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Fellow UCers: what do you think is causing this?

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Ulcerative Colitis
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Posted 3/20/2012 4:07 PM (GMT 0)
Suddenly, I'm experiencing urgency, and D, my stomach is distended, and my large muscles are really sore.

I have been tapering prednisone VERY slowly and went from 2.5 mg to 0 mg on Sunday.

Otherwise, to my knowledge, I have not changed my diet or drugs.

I went back to 2.5 mg prednisone today, but I've never had the stomach distension or sore muscles before. Do you think this is related to UC or the drugs (see below), or are these unrelated and just coincidental with the urgency & D?
Posted 3/20/2012 4:09 PM (GMT 0)
It's hard to say. Sometimes you can just have a bad day. It could also be from tapering off the prednisone. I would call your doc and see what they say.
Posted 3/20/2012 4:35 PM (GMT 0)
ask for rectal meds at this point to help you get off the pred...

Alternate the pred dosage...0, 2.5, 0, 2.5., 0, 2.5...etc.

q
Posted 3/20/2012 4:48 PM (GMT 0)
Yeah, I was planning to start rectal meds again tonight On the pred, I did 5, 2.5, 5, 2.5 for a week then I did 2.5, 2.5, 2.5 for a week then I did 2.5, 0, 2.5, 0 for a week. REALLY trying to avoid new symptoms.

The stomach distension is really getting me. I look at my stomach and I see my mother, who was overweight her entire adult life and always looked like she had a beer belly. I got "love handles" while on prednisone, which I hate, but this is on another level. Plus this wacky muscle soreness. And I didn't even work out :-(
Posted 3/20/2012 4:54 PM (GMT 0)
can you cut down the 2.5 and half that? remember it's the % of decrease and maybe a longer time on the alternating.

I think the rectals will help...what do you have?

q
Posted 3/20/2012 5:01 PM (GMT 0)
is any of this coinciding with your menstrual cycle?
Posted 3/20/2012 5:02 PM (GMT 0)
I have both mesalamine enemas and corticosteroid enemas, as well as steroid suppositories. I'm going to use the corticosteroid enemas. The mesalamine enemas don't seem to help and I've had very bad luck with them wrt to urgency. The suppositories I got so that I could use the mesalamine enemas at night but not go entirely without rectal steroids, so they're more like a supplement for me.

I honestly don't think I can cut the 2.5 any further -- I'm working off 10mg pills and 2.5 is about as small as I can go without crumbs. I'll go back to 2.5 until this gets under control (unless I have to go up again) and then do 2.5, 0, 2.5, 0 and then 2.5, 0, 0, 2.5, 0, 0, etc.
Posted 3/20/2012 5:04 PM (GMT 0)
i_love_coffee -- I don't really know -- I'm at the beginning of menopause -- every time I think "YAY I'm done with periods!" I have another one. It's been a couple of months since my last one and since I really stocked up on tampons last time, I probably will never need one again LOL. That's just wishful thinking.
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