Posted 12/1/2012 3:01 AM (GMT 0)
Im 16 years old and I have had a upper and lower scope done, colonoscopy and endoscopy. As well as 2 CT scans, ultra sound, hydrogen breath check, countles bowel samples, urine sample, countless blood tests, MRE (just like an MRI) skin testing, seen an algerisit, mulitable gi specialist and been to 4 different hospitals. A little over a year ago i had my apendix taken out also, and everything seems to kind of lead back to that. In my endoscopy and colonoscopy they took biopsys and found eosinophils in my colon i guess. First they told me it was through out my GI track colon, stomach, intenises, and esofagitis. But after 3 paths looked at it ive now been told they are only in my colon. I was told i have eosinophilic gastorenteritis. But they cant tell me why i have it or what caused it. Frankly, they have no idea if thats even it. I have been on different steriods to calm my pain. But they just made it worse. Yes i have pain with this. Extreme pain, worse after eating. I have abdominal pain from my right side to my left side, nausea, feeling like i have to vomit, diarrhea, feeling pain and sickness when i have to make a bowel movement. I also have had lightheadness and blackouted sometimes. I get hot flashes a lot and feel like i have to throw up and have to sit down. I have been on 2 different diets for this. First one was, no wheat, sugar, or diary. I stopped that one after a little more then a month because it didnt seem to help at all. Second one was, no wheat, sugar or diary again. This time it seems to help. The wheat is a main part and im slowing starting to put diary back it cause it hasnt seem to make a difference. Ive been on that diet for about 3 months and am currently still doing it. I also was diagnosised with fructose malabsorption. So i cant eat any sugar or table sugar or honey, things like that. I am very limited to what kinds of fruit i eat and how much i do. I still have the pain and it had been over a year, they dont know what to do. All they are going to do is put me on another steriod. If anyone has any suggestions for me please tell me and help!