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Posted 6/19/2012 3:36 PM (GMT 0)
I'm 99% gluten free, like the other night I ate mac and cheese that was eat, with my turkey burger. I guess no cheating at all and then the cereral.  One day I can hardly have any inflammation I want to conquer the world the next I'm laid up by a toilet for the whole morning! Have you done any imuran? I'm on LDN too, iron, dhea and my doc suggested imuran but when I got the script and read the side effects, I didn't even want to be holding the fricken bag! what are you on and can you go to your profile and add to you signature line so we can see please?

 

Posted 6/19/2012 5:28 PM (GMT 0)

therearemiracles said...
Unfortunatly I don't think it's making a difference, maybe good sleep. It has been 5 days. Today I pooped my pants on the way to work, when I say poop (and I already did a lot in the am before work) it's was like smelly baby diaper poo! And a ton of it, which I can't hold back. It's poo not liquid. I sit on towels and drive 7 miles home to changed, shower again! Sucks! I had Kashi cereal last night around 10pm, the granola. I was starving from walking and having a light dinner. Maybe that was too much fiber?

Kashi is on my watch list, not sure I trust it, its bogus carbs, sweet and has soy protein - but it makes a nice cheat when I raid my daughters cereal.

Sounds like you need pysllium husk and some clay for d that is what I would do in order to get control. Also Librax can slow the gut waves giving things a chance to dryout before the mud slide hits the end of the line. While at it try psyllium seed powder. If you have to immodium.

One hour drive into Denver today, sucked but at least I did not have to worry about urgency.
Posted 6/19/2012 6:17 PM (GMT 0)
Thank you aguywithuc! For some reason when psyllium hits me it a big jelly turd that comes blowing out full force, same if I take mashmellow root and the other thing I can think of right now, anything that makes a jelly like substance eventaully comes flying out at the wrong times!

I will look up the librax and research that. Thank you!

Posted 6/19/2012 6:53 PM (GMT 0)
I'm 99% gluten free, like the other night I ate mac and cheese that was eat, with my turkey burger. I guess no cheating at all and then the cereral.

You say that you are 99% gluten free but Kashi has flour (probably wheat flour) and the macaroni in mac & cheese is wheat, i.e. gluten. You are actually making the case that your flares are aggravated by eating gluten.

www.kashi.com/real_food/ingredients
Posted 6/19/2012 7:03 PM (GMT 0)
Therearemiracles,
you can try to calm your symptoms with this remedy that was used by many people with different GI problems, including Crohn's and colitis.
Here it is:
"Put two tablespoons of charcoal powder into quart jar with a little water. Mix well. Fill the jar to the top with more water. Put a lid on the jar and shake. Let the mixture sit overnight. The next day, pour off the water into another empty jar and discard the charcoal that has settled to the bottom. The mixture is now ready to use or to save for future use...
As long as a suspension is stored in a closed container, the potency of the suspension will be preserved indefinitely. It is suggested to drink this mixture first thing in the morning as far away from breakfast time as possible. Try this for three months and see how much better you feel."
Drink about 2 glasses of the charcoal water per day. You should feel the difference in 1-2 days.
It is safe even for babies. Keep drinking the clay too, just give it 1-2 hours in between. It should really give you control of your BMs.
Posted 6/19/2012 9:11 PM (GMT 0)
I think i'm going to stop taking L-Threonine at night and instead in the middle of the day or away from food, after dinner. For the past week my sleep has been terrible. That is the only result I have not encountered with L-Threonine, is the lowered anxiety, but i'll keep at it!
Posted 6/19/2012 9:41 PM (GMT 0)
Therearemiracles,
could the iron supplement that you are taking be the cause of your diarrhea?
I know that iron is very hard on the GI system. I took SlowFe slow release iron it it still gave my D, pain and cramps. Try to stop it for 1 week and see if that will make any difference.
Ans try to stay away from any high fiber foods, like Kashi and peel all your fruits and veggies. Also sugar could cause some problems too.
For me tomatoes, grapes, citrus fruits, any berries with seeds like strawberries, paspberries, blueberries...any raw veggies, cherries, any greasy foods were big NO NO.
Posted 6/19/2012 10:16 PM (GMT 0)
agree with the iron I couldnt find a form that didnt give me D, even at the lowest dose.
Posted 6/20/2012 1:48 PM (GMT 0)
I take Protein Plus for Iron by Life Extension, this morning was a better morning. Back and forth, back and forth :) I'm going to stick with the L theronine for a bit and see how I do. Thanks everyone :) for you help
Posted 6/20/2012 2:05 PM (GMT 0)
INSOFL I got my gluten relief today, I'm trying to be gluten free I'm really honestly 98% there, I will have this on hand and try it out if I have something suspicous. Thanks
Posted 6/20/2012 4:45 PM (GMT 0)
Inso
To answer your question, i had a beer, some pumpkin bread, part of a chorizo burrito (not spicy) and some potato chips... I know youre probably thinking thats all bad but i had many of the same things the day before when things were improving. i was really certain things were on the upswing but ive been holding steady with a fair amount of d, fair amount of blood, and very little soild crap(down from a few days ago). i still have less general urgency, frequency, and fatigue than when at my worst but the runaway train of improvement seems to have slowed...
Posted 6/28/2012 8:52 PM (GMT 0)
I've started on L-Threonine and L-Glutamine last evening.  1/4 teaspoon of each in half a glass of water.

I had been making fairly steady progress with GAPS diet and DHEA with probiotics and but have reached a plateau and June actually was worse for me than May so I figured it's time to add another factor and have chosen to start L-Threonine and L-Glutamine. I'll give it a few weeks to a month to decide if it's helping  - fingers crossed!

Posted 6/28/2012 10:45 PM (GMT 0)
Jim,
Glad you are making progress with the diet.
I don't believe 1/4 of teaspoon of L- Threonine will be enough.
Recommended dosage is 2g, which is approx. 1 teaspoon.

I take 2g in a little water, at bedtime, and have found it works great that way.
That's the way I would recommend you take it.

Looking forward to hearing positive updates from you.
:-)
Posted 6/28/2012 11:49 PM (GMT 0)
Hi InSoFla, Cheers I'll increase the dose.

While the GAPS diet is helping I'm not continuing to progress - I still have minor flare symptoms averaging 3-4 BMs a day with some urgency and mucus in the mornings and mainly soft formed stools at present. Where GAPS is helping is that flare symptoms aren't galloping away and getting progressively worse as they used to pre-GAPS diet. So i think GAPS is helping manage symptoms but it's not getting me the whole way...if you get my drift. Hence the L-Threonine. LDN is next on my tool kit.

Will keep you posted.
Posted 6/29/2012 3:12 AM (GMT 0)
InSoFla, first of all thank you for sharing the supplement! I would like to say that I've been doing well, but due to my stubbornness, the only diet I follow at the moment is gluten free, which means the UC could be better. I have this view on my colitis where I don't see it as a threat, because as I've tampered with diet (elimination of grains, starches, yeast and sugars) I've experienced those perfectly formed bowel movements. Even in the last 2 weeks, I decided to foolishly cut out all of those above for 2 days, and within 24 hours saw perfectly formed bowel movements. So, when I do go about my regular gluten-free diet, I feel as though I'm not doing any bad, but not doing any good either, in the bathroom.

The L-Threonine has helped form the bowels and keep them formed, but as the second week closes in, I'm seeing less formed at times. However, throughout the year I've only had 1-2 bowels a day regardless of any dietary changes. On July 2nd, I see my doctor about the two tests I had done (adrenal glands + gut function/immune system test) -for gluten antibodies as well. I'm hoping to find some conclusive evidence, but I shouldn't be shocked to find thats its just crohns/colitis doing the damage 100%.

Do you think it would be any harm to increase the dosage of L-Threonine?

I have also ordered a sample of gluten-relief and am waiting for delivery. Thanks

Post Edited (stereofidelic89) : 6/28/2012 9:18:55 PM (GMT-6)

Posted 6/29/2012 8:13 PM (GMT 0)
Jim,

As you know I do have a preference for Paleo diet over the SCD.

Perhaps you should consider that?

BTW, how did the wild boar your friend hunt taste. lol?

As to L-Threonine, I strongly believe, based on my experience with it, if you take the 2g dosage  at bedtime by itself (in a  little water), I think you may be surprised by the increased positive results. But you may need to give it 4-6 days to see those results.

Let us know how you do.

 

Posted 6/29/2012 8:37 PM (GMT 0)
Stereo,

My pleasure.

Yes, keeping a tight diet seems to be key.

As to increasing the dosage on L-Threonine, I'm really not sure (you may want to google it and find out).

I remember reading about 4-6 g being ok, but I just did a quick check on webmd and it said: Threonine seems to be safe when doses of 2 grams to 4 grams daily are taken for up to 12 months.

If you want to try to increase dosage, go slowly by starting at 3g daily and see if it makes any difference.

When I went up in dosage, I found it made me constipated. For my body the 2g dosage was perfect and produced perfect BMs.

Let me know how you make out with the gluten relief remedy as well.

Posted 7/1/2012 7:01 PM (GMT 0)
Every protein shake I take gives me D well maybe except pure green protein. I wondered why the other day and it turns out that protein synthesis produces ammonia as a byproduct. I pulled this off a website today thought of this thread.

http://www.healthyawareness.com/articles/about-amino-acids/how-to-remove-ammonia.aspx

In Leon Chaitow’ s book on amino acids, he mentions that one of the best aminos to remove ammonia is threonine. Threonine is also important because it is the most prevalent amino acid in of the gut’ s mucin layer. It has another good property. It may help defat the liver. This means that your liver will eventually be able to remove more ammonia. Personally, the threonine is very calming to me. Yet I don’ t know the consequences of using too much of it. Threonine is closely related to serine and glycine. The only thing that seems deleterious is that threonine will produce acetaldehyde if it converts into glycine.

Whatever course you decide, be very careful to listen to your body for clues to how it is reacting to the aminos. For instance, there may be a certain time of the day when a particular blend of amino acids are more tolerable/helpful. If any group of aminos make you tired, or increase symptoms, then perhaps they aren’ t the ones for you, at least not at this point in time.
Posted 7/1/2012 11:00 PM (GMT 0)
Danthaman,

Thanks for sharing the link.

So are you finding that the L-Threonine is helping you?

Are you taking it with other amino acids or by itself?

 

Posted 7/2/2012 1:35 PM (GMT 0)
I find that it helps me sleep much better but as far as symptoms goes its nothing noticeable. I have cysteine and proline coming tomorrow from nutrabio I am going to add those to the threonine.
Posted 7/2/2012 3:15 PM (GMT 0)
Danthaman,

Glad it helps you with sleep at least.

Let us know about the other amino acids you'll be trying as well.

Posted 7/3/2012 7:38 PM (GMT 0)
I had two great days! I could see white mucus which means I'm going to have a good bm and then it changed....again. At least I had two good days. I am taking Natren Lifestart 2 in the am and pm and still L thereonine at night, I sleep excellent with that! I take my LDN too, trandermal cream and I'm holding steady. I go in the morning, quite a bit and them I'm done for the day.

I really thought I was healing there, I don't know what was making me do so well, maybe rice? I ate rice again today we'll see what the next day or so holds.

Mine is probably all diet related....Can I please hit the lottery so I can hire a personal chef, is that too much to ask for? LOL

Posted 7/3/2012 7:48 PM (GMT 0)

therearemiracles said...
I had two great days! I could see white mucus which means I'm going to have a good bm and then it changed....again. At least I had two good days. I am taking Natren Lifestart 2 in the am and pm and still L thereonine at night, I sleep excellent with that! I take my LDN too, trandermal cream and I'm holding steady. I go in the morning, quite a bit and them I'm done for the day.


I really thought I was healing there, I don't know what was making me do so well, maybe rice? I ate rice again today we'll see what the next day or so holds.



Mine is probably all diet related....Can I please hit the lottery so I can hire a personal chef, is that too much to ask for? LOL

I'm with you on that! My body thanks me when I avoid grains like the plague, but

-I need to be able to gain weight on a strict diet or at least maintain weight and actually feel full (no cravings) on a diet, so far this hasnt happened, so I break. =/
Posted 7/4/2012 5:50 PM (GMT 0)
InSoFla,

I just read through this entire thread and it sounds very promising, I think I will try it as well. I recently posted in a thread (which I can't seem to find anymore ) called, "My Experiment" where I gave details on how I managed to achieve perfectly formed BM's as well, using probiotics (Acidophilus), diet, exercise and rest...but the key is the probiotics and the dosage, frequency and how it's taken.

Hopefully, if one approach doesn't work...the other will. I also mentioned in the thread that there is a huge difference in symptoms when I eat organic foods as opposed to processed foods OR foods (fruits and veggies) that have been sprayed with pesticides.

Now, I can eat apples, oranges, bannanas and veggies with no ill effects, so long as they are organic. As stated in the thread I am even eating candies again (made with pure cane sugar).

Well, I am going to order L- Threonine and see if it helps improve my sleep.

"therearemiracles" don't give up hope and take a look at my thread and if you can't find it, contact me

by clicking on my username.

ps.

I just found the thread, it's here:

https://www.healingwell.com/community/default.aspx?f=38&m=2041782&g=2448646#m2448646

Finally, stay away from processed foods and non organic foods if possible...

Take care all,

NBT

Posted 7/4/2012 8:42 PM (GMT 0)
Therearemiracles,

I hope you start to feel better soon.

NBT,

Glad you found something that worked for you.

I'll be curious to see your results with the L-Threonine.

 

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