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Ulcerative Colitis
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Posted 5/9/2012 10:49 AM (GMT 0)
Since I have been on remicade I have pretty much had one solid bowel movement a day.  There have even been days I have actually had to push to make a bowel movement.  Yesterday I kept getting cramping and went to the bathroom three times, by the evening I kept feeling like I still had to go.  This morning no pushing was required, pretty much had to race to the toliet.  I have not seen any blood.  Do you think I am starting to go into a flare or maybe just hopefully something else?
Posted 5/9/2012 12:06 PM (GMT 0)
How long have you been on Remicade? Do you take any fiber supplements?
Posted 5/9/2012 12:22 PM (GMT 0)
I have been on remicade for at least a year. I take vitamin b12 and d3. I have been noticing different side effect occuring so I think might be becoming immuned to the remicade. I don't know what I am going to do if that is the case.
Posted 5/9/2012 1:04 PM (GMT 0)
I sincerely hope that you are not becoming immune to the Remi! Can you do Rowasa? Perhaps to settle any possible inflammation that might be occuring. It sounds like you have some rectal inflammation going on. Or could you of ate something that didn't agree with you?

How often do you go in for the Remi? If it's every 8 weeks and you notice that you are having a return of symptoms, maybe you can ask your doc to push it up to 6 or 7 weeks?
Posted 5/9/2012 1:19 PM (GMT 0)
I do have some of those at home. Just have to check the expiration date. I do have a lot more gas then I have been having and if I look back that is usually the way it starts. I think I know it is coming, but don't ever want to say it. If you don't say it or admit it, maybe it won't happen! lol That has not worked so far. Keep wishing.
Posted 5/9/2012 2:22 PM (GMT 0)
Kim, I have been on Remicade for almost 2 years. I had to stop because I moved from Germany to America and I had no health insurance at that time so I missed my next infusions sad

Anyway, during that time I had some diarrhea as well but I can tell you I was not in a flare. Sometimes I just ate something which didn't agree with my stomach. It went back to formed stool after. Did you eat something which wasn't that good for you?

I actually started flaring once or twice when I was on Remicade every 8 weeks. But I had different symptoms. I would get urgencies with mucus which is always the first sign of a beginning of a flare for me. Does that happen to you? I switched to every 6 weeks and it didn't happen anymore.

Can you have your doctor take a blood sample and see if the CRP raised? That would show if there is an inflammation in your body going on. Just to make sure.

I would suggest stay calm. Diarrhea on Remicade can happen but this doesn't mean a flare.

All the best for you.
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