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Posted 5/31/2012 1:05 AM (GMT 0)
So for the past few days Ive been worse off.. This second time around flaring (first was a year ago then a brief remission, then back since November), I have had way more nausea when I go.

Lately, for the last few days, its been really bad and long lasting. When I eat, when I go (which is often), or sometimes just because, I get this low to moderate level sick feeling that is really energy sapping and debilitating.

Anyone else have this, or any suggestions?
Posted 5/31/2012 2:25 AM (GMT 0)
Are you on any meds freddyJ?

What exactly are your flare symptoms at this point? formed stool? diarrhea? etc..

q
Posted 5/31/2012 2:33 AM (GMT 0)
zofran helps a lot with nausea as does prilosec. i needed a prescription for both of them but it's well worth it.
Posted 5/31/2012 2:37 AM (GMT 0)
Hi freddyj,

I do get the same thing happening to me sometimes, in fact, it happened to me today several times. The last 'episode' just happened after I tried slippery elm powder for the first time. I don't think I reacted to it well, I became nauseated, had some reflux, felt some urgency, then, like a switch my energy turned off.

This afternoon I felt a few tummy twinges, and not long afterwards noticed that I felt tired enough that I could just lay down and nap.

I'm not flaring at the moment, I thought I might have just stayed up too late, or maybe my iron is low. I ate some liver this afternoon to see if that would help, but then the switch off feeling after i tried the slippery elm.

I hope you figure out what's happening to you, it's not nice to feel like that.
Posted 5/31/2012 2:51 AM (GMT 0)
q- yes, asacol 1200 mg 3x per day. Symptoms are D for sure, sometimes the rare soft formed stool. A bit more blood lately than was in the past few weeks, not lots. Lately Ive been passing as little as a shot glass worth of water, still getting full on sickness, chills, hiccups with each event. Energy is very low probably per the nausea. Even a few episodes of heartburn... Going about 15X or more per day. Urgency is up. I feel full, but am hungry with no appetite.

bg- thanks.. if only my worthless gi would return my calls...

Lodi, thanks, yes this sucks.
Posted 5/31/2012 2:52 AM (GMT 0)
Make that 1600 mg 3x per day.
Posted 5/31/2012 2:56 AM (GMT 0)
You should add some rectal meds and see if thatt helps. I have nausea lately too :(
Posted 5/31/2012 3:06 AM (GMT 0)
Did that once to no avail. I actually gave myself a yerba mansa enema, very small and mild, the other night. I actually felt better for a bit but havent done any more. I dont want to experiment at this point.
Posted 5/31/2012 4:46 AM (GMT 0)
I haven't been using my Rowasa lately because I know it would give me the urge lol. I feel your pain. Maybe we need a steroid enema or something similar.
Posted 5/31/2012 9:13 PM (GMT 0)
I had nausea with my first flare when I was very sick. Nothing helped my symptoms except Prednisone. The only thing I could eat more than a bite of was Arby's roast beef sandwiches (gross I know, but when one is desperate...).

Are you eating enough? How is your HGB? If your GI won't return your calls, I'd find a new dr. You may have to change clinics for this, but many offices have urgent appointments available for patients in crisis. Your GP may also be able to intervene- many drs pay more attention to calls from other drs than they do to calls from patients.
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