why did you take the plunge and do FT at home???

My 8 yo son was diagnosed with UC a year ago.
The breaking point for me was last November in hospital when they suggested I talk with the surgeon about removing his colon. That was when we decided to go it alone at home since no doctor would do FTs for UC and definitely not on kids.
My son was on 25mg of pred when we started in early December. We did FT every day for 8 weeks, always using fresh poo (within 10 minutes) and first thing in the morning (this is dependent on the donor).
After 8 weeks we started doing FT every other day and now we are at FT every 3 days.
He is now off prednisone for the first time in a year and doesn't take any other meds. He takes boswellia and a bunch of other supplements.
I was the donor for my son and had my blood and stool tested. My son's GI was very supportive of us trying FTs and she said she would support us. This made us feel more comfortable doing this at home.
I don't know if FT is a permanent fix for my son but I have seen significant improvements and we are taking things day by day.
Let me know if you have any more questions about it as I have done A LOT of FTs.

We plan to go to once a week, then once every 2 weeks, once every 3 weeks and so on. It will probably take another 9 months before we stop completely.
I sure hope he has a new flora in his colon and we hope it will stick forever!
I would say he is in remission since the only symptoms right now is a little mucus now and again. I heard it can take 4 months to be completely symptom free after doing FTs. Other than that he has 1 BM a day, no blood or urgency and the pain has pretty much gone.
We haven't been back to the GI yet so I don't know what she says. Don't see any point while he is doing well. I do email her his progress from time to time.
We've also been doing natural things to treat 2 rounds of strep throat and one ear infection without antibiotics this winter. So far we suceeded in avoiding antibiotics since this is the last thing we wanted to give him.
Doing daily FTs for a long time is a big committment and I guess we were lucky as I am very regular (almost like clockwork) in the morning so we would get up do FT, have breakfast and go to work/school. Once you get into a routine it becomes part of your day.

Great update on your son Edbar....we pray for the little man every night. Your a machine....keep it up and keep the faith.

quacklikeaduck, Edbar is doing a very strict protocol that most don't follow due to its strictness. Although I agree with him and his reasons, most protocols don't require daily FTs for so long. I should add, if we had to start over, I would probably do a longer daily regimen. Another option for you is: daily for a week, then weekly for a couple months, bi-weekly for a couple months, monthly for a couple months.

We have a now 6 year old son that we treat with at home FTs as well. The breaking point for us was knowing the only option the GIs gave us was surgery. His UC (and cdiff) was so bad, he missed 150 days of school and was hospitalized often, needing blood transfusions, morphine, steroids, etc. The FTs gave him his life back. That said, like Edbar, we hope things will last and colonize on their own. We are doing them weekly and have no idea how he would do if we stopped. I should add, he is still on Remicade as well...our plan is to wean him off once our year protocol is up. Also, Jack had to go on abx a few times during the FT protocol due to various strep infections.....before realizing there were other options. Thank God, he didn't really skip a beat and is still doing well. This spring/summer, we'll be doing only monthly FTs and will be completed by late fall.

Good luck, we've come to realize the GIs are a valuable resource, but certainly don't have all the answers.