diagnosed with BOOP

Was told I had BOOP is October after spending a month in the hospital. Had no cough or fever, visited PCP for dry throat, he listened to my lungs as part of examination , sent me to x-ray, told I had pneumonia is both lungs. Was hospitalized and given antibiotics and steriods via IV daily for a month. Told my immune system is attacking me. It is May and still on oxygen. I took prednisone 60mg for three months, tapered to 40mg. Got frustrated in Feb with the effects of moon face and swellings in thighs and just stopped taking it. With exercise my need for oxygen decreased. I only use it after complete exhaustion now. I am so confused about the use of prednisone. I didn't tell my pulmonologist I stopped it yet. Am I in danger. Asked my PCP what happens if I stopped cold turkey. He said I was opening myself up to all kinds of infections. I am not sick, not even a cold. I started taking Primrose Oil supplement, vitamin E, D and calcium to help build my immune system. Can someone comment on this or on the BOOP? I am worried.    

thanks. BOOP is a rare pnuemonia,  in my case was brought on my an unspecified connective tissue disease. A lot of doctors have no idea BOOP exist until they see a patient who has it. As I understand is, 1985 was the first time it was recognized. It's clogging of the aveoli with connective tissue. But since I stopped taking the prednisone, I have over-production of collagen on my fingers that itch like crazy and my knees hurt. I'm sure that will go away with time. My biggest concern is how long will it take for my adrenals to fully kick in.