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What exactly is remission?

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Ulcerative Colitis
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Posted 3/5/2012 8:24 AM (GMT 0)
So im new here, but I read alot and try to follow for some kind of miracle. I am nearly 27 and have had UC for nearly 10 amazing years. I'm still trying to figure out what remission is...? I don't have bloody stools, hardly have mucus and barely have loose stools. That is until I break off track of my normal routine. Am I alone here living in a boring circle like NASCAR? Does anyone else have a hard time going for long drives? Hiking? Any event besides work? It doesn't make sense that I can take my dirtbike out nearly issue free, go shooting, or even 4 wheeling fir the most part free of problems. I'm sure my girlfriend would love any ideas, as she chomps at the bit for more time other than couch or local event time..... Just as well honestly I'm bored with life. This is so unsatisfying, and I constantly have pissed off friends and g/f's. What ya say guys?? Anything?

I only treat my UC with:
Asacol 3-6 pills a day, xanax, and imodium as needed.
shakehead shakehead
Posted 3/5/2012 11:23 AM (GMT 0)
Yes I have hard a time doing anything when I'm flared up at full capacity.
Things that help me to not get stressed are doing what I call " planning my exits ". i.e. planning all possible toilet options.
Long drives, hiking, anything unusual I make sure I do those things with people who fully understand my condition, and fully understand that if it takes me 10 toilet breaks in an hour to do it. Then so be it. Ususally trying anything new the first time this can be a likely scenario.
When it comes to long drives, if I am in the drivers seat and have complete control I find I don't need to break so often. I think that is key with everything I do I must be in control.
I would highly recommend to not do anything for someone out of guilt. That will just make you anxious and could end badly.

Unfortunately the only way to know your limits, is to push them. I'm still figuring out what I'm capable of. But I'll be darned if I'm going to let the disease bore me to tears. It's enough that we have to put up with these ridiculous symptoms. Let alone being bored.

My next big challenge is trying to survie at a music festival, with little to no toilets ever available. I will most certainly be packing my own toilet paper haha
Posted 3/6/2012 1:20 AM (GMT 0)
Lol well thanks for the response, I've never talked to a fellow sufferer about the symptoms but am usually left being told I am selfish with my time and things to do. How do you explain this to your significant other? I certainly won't be seen anywhere social with no toilets.... But u may find me alone in the Olympics with a rifle and beer :) btw I have not been seen by a gastrointestinologist since 23. How much have things changed? I'm tired of the harsh drugs. Any recommendations for natural fixes?
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