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Ulcerative Colitis
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Posted 4/17/2012 10:12 PM (GMT 0)
Hi, I have mild UC, and I am doing pretty well during day time. But I have a problem at night time mostly.

I have to go to bathroom 2 - 4 times at night. 1 time, excellent and very rare. 2 times pretty good. Mostly 3 - 4 times every night. Waking up 3 - 4 times every night makes me feel very tired. I can not sleep during day time because I have to work to support my family.

I don't go to bathroom so often during day time, even after dinner I don't go to bathroom until I go to bed. But when I start lying me on my bed, it starts. Mostly I go to bathroom within 30 minutes after going to bed. And then 3 - 4 times during the night. I wonder why it goes worse at night time.

Anyone any advice? Any experience?
Posted 4/17/2012 10:35 PM (GMT 0)
I notice in your signature that you are not taking any medications for maintenance. (5 ASA) Are yo allergic to mesalamines? Did you stop 5 ASAs when you stopped taking Prednisone last year? Rectal meds such as cortifoam or rowasa retention enemas at night may help reduce the inflammation locally. Check in with your GI.
Posted 4/17/2012 10:47 PM (GMT 0)
I am taking Apriso (I missed that in my signature, just added now). I have tried Canasa rectal meds before, but I would rather avoid that. I've got c-diff while I have been using Canasa. It might not be related, but I am afraid of using rectal meds.
Posted 4/17/2012 11:07 PM (GMT 0)
I UNDERSTAND!!! AND WHAT THE HECK?!!?! MY nights ARE worse, same thing , like clock work :( i have wondered and posted same thing ASKING why o why, tried meds at different spacing's and times , no luck. different eating at different times but it doesn't matter when its bedtime i am up and popping in the bathroom every hous lucky if i get 3hrs in between . someone mentioned cortisol levels at night...? weird huh - good luck!! i have mentioned this also to my GI , because it sure makes for a rough work day with broken no sleep crapping all night, and really no concern or answer there..
Posted 4/18/2012 2:03 AM (GMT 0)
I noticed that even at my worse, I rarely went at work or out in public. However, when I got home in the evening, I went all the time. If I came home for lunch, I would go too. I think for me it was/is mental that home means privacy where I can go as needed. Only a couple of times have I had to go while at work.

Also, if I so much as rolled over during the night, I would have to get up and go...and rather quickly I might add!

Try adding the Slippery Elm, but make sure you get a good organic brand. You can find alot of info about it in other posts. If you do decide to try it, I advise to start with a teaspoon and not a tablespoonful. The larger dose caused me to have to get up during the night to pass mucus.

I have also had alot of relief since I started Imuran and gotten off Lialda.
Posted 4/18/2012 1:06 PM (GMT 0)
I think problems at night are normal for UC.  I used to have big problems as soon as I layed down.  I'm guessing that being horizontal is what triggered it.  Just like 40&crashing, as soon as I rolled over, the pain came back in a wave centered in my gut.  Awful.  Like you I was getting up 3-5 times per night, couldn't sleep and was tired all day. 

I did find that a heating pad on my stomach helped. 

I have been in remission for over a year and don't have that problem anymore, thank God.  I started taking an herbal supplement that has really helped but the cramping was the last symptom to get under control.  Also, I take psylium every morning and I think this helps also.  Mary     

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