decisions. I know exactly how you are feeling right now. All the best to you.

I asked my GI about LDN, at one of the top hospitals and mshe said no on her end, had colleagues who tried it with no results. My impression was it was tried a little. Doesn't make sense, but Remicade works for 50% of uc patients so let's keep trying it.

I use oxycodone, 10mg, for urgency and pain. It has given me more freedom than I ever had. I give presentations at work and even teach a 4 hour class now once a week. I can attend awards ceremonies, formal dinners, and speaking events on stage in front of a large crowd. No more excuses as I put one under my tongue and in just a few minutes I am good. It not only numbs the inflamed areas but it slows the digestive system down.

I finally have my life back; I went to a Space Shuttle launch with my daughter which involved being on a bus with no bathroom for hours; I can ride roller coasters, get on the ski lift, get the kids to school on time, etc. I’m now dependable to my wife and children so instead of someone who slows them down I help them.

My GI, insurance and pharmacy closely monitor against abuse and rightly so. I don't take them for headaches, flu, etc. no matter how tempting it is because they are highly addictive. Be careful if you ever try these because after taking them for 3 days your body will become dependent.

When I don't need them on days I stay home I do feel the physiological side effects of withdrawals but it’s a small price to pay for the freedom; I work out in the yard or exercise past those symptoms. It works for me.