HealingWell
Search Close Search
☰

how many of you are gluten intollerant?

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
12
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/22/2012 3:01 AM (GMT 0)
My doctors do not believe wheat-product has any impact on ulcerative colitis and tell me wheat product is safe. But whenever I take wheat product longer than 1 week, my stool starts to get softer.
Posted 9/22/2012 4:22 AM (GMT 0)
I am gluten intolerant and I agree that your reaction to wheat is similar to mine, although I react the next day and it's not just softer stool, it's crampy diarrhea.

I wouldn't say that this is a part of the UC. I only say that I am intolerant of gluten. It's not celiac (I've been tested). Researchers are discovering more issues with gluten than were previously understood. Apparently perimenopausal women, and people with IBD, are more likely to be intolerant to gluten.
Posted 9/22/2012 8:12 AM (GMT 0)
Haven't been tested for intolerance but recently cut out gluten and have noticed the change in a big way- less gas, and haven't had formed stools like this for over a year. Feel very happy about this and am going to stay off gluten for good. Not sure of the medical basis of it and I bet it's different for everyone, but it helped me & I would recommend it.
Posted 9/22/2012 12:40 PM (GMT 0)
I think I am too.
Posted 9/22/2012 12:43 PM (GMT 0)
i am -
Posted 9/22/2012 2:29 PM (GMT 0)
i am gluten intolerant but i don't test post for celiac.
Posted 9/22/2012 5:54 PM (GMT 0)
I may have issues with wheat and gluten, but not 100% sure I have an intolerant to them. it may be soft, loose stool, to cramping and severe bloating.

I don't agree with any doc who says wheat/gluten doesn't bother us.
Posted 9/22/2012 6:15 PM (GMT 0)
When I stopped eating wheat products (bread, pasta, etc) my bleeding stooped and the path to remission started. It took more than removing wheat/gluten but I am definitely intolerant of something in wheat.

I wish I had removed gluten years earlier because I spent many years in very bad condition. I was tested for celiac and am not according to the test so I assumed wheat was not a problem. I think doctor rely too much on tests instead of having patients test their gut reaction through elimination diets. People want tests and magic pills instead of doing the detective work required.
Posted 9/22/2012 6:20 PM (GMT 0)
I can eat bread cereal and pasta, but if I eat more than one cookie or brownies or cake I have problems the next day most of the time. The sugar in the baked goods more than likely contributes to my problem.
Posted 9/22/2012 6:21 PM (GMT 0)

imagardener2 said...
People want tests and magic pills instead of doing the detective work required.

Ofcourse they want tests. The points of tests is to reveal results. We take biopsies to determine colitis. Why shouldn't we test to determine if intolerant to wheat or gluten.

If a person is celiac and tests positive on the gluten test, all a sudden the test is accurate and nobody questions it.

If a person is not celiac and tested negative to reaction to wheat, all a sudden the test is wrong and we must dismiss it's results.

I think it is important to have faith in tests. Have you ever though that maybe it's not the wheat or gluten and more the complex carbohydrates in bread and pasta that creates a problem?
Posted 9/22/2012 7:18 PM (GMT 0)
I'm not.
Posted 9/22/2012 7:40 PM (GMT 0)
I tried cutting out all carbs and it did nothing positive for my condition. Now, i am in remission and i eat whatever i want without impact from food.
Posted 9/22/2012 7:52 PM (GMT 0)
I'm not....
Posted 9/22/2012 8:22 PM (GMT 0)
Ima - well said - thank you -

Dude - huh ? are you pro test or pro no test or is this just a protest of the whole thing ?

i tested off the chart positive for gluten intolerance - go figure - when i eliminate gluten from my diet, my butt is a happy guy -
Posted 9/22/2012 9:38 PM (GMT 0)

soystud said...
Ima - well said - thank you -

Dude - huh ? are you pro test or pro no test or is this just a protest of the whole thing ?

i tested off the chart positive for gluten intolerance - go figure - when i eliminate gluten from my diet, my butt is a happy guy -

I'm pro test.

If you tested positive for gluten intolerance then it makes sense to stop gluten obviously.
Posted 9/22/2012 9:57 PM (GMT 0)
The trick here is that tests for celiac are not necessarily going to uncover gluten intolerance.
Posted 9/22/2012 10:46 PM (GMT 0)

Somedude said...

soystud said...
Ima - well said - thank you -

Dude - huh ? are you pro test or pro no test or is this just a protest of the whole thing ?

i tested off the chart positive for gluten intolerance - go figure - when i eliminate gluten from my diet, my butt is a happy guy -

I'm pro test.

If you tested positive for gluten intolerance then it makes sense to stop gluten obviously.

 

obliviosly is right -

Posted 9/22/2012 10:53 PM (GMT 0)

kazbern said...
The trick here is that tests for celiac are not necessarily going to uncover gluten intolerance.

Well then, we have to find an official test that proves gluten intolerance. I guess, those food intolerance tests.
Posted 9/22/2012 10:54 PM (GMT 0)

kazbern said...
The trick here is that tests for celiac are not necessarily going to uncover gluten intolerance.

Very true.


-I've done my research. And even my doctor says that standard celiac blood tests only tests positive for 70% of those with celiac disease anyway. Gluten intolerance requires different testing than celiac. Celiac is like the extremity of gluten intolerance, and my uncle and aunt whom were diagnosed years ago, could not eat anything that may have been cross contaminated (cutting boards, dishes, glasses, plastic containers, etc) this is not the case now, as they have it under control.

Some testing I really do believe in. But hey, what gives? Complete stool testing was included in my colonoscopy, and yet everything (c.diff, parasite, etc) came back negative. When I decided to go the extra mile and do private lab testing, I found my real results about parasite. Same for gluten intolerance. After cutting it out and sticking to it, I relieved myself of some of the worst joint pain ever, and bathroom issues. So, some testing, for me, proves inaccurate.
Posted 9/23/2012 2:52 AM (GMT 0)
Somedude, the best test, and the cheapest one, is the one where you eliminate gluten for 2-3 weeks and then evaluate. For certainty, you can do a gluten challenge after a couple of weeks of no gluten.
Posted 9/23/2012 2:58 AM (GMT 0)

kazbern said...
Somedude, the best test, and the cheapest one, is the one where you eliminate gluten for 2-3 weeks and then evaluate. For certainty, you can do a gluten challenge after a couple of weeks of no gluten.


I havent eaten gluten for more than 6 months....still flaring.

Im on remicade max dose, LDN, no gluten, no dairy, probiotics, multi vits, I mean, ***...is it going to stop flaring.

Post Edited (Somedude) : 9/22/2012 9:01:54 PM (GMT-6)

Posted 9/23/2012 10:13 AM (GMT 0)
If you remove gluten, what do you sub. For bread in sandwiches?
Posted 9/23/2012 11:47 AM (GMT 0)

kazbern said...
Somedude, the best test, and the cheapest one, is the one where you eliminate gluten for 2-3 weeks and then evaluate. For certainty, you can do a gluten challenge after a couple of weeks of no gluten.


I believe everyone with IBD symptoms should take this test. It would avoid a lot of wailing and gnashing of teeth for many of us.
Posted 9/23/2012 12:15 PM (GMT 0)
If you remove gluten, what do you sub. For bread in sandwiches?

Some people use bread substitutes but I found my colon objected to them also (in my case I think the subs had too much fiber). It required changing my way of thinking about meals.

I don't make "sandwiches" any more, I eat tuna salad (or deli meat, etc) on a plate or from a container and a bit of cheese and a carrot, etc. For dinner I don't have pasta based recipes instead I plan dinner around a protein (chicken, fish, hamburger, etc) and a salad or stir fry veggie or cooked veggie.

In other words just eliminate the wheat (bread, pasta) and don't replace it with anything. But that's what I do, other people may get resistance from their family (my husband loves removing the wheat and he is non-UC). In the case of your family wanting their pasta or bread you could simply make your portion wheat free by removing the bread or pasta and doubling up on the veggie.

It takes a little getting used to when you have a lifetime of "bread" and recipes involving pasta but even if you don't have an IBD you will be healthier when you remove wheat. Quite a few studies have shown that these type of carbohydrates cause inflammation. And inflammation causes many problems including cancer. UC inflammation is just one of the many.
Posted 9/23/2012 1:04 PM (GMT 0)
I can tell you that I didn't eat any gluten for the week and yesterday I had a tuna sub and a piece of pizza (AHHH!!!) and this AM I have visited the bathroom way too much for my liking. All week I was going once in the AM and would wipe perfectly clean! This AM that is not the case.
I am seeing a wellness counselor/nutritionist right now and she has told me to eliminate sugar as well as gluten from my diet. I need to eat a lot of steamed "root" veggies and a small amount of meat. I can eat fruit but I need to eat it by itself, not with any kind of yogurt or anything. I can add good fats to my veggies (like coconut oil) and some spices for flavoring and of course can always add gluten free pastas.
She stated that most of us have an abundance of yeast in our bodies and that yeast causes problems with digestive issues to be worse. Yeast feeds off of sugar therefore makes you crave it all of the time so if you can eliminate the sugar then you eliminate the yeast in your body and in turn you have a better defense system against the symptoms that we tend to have. I am now only using Stevia for sweetener and if I get a pang for sugar I just drink tea or eat a piece of "sour" fruit (fruit without much natural sugars in it). I also am drinking raw organic Apple Cider Vinegar in water with lemon every AM. I have seen marked improvement. I am on Prednisone so that is what got me into this remission after being very sick for 2 weeks but I decided to take this opportunity to change everything about my eating and lifestyle to see what happens. It can never hurt, that's for sure!
✚ New Topic ✚ Reply
12