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Remission?

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Ulcerative Colitis
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Posted 7/12/2012 12:29 PM (GMT 0)
I tapered off Cortisone and took my last enema about 4 weeks ago.

Ever since the symptoms (blood, mucus, diarrhea) haven't came back. Once in a while my stool is not so well formed and I've seen blood like twice a month. That's it. Not to mention the cramps and urgency are gone.

Would you say I'm in remission?
Posted 7/12/2012 12:48 PM (GMT 0)
     I would say, you are almost there.  The fact you still see blood, maybe it's a hemmie???  When was your last colonoscopy?
Posted 7/12/2012 1:45 PM (GMT 0)
Well the blood was mixed with the stool... Last colo was 5/4/12.

But all in all it's a good sign isn't it?
Posted 7/12/2012 1:48 PM (GMT 0)
It sounds like you're doing really well, but might have a bit of inflammation left. I'd probably get back on mesalamine enemas at least twice weekly.
Posted 7/12/2012 2:13 PM (GMT 0)
I take Apriso orally atm. Rowasa wasn't covered by my health insurance.
Posted 7/12/2012 2:17 PM (GMT 0)
Yes, but the enema might help keep the rectum/lower colon totally calm. Did your GI try to intervene on your behalf with your insurance company? And how expensive are the generic mesalamine enemas w/o insurance?
Posted 7/12/2012 2:35 PM (GMT 0)
No I haven't since I switched my GI and I haven't talked to him about it.

Around $200 I'm not sure if this is monthly or weekly though.
Posted 7/13/2012 12:16 AM (GMT 0)
What is the difference between those two?

(Name) (Package Size)
Rowasa 4 Gm/60 Ml Enema Kit 1 ea
Sfrowasa 4 Gm/60 Ml Enema 60 ml

The first one is not covered, the second one is. Is the second one appropriate and can I just ask my GI about it? If I see the blood coming back I might ask him about it. So far I haven't had any for 2 weeks.
Posted 7/13/2012 12:29 AM (GMT 0)
Andrina, nice work! What are you staple foods for the SCD? I think getting back on the cort enemas for every other week will fix everything back up :) I had the same symptoms, but I did not start using enemas and went back to flare town... Try it out!!! Keep up the great work, so happy for you.
Posted 7/13/2012 11:24 AM (GMT 0)
In the past I only received medical remission, never diet related remission. I can imagine that it is different. I can tell by the way my bm's look.

So when would you say do I achieve remission? I remember on Remicade I was in remission on day 2 for more than 2 years.

@mindoverbutter... I eat chicken and veggies. I also lilke almonds and peanuts. I think the peanuts don't do me very good I get gas from them. I also have to stay away from too much fruit. I still have a 2 weeks supply of cortisone enemas at home, just in case!
Posted 7/14/2012 12:07 AM (GMT 0)
Consider adding salmon, and grass fed beef, which are both highly anti-inflammatory. You do the peanuts?!?!?! You chew them well?

You need to make the almond butter bread! I live on this, its my dessert, my toast, add one banana and an extra egg, to die 4!!!

Consider pureeing all of your fruits, I don't do well with them either... Specifically I only eat banana and apple sauce.
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