Hair loss still

allswell

Veteran Member

Joined : Oct 2011

Posts : 685

Posted 1/6/2012 11:32 AM (GMT 0)

Just had to vent. My hair is still falling out. I would say I have lost half. I hope this stops after I get surgery.

Tigerlily25

Regular Member

Joined : Nov 2011

Posts : 67

Posted 1/6/2012 4:40 PM (GMT 0)

Good luck! I lost well over half my hair before my surgery, but after I got off of all the drugs and had my surgery it stopped. I got a cute pixie cut until it all grows out. I hope everything works out for you! This disease sure does affect a lot outside the colon, doesn't it?

journey2health

Veteran Member

Joined : Oct 2009

Posts : 2885

Posted 1/6/2012 5:06 PM (GMT 0)

Hi, hang in there... I lost a third to a half.

allswell

Veteran Member

Joined : Oct 2011

Posts : 685

Posted 1/7/2012 4:30 PM (GMT 0)

Thanks, I hope it reverses, although it will take a while to grow back

Gonk

Veteran Member

Joined : Jan 2012

Posts : 600

Posted 1/7/2012 5:33 PM (GMT 0)

Hi everyone, new here, great forum.
I started losing my hair the first time took Asacol. At the time I did not realize how much hair I was losing, but looking back it was pretty rapid. I'm on Lialda now and the shedding continues. I really do miss my hair every time I look in the mirror. Such is life!

Somedude

Veteran Member

Joined : Jul 2011

Posts : 3393

Posted 1/7/2012 7:17 PM (GMT 0)

We're all going to look like Picard.

VIEW IMAGE

LOL

notsosicklygirl

Forum Moderator

Joined : Dec 2008

Posts : 17890

Posted 1/7/2012 7:26 PM (GMT 0)

I lost a ton of hair when I started Asacol as well. I remember dying my hair once and after, clumps were coming out. I was so scared I would have patches of baldness but I didn't. I have a ton of hair, losing some for me, while traumatic, wasn't noticable. After a few months, as my health improved, my hair grew back. I had lots of short hairs poking up for a while but now it's normal. It takes time but it will improve.

Skowrs0206

New Member

Joined : Jan 2012

Posts : 1

Posted 1/8/2012 3:51 AM (GMT 0)

Good luck, allswell! I see that you have been on Apriso, which is what I have been on since I have been diagnosed. I also noticed severe hair loss (clumps come out in the shower) if I miss a dose/am waiting for my rx to come in. I have researched that Apriso causes hair loss...but have been told by 2 doctor's that there isn't anything wrong.

allswell

Veteran Member

Joined : Oct 2011

Posts : 685

Posted 1/8/2012 5:26 AM (GMT 0)

Now, the only thing I am on is prednisone 10 mg, ehen I was first diagnosed 7 years ago and tried asa meds, then it was fine for a while, who knows.

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