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Ulcerative Colitis
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Posted 6/23/2012 3:00 PM (GMT 0)
Hello all! I am new to the forum, was diagnosed with UC a few days ago. I am interested in the SCD diet. My question is, how do you know when you can advance to the next phase? I am wanting to do it right! Currently I am on Prednisone 20mg and will taper off in 4-6 weeks most likely. Also taking Lialda.
Posted 6/23/2012 3:41 PM (GMT 0)
Hello,

Welcome to the forum! I did the SCD for a few years and it definitely helped my symptoms a lot. I usually return to it when I have a flare. I usually stay on the first phase until I am not seeing any blood anymore, I'm having minimal pain with my BM's, and my stools are at least partially formed. If I'm on the right combo of drugs, this usually takes 5 - 7 days. Then I'll cautiously add back in a few things and see how my body responds. Just take it one step at a time and evaluate as you go. I hope it works for you!

Laura
Posted 6/23/2012 3:58 PM (GMT 0)
Very cool, and what about restaurants, do you tend to go to eat ever?
Posted 6/23/2012 4:33 PM (GMT 0)
Hi Chrissy

Welcome to this forum. I'm sorry you got the diagnose UC.

I'm on SCD for a half year now. I'd suggest you write a food journal. What did you eat and drink? How do you feel? That's how usually know what I can take and what I can't. I cannot overdo with fruits or onions for example.

Restaurants are very tricky. When I go eating out, I normally take omelettes, burger with no buns and sauce, a salad or a simple steak. However, their meat and cheese could be processed. Asking the waiter can help or checking out their websites. If you can, cook for yourself the first few weeks until you feel better.

Introduce one new ingredient at a time, keep a food journal and take it slow. I really hope it will help you.
Posted 6/23/2012 5:56 PM (GMT 0)
Hello ChrissySoul! I'm with you.. I was just diagnosed this past Weds. June 20 (seems like the day I'll never forget!) I'm online constantly learning of what to eat and not eat. It doesn't help that I also have diabetes (controlled by diet) and everything I'm suppose to eat for D, I'm not suppose to eat for UC! So confusing as I'm trying to figure all of this out. And I definately don't want to eat the wrong foods.. as I have done not before my diagnois and have been sooo sick and in so much pain! No food is worth all of that that is associated with this disease. I am still searching sites and trying to compile my "safe foods" list and will be glad to share with you anything I find out about the SCD diet.. I'm not familiar with it right now. I am on Asacol 6 pills a day, just started them Thursday night. They seem to work as long as I eat right!
Posted 6/23/2012 6:11 PM (GMT 0)
Hey ShelbyAnn that is crazy! Yeah it is a lot of information all at once. I was so devastated at first, but I have seenso may people discuss SCD and say it has helped them. I'm excited I agree that foods that make you sick taste good but then you pay for it later so it's not the best. But yeah I think it would be a great way to keep living a normal life and have less flaring. That is what I hope!
Posted 6/24/2012 1:57 AM (GMT 0)
Chrissy,
You should definitely get the book, "Breaking the viscous cycle". It's the SCD diet bible. There have been quite a few success stories on SCD. I'm very early in the diet but already seeing some positive effects. Good luck!
Posted 6/24/2012 3:33 AM (GMT 0)
That's great Indy. That's my plan I am on Prednisone for now and will stay on Lialda most likely, but hoping SCD can help!
Posted 6/24/2012 11:46 AM (GMT 0)

Hi ya,

I have been on a low carb diet for about 2 and a half years. I am a lot stricter than the SCD diet, and my ultimate goal is to eventually get onto that diet. I have got rid of all sugars that means honey and any kind of fruit except 1 apple a day. For me it seems that if I went on to the SCD diet I would have to use the medications as well, which is something I have been considering lately because being on my diet is soo soo hard.

 

I eat 4 eggs in the morning, cashew nuts in the afternoon, 1 green apple, meat and veg for lunch and then meet and veg for dinner. I have not cheated on this once in the 2 and 1/2 years I have been on it. I am small so I can get away with not having many calories.

 

My symptoms that I have improved are at present:

No bleeding

No joint pain

Improved tiredness

less mucus ( i still get a little but at least it does not go in my pants anymore, gross i know)

I have had green mucus, which I have not seen again

stomach pain and urgency ( I started to get that after my last flare in 2009)

fever (have not had that burning hot fever since 2009)

normal iron ( i have never been anaemic but my iron has been low)

normal t-cell count- that was raised in 2009

I used to get heart palpitations which I thought were panic attacks, but since doing this I have not had them

weight balance- my weight felt like it kept dropping, and I felt no matter what I ate I could not gain any. I was around 95lb and now I am 105lb-107lb (I am 5 foot 1 inch)

 

I still get,

 

a little mucus

I did have 1 flare 3 weeks ago which took me out for a couple of days. (so I am not perfect) (no bleeding though, thanks god)

a little mucus

 

Restaurants I have to be careful if I want to go out to eat I have to call ahead and only have plain meat and veg, boring I know but that is the only way I can do it.  

 

Hope this story is a help. I dont use any meds at the present.

 

Posted 6/25/2012 12:37 AM (GMT 0)
ChrissySoul,

sorry about the DX, but props to you for trying the SCD, it takes some courage and commitment.

I successfully tapered off steroids while starting the SCD. I cannot believe how smoothly the tapering went and how well I healed during this process.

SCD will definitely help some symptoms, as you get better think about adding some daily yoga and/or exercise. When I was on the prednisone I was paranoid about getting a cold (it was in the winter) so I did not go for runs, but instead did yoga exercises every morning. Thats about as physical as I got every day for 2 months.

A lot of people have a hard time with the SCD yogurt, but this is crucial to healing. If you follow the directions properly and do poor with the yogurt, consider using goat milk for the yogurt along with a starter that does not contain dairy. Also, raw goat milk is the best for yogurt, you can find it at a local farm/farmers market.

Good luck with everything I have hi hopes for you.

Andrina, how are you doing with SCD? I believe we started around the same time.

Nice job Hellokitty, thats amazing. Think about how much better you will feel in one more year. Also, when did you stop taking your Lialda/Asacol/ASA meds?
Posted 6/25/2012 1:33 AM (GMT 0)
Mindoverbutter- I meant scd did that cause problems before it got better? I feel like my symptoms are worse then when I was eating bread etc?
Posted 6/25/2012 12:17 PM (GMT 0)
@mindoverbutter
Thanks for asking. I am doing well so far. I started cortisone enemas and stayed on it for a few weeks. I finally tapered it off and I'm off of them now. So far so good! Haven't had any bad symptoms ever since. BM's are looking healthy and I'm very happy. Keep your fingers crossed that it stays that way. How are you doing so far?

@ChrissySoul
Have you started SCD already? Here is something which helped me:
Did SCD, GAPS, or Paleo Make You Feel Worse?
I would like to encourage you to stick with the diet. At least for a month. If you show improvements by then, the diet will most likely help you.
Posted 7/6/2012 9:54 PM (GMT 0)
Hi ladys!
ChrissySoul, I started SCD the same time as prednisone, so I had like normal BMs the first day of SCD/Pred. I have heard people feel worse, this is probably normal. I know I have gone on broth diets for 48 hours and that always makes me feel lame. How you feeling now?

Andrina, glad you tapered off the cortisone enemas. Unforunately those don't work for me anymore, but yes I have had rough patches and use mesalamine enemas. I just got off them tho, hopefully staying off them! I did some drinking for the 4th of July (scd legal drinks) but still suffer mildly from them. Looking forward to a nice relaxing weekend to clear up any other problems. Keep up the great work glad you are finally feeling well!
Posted 7/10/2012 4:01 AM (GMT 0)
Indycat- How has your taper been going off Pred while on SCD?
Posted 7/10/2012 4:03 AM (GMT 0)
mindoverbutter- I started SCD 2 days ago, and I feel awesome. I am really impressed so far! I am hoping it will make my Pred taper much nicer :)
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