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TAKING ANTIBIOTICS FOR 4 MONTHS! MISERABLE!!!!!

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Ulcerative Colitis
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Posted 12/20/2011 6:29 PM (GMT 0)

OMG!!!!! All night long my son 30, has been in HORRIBLE NON-STOP gut pain. I came online to ask (plea for an answer!) about the affects of antibiotics. HE

 HAS CROHN'S BUT I'M POSTING HERE TOO. He recently posted about an absess that won't get better even with months of Antibiotics AND DRAINAGE TUBES. I'm his Mom and I am taking care of him. I too have posted about this.

For the past 3 MONTHS he has been taking ...

CIPROFLOXACIN HCL 1 tab 500mg every 12 hours and...

METRONIDAZOLE 2 tablets 3 times per day!!

That's a total of 8 ANTIBIOTICS PILLS A DAY! The VA doctors tell him not to miss a dosage or they'll have to take out his Colon. But I am SO WORRIED about HIM. hE WAS ON OTHER ANTIBIOTICS VIA AN IV FOR A MONTH PRIOR TO THESE!

I'm trying to get him to take Probiotics but it's so hard to squeeze them in when it has to be both 2 hours before and 2 hours after.

The VA doctors tell him NOTHING but to take the antibiotics and eat healthy. Well, I've got him eating healthy and taking supplements plus the one lone Probiotic I can get him to take. (He's SO TIRED of thaking pills!) HE'S MISERABLE!

His dad and I are taking him to the hospital now.

Posted 12/20/2011 6:37 PM (GMT 0)
Wow- I am so sorry he's suffering like this. I don't have any advice to give as I do not have any experience with Crohn's but I think it's time to switch doctors (even if that means going a distance. . . that's what I had to do to finally find a doctor that helped me) and see if someone else can help him. All the best to you and your son.
Posted 12/20/2011 6:48 PM (GMT 0)
I too wish I had good advice...the situation seems so frustrating and upsetting. I def. agree though, it does sound time to switch to a new Dr as soon as you can. I hope someone else can give advice about it. I hope your son is feeling better soon and hugs to you.
B
Posted 12/20/2011 7:18 PM (GMT 0)
Diane, I'm sorry hear about your son,

I was diagnosed with UC in sept and have since been put on antibiotics, steroids, and other medications that only offer temporary support.

4 months on anti-biotics is terrible for the body, his immune system is probably weakening quite a bit too.

These few things have worked for me and I hope you and your son will talk about them and be willing to give them a try.

Aloe Vera Juice - promotes healthy digestive systems and acts as a mucus lining to our guts.
Fish Oil - This is beneficial for promoting anti-inflammatory agents in the body.
Probiotics - balance the good bacteria over bad bacteria

Ask him to stick to a low fiber diet and minimize sugary foods, candies, emulsifiers, any fattening greasy foods, also avoid wheat and dairy, and keep a food diary.

L-glutamine will restore the mucus lining on the gut.

Look into Licorice Root & Slippery Elm for herbal teas as they restore the mucus lining in the gut thats been depleted by all acid.

I was at the same point as your son for about a month and needed to look further than just medications. Ask about a small dose of prednisone as that will help reduce inflamation for the time being, but the drug is dangerous if used over long term so keep that in mind! Look into other doctors too and research as best you can!!!
Posted 12/20/2011 7:43 PM (GMT 0)
Ive been here for almost 2 weeks, now. Aaron flew me in to take care of him, the doctors wouldn't release him from the hospital without someone to take care of him. Mere roommates don't cut it. He's not married.

He hasn't eaten well in months and is skin and bones. I'm cooking and cleaning for him, trying to do all I can. This is what he takes in addition to all those antibiotics...

1."Go Greens" I sneak in 2 shots of Aloe Vera.

2. Fish Oil

3. Cod Liver Oil

4. A multi vitamin

5. I can only get him to take 1 Probiotic a day due to it having to be squeezed in between the antibiotics. 2 hours before/after taking an antibiotic.

6. Iron supplement

7 Anti-depressant

IS ALOE VERA SUPPOSED TO TASTE LIKE TAP WATER WITH A TINY AFTERTASTE????

THANK YOU, Diane

Posted 12/20/2011 8:02 PM (GMT 0)
Yes Aloe Vera tastes bitter, just try to take it in the morning on empty stomach. I cringe after taking it. Whats his diet like if you dont mind me asking?

Also, ask your doctors about a small dose of prednisone for the time being. It's a steroid that will take control of the bodies cortisone and act as a hormone. There are gradual side effects, and there are long term side effects of taking it for more than long period of time. However, its important that in his current state he really seeks out some strong medicine that will stop the inflammation, and prednisone will do just this. A normal dose to start with is 40mg. It's important that if goes on prednisone or any other steroid, he weans it off slowly as it can do damage to the adrenal glands in the body and cause a rebound effect (bringing back symptoms). But i believe at his state he needs some sort of medicine to get his active condition under control, and then he can truly continue to see some success with all of the natural supplements he is taking.

At night when hes having an active flare and in alot of pain, ask him to take a little shot of aloe, it will coat his stomach immediately and help a bit to ease pain - it did for me!

Also, if hes up to it, it would be worth it to do some food allergy testing.

I wish you guys well, if you have any questions keep coming, this is a great support community! Just know you're not alone.

Post Edited (stereofidelic89) : 12/20/2011 1:10:06 PM (GMT-7)

Posted 12/22/2011 3:06 AM (GMT 0)
This stuff he has came in a gallon jug and it tastes just like water with an aftertaste. I think he got ripped off and think we should get some more at a healthfood store.

Right now FROM ME he's eating only real foods, no processed foods and since he WON"T eat veggies I got him some "Go Green" powder to mix with water and so he can drink his 6 servings each day. No pork. Somewhat "The Maker's Diet" but not all the way on it yet. (Expensive!!!) Lots of homemade soup, eggs and yogert, green tea, smoothies and salads...No breads and such because of the Celiac. He is able to go to work (very easy sit down job) so I don't know what he eats there apart from what I send with him.

Posted 12/22/2011 3:21 AM (GMT 0)
Aloe juce does taste alot like water, just a little sour, but if you're not trusting of it, this is the kind I get > http://www.amazon.com/Forever-Living-Aloe-Vera-Gel/dp/B001IKB56O . Great quality.

Sounds like he's headed in the right direction, but I would re-consider the dairy like yogurt or smoothies unless its raw goat milk or truly organic. I was having Stonyfield farms organic yogurt (from my home state) for a while but it still does something with my stomach. I'd say wheat, dairy and fiber are tolerable to every person differently. That's great he's now up and able to work though!
Posted 12/22/2011 3:29 AM (GMT 0)
Have his Vit D checked. His levels should be in the 60 - 70 range. My GI doctors have done a study that shows that higher Vit D levels equal less inflamation. I am really sorry that he is going thru all of this. It sounds like it's the abcess that is causing all the problems. I had one and they are very painfull. Is there any way it can be drained?
Sending healing thoughts. I have a son that has UC so I can only imagine what you are going thru.
Posted 12/22/2011 6:27 AM (GMT 0)
It's wonderful that you have travelled to help your son, also that he's able to put in some time at work. Crohn's is a devil to manage; I doubt that VA hospitals have enough gastroenterology expertise to deal with it longterm. If there is a university-affiliated medical center near your son's location, it might help him to get a 2nd opinion consultation from IBD sub-specialist doctor(s) who practice and/or teach in those facilities. He may need more than antibiotics to get his Crohn's under better control. You could try looking at the ccfa.org Website under their "Physician Finder" to see if they have gastroenterologists listed in your son's area. / Old Hat (31 yrs with left-sided UC; presently in remission taking brandname Colazal)
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