vaginal mucusitis

I really believe that this kind of thing is due to infection... an infection they can't detect in standard labs. It's incredibly frustrating because as long as they don't know the pathogen they will just keep calling it auto-immune.

Things like mycobacteria and mycoplasma can cause this, but only a few labs in the world are capable of doing routine testing. The sad thing is that these pathogens are spreading, and infections are now found globally, but modern medicine is still using an old model in their search for pathogens.

This is more for me than anything. My mucsitis came back after I upped to 150 mg of azathioprine. It was fine on 100 mg. I will be on 100 mg again soon after my white blood cell count recovered. I keep getting mouth ulcers too. I want to point out that this is no std.

No because nobody told me about it. Is it a prescription?

ewafromwarsaw said...
there are probiotics which taken orally target vaginal problems and there's lactovaginal (very cheap, without prescription and absolutely excellent) which restores the vaginal microbiota

Lactovaginal comes up in polish haha I need to find a US equivalent. I'm taking regular probiotics for my jpouch but lately I've been incontinent as well. Sigh

I don't know how to describe it. Especially in my sleep I don't even notice anything and I wake up to a full diaper. During the day I can feel it but I don't have time to go. Sometimes it just comes out. I used to be able to pass gas while laying down, that's now over too.

The surgeon fired me I can't go back to him

But he did say imodium will cause pouchitis

I don't deserve anybody's care anymore. I'm too rude and I don't even notice it.

I can try the alarm yes. I'm just afraid that I have already pooped myself. Like I said I don't notice it. I don't wake up from it. It's so weird.

Andrina, I vaguely remember a bit of your situation with the surgeon. Please move on from that & find yourself a good dr, you deserve good care. To be honest, surgeons can be really different than regular drs, most of the ones I have seen were that way.

Please keep in mind drs work for us. We pay for our insurance to see them & we pay our co-pays. Patients have to advocate for their care.

Thank you all for your encouragement.

I ordered the boric acid from Amazon and it will be here tomorrow. Hopefully it works. I've been needing lidocaine again because I can't even pee without being in pain.

The boric acid is scheduled to arrive today however when I Google it, it keeps saying to not use it on open wounds. My ulcers are open therefore I imagine it will be very painful.

https://www.healthline.com/health/womens-health/boric-acid-for-yeast-infection#side-effects-and-risks

healthline said...
You shouldn’t use boric acid suppositories if:

you’re pregnant, as the ingredients are toxic to the developing fetus
you have a scrape or other open wound in the vagina

Steroid cream will make the skin thinner, no? My surgeon told me I look like an old lady down there. I don't want to make it worse. I do not have BV or yeast, that is not my problem. The ulcers are. I think she's just a regular ob-gyn but I trust her most.

Is there any treatment for that? I'm sorry you are having to deal with all of this.

So strange seeing this post. I’ve been in remission with my UC since my initial diagnosis, but since my hysterectomy one year ago, the last few months I’ve been having these flares of what feels like an awful UTI each month around ovulation. Frequency, burning, etc. It was TERRIBLE this last month. I’ve seen a urologist and he thinks I have overactive bladder, but to me it sounds like I have interstitial cystitis. If it continues each month, it will literally ruin my life. I’ve been told to try Desert Harvest Aloe pills so I started them a few days ago. They supposedly have all the laxative/negative chemicals removed. Wish me luck.