I've been flaring for almost a year now, and I could really use some advice in the Doctor area.
For some reason, the GI's in my area cannot get it right. I'm currently on my 3rd Dr. now. I have put in a request for the Mayo Clinic, but am on a wait list.
My symptoms are I guess somewhat abnormal for UC, I rarely bleed but have severe cramping in my intestines and rectal pain. I am now having horrible joint pain and cannot sleep through the night. I am not able to work at this time because of the pain and BM issues.
My most recent scope only showed inflammation in the rectal area, but I have since (based on my medical knowledge) progressed to inflammation throughout the colon. BUT my DR will not believe me!!! They insist the biopsies did not show anything past the rectum. I try and reason with them, but its impossible. My first scope (by a different GI) I had 2 years ago had inflammation throughout my entire colon. However, I wasn't treated... that's another story. So I don't see how this is so hard for them to wrap their minds around.
Anyhow, they want me to do a sig scope in the next two weeks, but until then I guess I get to continue suffering.
I know this can't be normal. However I'm having a heck of a time finding a GI to help me out. Is it worth the wait for the Mayo Clinic? Mentally I can't take this much longer, and really don't want to have to deal with the ER.
Currently I am on 4 lialda and just finished cort enemas. I am going to start rowasa enemas this weekend.