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For those in remission

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Ulcerative Colitis
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Posted 3/5/2012 8:24 PM (GMT 0)
How long have you been in remission?

How long did it take you to get their after you were diagnosed?

Is it full remission or are you still symptomatic somewhat? if so what are they?

What was your method for achieving remission without surgery?
Posted 3/5/2012 8:27 PM (GMT 0)
The only two symptoms I had when I was in remission after eating spicy foods I would have that gassy feeling and when I had to go to the bathroom I would have a very limited time I could hold it, I wouldn't call it urgent as I do when I am flaring but I would compare it to when before I got sick I just had to go badly, but I was pretty much symptom free.
Posted 3/5/2012 8:30 PM (GMT 0)
I strongly recommend you to go through tons of threads already posted on this forum.

In my case, I think I am in remission for really long time (finally full blown flare in Dec) but this remission doesn't remain as remission because of my migraine issue and I take NSAIDs for that. NSAID make my UC flare up. So if migraine component is removed, I am pretty much in remission.

I got into remission pretty quickly after I started Imuran+Balsalazide combination. The results of just 5-ASA were little iffy.

I was in real remission when NSAIDs was not causing my UC flare up for nearly 3 years, then I tried to reduce Balsalazide and I flared in 4 days. After that trial, NSAIDs started giving me trouble.

I thought of surgery last month when I was in pretty bad shape but since I started Imuran+Balsalazide combination, I gave up on all kinds of meat and alcohol. Eat almost everything else in moderation. Take my meds and supplements religiously. Finally, keep educating myself by reading as many books (and research articles) possible (And this place is great even if you are just a lurker).
Posted 3/5/2012 8:45 PM (GMT 0)
How long have you been in remission?
It's getting close to three years.

How long did it take you to get there after you were diagnosed?
Let's see - I was diagnosed at the very end of January 2009, and reached remission (off pred and little/no symptoms) in early-ish May. So that was a little over 3 months. I was doing well symptom-wise once I started pred in mid-March.

Is it full remission or are you still symptomatic somewhat? if so what are they?
I'm in complete remission. No symptoms and I had a clear scope in October 2011.

What was your method for achieving remission without surgery?
I used Asacol (12 pills/day) and mesalamine enemas (nightly) and finally had to resort to pred due to a tummy bug that stirred things up again (or perhaps it was simply a relapse).
Posted 3/5/2012 9:00 PM (GMT 0)
I have not had any flares since April of 2011. That flare started December 2010 and lasted until April of 2011. My doctor started me on Lialda at that point and by that April, I was good.

So, no flares since April of 2011.
Posted 3/5/2012 10:34 PM (GMT 0)
How long have you been in remission?
It's been over 3 years since I started going into remission... for me it was a slow gradual process back to complete remission. I didn't really take note of the moment where I would say the process was complete. Months, but less than a year. 6 months maybe?

How long did it take you to get their after you were diagnosed?
The remission process began before I was even diagnosed (it also took months to get diagnosed from when I first sought medical help).

Is it full remission or are you still symptomatic somewhat? if so what are they?
Full remission now. Symptomatically and as per colonoscopy.

What was your method for achieving remission without surgery?
Oh who knows! What I believe:
* complete rest, sleeping or lying down most of the day & night for weeks on end
* eliminated stress (quit my job)
* eliminated all alcohol
* was not following any kind of official diet but through trial and error ate only foods that did not bother my system
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