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Just about two weeks away from the crap hitting the pants...

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Ulcerative Colitis
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Posted 11/13/2012 9:22 PM (GMT 0)
Delayed my remi infusion for a few weeks to get a nice reminder of what I will be dealing with if I don't continue my infusions. Took about 8 weeks to start to feel that pressure pretty regular through the day that I need to go. Will end this experiment on Friday. No matter how good I feel I am always just a week or maybe even a day away from feeling really crappy again.
Posted 11/13/2012 9:58 PM (GMT 0)
I dare you to delay yet another week... ;)
Posted 11/13/2012 10:32 PM (GMT 0)
It's always nice to have reminders but be careful of that slippery slope.
Posted 11/14/2012 1:39 PM (GMT 0)
     Does this mean you have to be on Remicade the rest of your life?  EW...no thanks!  Remicade and Humira both failed me.  Honestly, I am glad I had the surgery sooner than later.  I really couldn't wait too long since I was 63 at time of surgery (66 now) and my overall health was going down the crap shoot big time.  If the disease didn't kill me I would be dead from the drugs by now. 

   

Posted 11/14/2012 1:51 PM (GMT 0)
The older you are Christine the easier that is to say. Thing back to your younger years. At 22 I want a normal life and one without a colon just wouldnt feel normal.

Dr-A If you delay and start flaring what if the Remicade doesnt help? Its possible no? Its like taking lesser drug, it will keep you out of a flare but not necessarily be able to get you out of one.
Posted 11/14/2012 2:00 PM (GMT 0)
" At 22 I want a normal life and one without a colon just wouldnt feel normal."

Yeah, it's probably easier if you're like 3 years old and get a ileo or 100 like Christine (just kidding lol, ), then nobody cares.
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