Bananagirl, how you doing?

hey lookforcure. havent been posting a lot because i keep getting worse. the FT basically just messed me up so badly. i'm at about 15 BM's a day now and nothing is helping with the pain. i am still taking the terramin clay but it is having no effect on me at all. i wouldnt say that i totally regret doing FT just because now i know that i tried it and that it wasn't for me. i just wish i'd didn't make me so much sicker.

i started taking LDN last night and will see if that helps. i only have a month's supply of it (got it online and not from a doctor) so if it helps, i hope i can find a doctor to prescribe it for me. ive been calling and emailing around with no luck so far. i have a list of doctors but there are not a lot in my state who are gastros. i just dont like taking a medication without a doctor knowing just in case something happens... but that's what i'm doing for now.

i actually do eat rice every day but not exclusively. maybe i will try that. i am up to 3 tsp of clay a day. im not sure my body can even handle more than that- i'm maybe 94 lbs.

maybe LDN will work for me. im crossing my fingers.

pmedic, i have the list of doctors they gave me and so far, the one i talked to won't take on any more patients and i've called 3 other offices. nobody has called me back yet so i'm hoping next week they will get my messages. it's much harder than i thought even having the list! i think because most of the doctors on the list are not gastros and don't want to prescribe for UC.

Joanna, I am so sorry to hear that you're not feeling well.

How about going on bowel rest for a few days to calm down things?

What kind of LDN did you get, what dosage, filler, etc...?

I hope something changes and you start to feel better soon.

A big hug to you!

Joanna im so sorry to hear that you are worse...i was really hoping your abcense was a sign you were improving and not spending alot of time on this forum.
I dunno what to suggest for advice. I would just say to really try to monitor your symptoms bc im worried your colon may become toxic.
Have you tried something called Barberry? It's an astringent berry with alkaloids that help reduce diarrhoea and inflammation. Also has antiprasitic and antibacterial activity.

Joanna,

I'm so sorry you're not doing well.

I just sent you an email.

Stay in touch.

I hope you start to feel better soon.

Can you get some L-Threonine amino acid powder?

It works pretty quickly and more effectively than the L-Glutamine.

I would suggest you get some, if you can, and take 2 g of it in 1-2 oz. of water (it tastes sweetish) and take it at bedtime. It will help give great form to your bm and it has a big plus with great sleep.

I get mine from Nutrabio.com, here's the link:

http://nutrabio.com/Products/threonine.htm

Let me know how else I can help you.

A big hug to you!

 

Great question.

Since I've been getting so much more bang for my buck with the L-Threonine powder, I've cut down significantly on my intake of L-Glutamine powder (from 15 g daily to only 5 g daily).

You may want to try it for yourself and see how you do with it.

But you're right, why fix something that isn't broken.

 

Suggested use is 2g.

Higher dosages are problematic.

"As a dietary supplement, take 2000 milligrams (a scant teaspoon) daily, or as directed by physician. Individual needs vary

A serving size of 1 teaspoon is equal to 2671 milligrams (mg), so if you take a little less than a level teaspoon you will be getting about 2500 milligrams (2.5 grams). A serving of 3/4 teaspoon equals 2004 mg.

L-threonine in safe at suggested serving sizes. Higher amounts can disrupt liver function and cause ammonia toxicity in the body. People with liver or kidney disease should not take this or any other amino acid supplement without first consulting a physician. Getting too much of any one amino acid can throw the citric acid cycle out of balance, which makes the liver and kidneys work harder to eliminate toxins."

Thanks Insofla and Sibby for the input. I think I'll just stick with the L-Glutamine for now.

Bananagirl,
you can try to take Activated charcoal, just about every health food store sells it, it is not expansive. If you have a lot of gas pains and bloating, Activated charcoal should really help you. It, also, will ease up the D and should cut the # of bathroom trips. It is one of the safest things you can take.
In Russia people take it for food poisoning and in the USA if a person amitted to a hospital with food poisoning, the first thing a doctor will give you an Activated charcoal drink.

From Wikipedia:
Medical applications of Activated charcoal.
"Activated carbon is used to treat poisonings and overdoses following oral ingestion.
It is thought to bind to poison and prevent its absorption by the gastrointestinal tract. In cases of suspected poisoning, medical personnel administer activated carbon on the scene or at a hospital's emergency department. Dosing is usually empirical at 1 gram/kg of body mass (for adolescents or adults, give 50–100 g), usually given only once, but depending on the drug taken, it may be given more than once. In rare situations activated carbon is used in Intensive Care to filter out harmful drugs from the blood stream of poisoned patients. Activated carbon has become the treatment of choice for many poisonings, and other decontamination methods such as ipecac-induced emesis or stomach pumping are now used rarely."

Joanna,

is it ok to take LDN in the morning and not at night?

You could take it in the morning, but unforutantely based on the scientific research if you do, you will not get its optimal intent.

For it to work on the immune system, through the opioid blockage and subsequent endorphin release, it must be taken sometime between 10pm and 2am - apparently it's when this process happens according to the natural circadium rythm of the body.

Hang in there with the sleep problems, for most they only last 1-2 weeks until your body gets used to it. And I can  tell you the end results are well worth it.

Bananagirl,
have you tried Activated charcoal since you started on Terramin clay?
Maybe together they will be able to calm your system and neutralize the problem in your GI system. I do not mean to take them at the same time, give an hour break between them. For example, take Terramin, wait 1 hour or so and take 2 caps. of Activated charcoal. You would have to take about 6 caps. of charcoal per day. Try to do it for 2-3 days ans see if you feel any better. If the FT introduced some different bacteria to your body that just does not agree with you, it will take a few days to neutralize it and take it out.