GI follow up today. 4inch isolated inflammation in recto-sigmoid

my symptoms: 3-4 bms a day mild urgency and some blood in stool

my colon looked better than last cscope in 2009, patches in my ascending and  rectum had cleared up. stubborn 4 inches of my  recto-sigmoid area still has inflammation. I thought the rectum was the last to heal? my rectum is fine, lol.

I have basically been in the same flare since August 2008... I could live with how i am now but having this chronic inflammation in your body is bad in the long run right?

Anyway, she is going to wean me off the oral entocort. dont need it, the right side of my colon looks great.  Since I have slighty better results wih the rowasa she said i could switch back to the rowasa from the hydrocort enemas (the first 5 days of the hydrocort i though i was in remission, it worked so good then blood again, sigh). stay on lialda. Increased the strength of my prilosec (also have gerd).

she doesn't think that food sensitivity testing is very reliable, but doesn't think thats part of my issues anyway. she doesnt think this one small part of my colon would be inflamed from it.  I asked what her other pateints were doing as far as trying different things, she said her patients try all different things, different diets, going organic, gluten free , not eating meat, etc, and nobody is getting consistant results with anything.  she did say that i could try going gluten free and see if it did anything. some of her patients have tried it and it helped with their gas and bloating. 

She wants me to be part of a drug study for a new drug, Topical Entocort( well entocort is not new but i guess the topical delivery of it is) . It should be starting in a few weeks, I am very interested in trying that, will keep you guys posted...

oh also as of 2/24 went gluten free, not noticing any difference at all  yet, but I am gonna give it a whirl and see if it helps.  I do feel less bloaty though.....

Question: any way to administer the rowasa to get it a tiny bit further up to the sigmoid or is it already going there????

Quincy:

up until 2006 i was told it was crohns. In 2006 i switched gi's she thought my symptoms were more consistant with uc,  in 2007 she did the IBD promethues test which said UC.

2001 (asymptomatic)scope showed residual inflammation in right colon, nothing else

2004 scope(asymptomatic) no inflammation, residual crohns right colon

2006 scope (and a flare)inflammation in rectum, sigmoid, distal sigmoid ascending, proximal ascending (but not all continuously, inpatches), normal term illeum.  This flare up resolved in 3 month, thank god.

2008  scope (new flare) inflammation in the rectum, rectosigmoid and then a patch way over in my ascending

2009 scope (still flaring) inflammation in my rectum and then a patch in my ascending

2012 scope (and still flaring)  one 4 inch patch of inflammation in my rectosigmoid area

***does that all sound odd to you? the patchiness?***

yes, entocort topical, that is all i know as of this moment....

what do you mean what would I use for oral topical?

i'm confused.

I'm also on 4pills of Lialda (the highest dose) thats a 5asa.  I take it religiously.

is there something else to use for the above sigmoid anti-inflammatory coverage?

the oral entocort was something she added 2 months ago while waiting for the cscope , because i had a hx of right sided colitis and i was still flaring and she was not sure where the inflammation was a the time...

i ordered the benebiotics a couple days ago to complement the jarrows sach boulardi. should be able to start that in a couple days.  I was on vsl#3 ds (1 packet daily in some applesauce)  for about 9 months, and it made no difference in my symptoms.  when it ran out, i did without any probiotic for about 2 months, saw no change, got the jarrows s.boulardi, still no change.  I tried the primadophilus reuteri before the vsl and saw no changes...

In fact I take everything all at once, right before dinner, i take lialda, entocort,5 metamucil. capsules, calcium,vitamin, and my jarrows sach boulardi.

i have not gotten the benebiotics yet, i ordered it online on thursday. 

do you think taking probiotics at bedtime can improve things?

thanks Quincy

I actually like the suggestion to switch up when i take meds.

i think im going to try to take the lialda in the am. i usually go to the bathroom 3-5 x from about 8am-11am, thats my active time, so maybe the lialda can help there??