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Found out some bad news

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Ulcerative Colitis
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Posted 2/27/2012 5:03 PM (GMT 0)
Went to see an ENT doctor in Durham the other week. Reason being, the doctor who prescribed my LDN - wanted me to see this guy in attempt to get prescribed for LDA as well. Don't know much about LDA yet, but do know that it helps colitis patients who are aware that certain foods make their symptoms worse.

Anyway, this guy thought I might have Celiacs and so he tested me for that and other food allergies.

Got the results back today and was negative for Celiacs, but tested positive for a mild allergy to wheat, and peanuts. Not sure why I'm just finding out about this after having colitis for 4 years. But I guess that's how it goes sometimes, even though this news sucks I'm glad that I am aware of this - it explains a lot.

So my advice to all you UCers that are aware of food effecting your disease I would advise you to get checked for food allergies.
Posted 2/27/2012 5:08 PM (GMT 0)
Good you found this out tcf, I tested negative for celiac as well, but there are tests where you can specifically test for gluten, because sometimes the celiac test isnt all that accurate. I tested slight allergy to peanuts as well, but I love peanut butter and peanuts and I my doc said usually patients have a slight allergy to peanuts, if they have outdoor allergens.
Posted 2/27/2012 5:08 PM (GMT 0)

well, at least you know, and if you avoid those foods maybe you will feel better???

i am definitely looking into getting allergy tested for foods.  do you know what specific tests they did? was it the iga food test or something like that?

Posted 2/27/2012 6:06 PM (GMT 0)
It's good you know now though, it should make flares easier to deal with if/when they pop up!

I'm actually getting tested for food allergies this week after yesterdays scare. It might end up being a waste of time - who knows - but atleast my mind can rest easy this way. Anything to help the stress, right? :P
Posted 2/27/2012 6:25 PM (GMT 0)
Did he prescribe you LDA? What is that?
Posted 2/27/2012 6:57 PM (GMT 0)
Have not been prescribed it yet - he told me he cannot prescribe me to it until I am out of my current flare. He also told me that I will need to stop taking most of my medications. Which is possible if LDN works out.

I found this post on LDA in healingwell explaining what it is.

https://www.healingwell.com/community/default.aspx?f=38&m=1937380
Posted 2/27/2012 11:12 PM (GMT 0)
tcf5010, I just want to say hi land et you know I also live in Greensboro, NC! Who is your GI? Glad you had the food allergies tests done. At least you now know to avoid those foods.
Posted 2/28/2012 1:16 AM (GMT 0)
tcf5010,

The celiac test you took has alot of false negatives, you may be gluten intolerant which is different.

I think knowing what your body reacts to is a good thing to know. There are other nut butters, which are delicious: macademia nut butter, cashew nut butter, etc....

When did you start the LDN? what dosage? what filler?

Posted 2/28/2012 1:31 AM (GMT 0)
Was it blood tests for the allergy?
Posted 2/28/2012 1:37 AM (GMT 0)
I answered my own question by seeing your post in another thread. I did a full battery of food allergy tests and they were all negative. I guess it's good but no answers there. Glad you found something even if it's lousy hopefully you can get remission with the new knowledge.
Posted 2/28/2012 2:58 AM (GMT 0)
i wouldn't say this is bad news! it's great to know what you are allergic to. that way, you can avoid the allergies. wheat and peanut really isn't hard to avoid if you eat a clean diet.
Posted 2/28/2012 4:04 AM (GMT 0)
I've actually been praying to get news like yours! I had the full battery of food allergy testing done last summer (9 months into my flare...I am going on 17 months now...) and the only food allergy I had was cabbage. Very weird and I was very disappointed!

Get ready to eat lots of corn, rice and quinoa...
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