Here is a link
I found it while noodling around on CCFA site.
You have to give an email address and then they send you the link to take the survey.
I took it just in case my info helps move the knowledge forward.
They say they will keep us informed about
updates in the future so I better not be getting any spam from pharma companies.
There is also some links to research papers.
Also here is a link to see if there are any clinical trials in your area (if you want to participate)
Post Edited By Moderator (Red_34) : 5/9/2012 5:03:50 AM (GMT-6)