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What supplements do you take?

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Ulcerative Colitis
Which supplements do you take?
Boswellia - 0.0% - 0 votes
Ginger - 0.0% - 0 votes
Turmeric - 25.0% - 2 votes
Magnesium - 12.5% - 1 votes
Zinc - 12.5% - 1 votes
Probiotics - 50.0% - 4 votes
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Posted 12/9/2012 11:54 AM (GMT 0)
Hi everyone have never taken supplements but am now thinking to try as feeling really rough can't get current flare under control and its really stressing me out. It's not the amount of times I'm going its the blood sometimes there's nothing and then wham 2 hours later its like a tap and then I get the urgency. Feel like I'm going crazy, when you're in remission it seems to dull the memory of a flare you block out how bad it gets.
Anyway I was wondering what supplements are taken in general.
Thanks

Diane
Diagnosed September 96 when my daughter was 2 years old but showed symptoms 7 years prior to diagnosis.
currently flaring for over a year
Salazopyrin 3000 mg per day
Predsol enemas every night
since september 2012
previously taking Mezavant XL since February but could not tolerate so back to Salazopyrin
Posted 12/9/2012 1:33 PM (GMT 0)
Hi Diane,

Welcome to the forum.

Sorry you're in a bad flare currently, hopefully you'll be able to get it under control soon.

I take: vitamin d3, vitamin k2, probiotics, slippery elm powder, l-glutamine, maca powder, l-threonine amino acid powder, chia seeds, and liquid minerals and liquid vitamins (which I add to my protein shakes). I have tried Boswellia but haven't had any success with it. Have not tried ginger or turmeric. Zinc is included in my liquid minerals. But I do take magnesium by rubbing a special magnesium oil on my belly every night.

I would suggest you look into adding probiotics, VSL #3 are the best ones IMO, and if you can get your doc to prescribe it to you as VSL#3DS that would be great, slippery elm powder, and L-glutamine to handle the liquid D, and also for long term colonic repair.

What about diet modification?

Also, there's LDN, low dose naltrexone.

There are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.

I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.

 

 

Are you on any rectal meds? Those would be very helpful as well.

 

I hope you feel better and let us know how we can help you.

Posted 12/9/2012 2:16 PM (GMT 0)
I take D3 liquid drops 5000iu(extremely important), liquid multivitamin and minerals , probiotics.

How strict is your diet?  With many of us here if you clean up the diet and restrict certain foods our symptoms seem to get better,  flares are easier to control.

Posted 12/9/2012 2:50 PM (GMT 0)
My diet is terrible have never liked fruit or veg, but have been trying my best to change that over the last year, only problem is its very difficult not to relapse. I love cakes and baking and these are probably the things I shouldn't eat.
From yesterday started eating more fruit again and going to up my amount of veg, but I'm always hungry so its hard not to slip back into eating junk. I drive past McDonald's and I would love a burger, but I know that's the one thing that's put me back. I suppose when I'm in remission I just hope that its all a mistake and I'll wake up from this nightmare and be myself again.
Anyway I'm currently using salazopyrin 2 3x a day and predsol retention enemas at night they contain 20mg of prednisone.
Have tried probiotics only one tablet made my roll around in agony so will try again when I get into remission.

Thanks for your replies.
Posted 12/9/2012 2:57 PM (GMT 0)
All probiotics are not alike. I have taken some that really helped me a lot, like VSL#3, and I have taken some that made me much worse. Sometimes beginners think that taking a probiotic is just taking a probiotic and if doesn't help then probiotics won't help. They are wrong.
Posted 12/9/2012 5:37 PM (GMT 0)
Probiotics have done wonders for me, usually through pill form or in yogurt (Danon Activia)

Also taking calcium and vitamin D with the Asacol (800x3 daily)
Posted 12/10/2012 3:17 AM (GMT 0)
Diane42, if you are driving past McDonalds and and wanting a burger there well you will never be in remission.  I have a hard time with any fast food I do like Wendys but I do like to be well so you just have to decide what you want more.

When you committ to getting better and changing your eating and living habits your health should take a turn for the better as well. You cant change everything overnight but small changes over the weeks should help.

It really takes alot more than the meds that the docs perscribe to get you into a remission.  You have to be able to recognize the symptoms ex. gurgling stomach and act immediately with enemas to control the flare before it controls you.

Its a lifestyle change diet, exercise, sleep, manage stress and find what meds and supplements work for you.

I agree try other probiotics before you rule them out they have been one thing that I will take daily to keep that good bacteria in my colon.

Posted 12/10/2012 3:41 AM (GMT 0)
I take vitamin D3.
Posted 12/10/2012 10:05 AM (GMT 0)
Daily,
Vit D 2000 IU,
L-Glutamine,
Methyl B12, 1000mcg
Multivitamin
Slippery Elm Powder
Probiotics
Magnesium (Citrate form, specifically for migraine)
Vit B2 (specifically for migraine)
CoQ10 (specifically for migraine)

Once a week,
Vit A 10000IU
Vit E 400IU
Zinc

Discontinued because of no results,
Boswellia
Zinc Carnosine


Men taking Calcium should talk to their docs. Men should not take supplemental Calcium unless otherwise suggested by a medical practitioner.
Posted 12/10/2012 1:22 PM (GMT 0)
Thank you for all your replies they've been a great help x
Posted 12/10/2012 2:19 PM (GMT 0)
I make my own burgers (including bread) to satisfy my fast food craving. I also make oven baked wedges as substitute for fries. Had one today. The only bad thing is the pork mince (since meat, for me, is considered unhealthy).
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