So after having Uc for 20 years, flaring off and on (mostly on) for all those years, finding out that I can't do mesalamines (they cause a flu like feeling and severe abdominal pain), becoming steroid enema dependent, failing 6mp (couldn't get into the therapeutic range without liver toxicity), trying a short stint of Allopurinol (found out that I'm allergic to it) with the 6mp and eventually started Remicade...........I am still in remission!
It's strange to be honest. I have NEVER felt this good with my Uc is such a long time that it seems to be a dream. I didn't even think it was possible to feel normal again! I still have some issues with IBS and my diverticulosis so it's not exactly like I am floating on top of the world, but I'm pretty darn close!
Best of all, I have some other AI issues that have plagued me thru the years and they seem to be tamed as well with the use of 6mp/Remicade. It's odd tho, I can feel when I am getting close to my next Remi infusion. My body seems to "ramp" up at the 7 week mark (I go in every 8 weeks). Not so much with my Uc but my other AI conditions, so I can definitely tell that the Remi is doing it's job! I go in this coming Wednesday for my next infusion and I am counting down the days. Since my husband is still out on disability for his hip replacement, he is coming with me to keep me company which will be a welcome change.
So anyway, I just wanted to give an update, especially for our veteran members that have supported me thru out the years.
