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Ulcerative Colitis
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Posted 1/23/2013 5:50 AM (GMT 0)
My nurse finally called in my rx. Will my pharmacy mail it to me cold like they do my Humira? Is there anything I need to know about starting this? I know start out with a half a packet. How much water do I mix it with? Does it have a flavor? Can I mix with juice? Is it gritty? Is there a certain time a day I should take it? Any other tips?
Posted 1/23/2013 5:56 AM (GMT 0)
you pick it up at the pharmacy and it's always in the fridge. i usually added a cup of water or orange juice to it and mixed it through. i loved the taste so i looked forward to it in the morning when i woke up. it is clumpy so just stir very well.
Posted 1/23/2013 6:04 AM (GMT 0)
Juice is fine. Tip: if it tastes bad for you use minimal liquid (< 1/4 cup) and stir madly, the just try to down it in one gulp with a glass of juice or water standing by as well.

Keep refrigerated and try to take on an empty stomach (between meals)
Posted 1/23/2013 6:23 AM (GMT 0)
I'm getting it from a mail order pharmacy. They mail me my Humira overnight with dry ice packs. I guess they'll do the same for the VSL. They always call me the day they mail the Humira and make sure I'll be home the next day. Thanks for the tips.
Posted 1/23/2013 9:16 AM (GMT 0)
They will mail it with cold packs. BTW...always put the VSL in the glass first and then add the liquid rather than adding the VSL to the liquid. For some reason it mixes better, and you won't have as many clumps.
Posted 1/23/2013 12:47 PM (GMT 0)
IMO it tastes terrible. The only think I find that masks the taste is a smoothie. I make one every morning and dump the vsl in. No big deal.
Posted 1/23/2013 2:26 PM (GMT 0)
I mix mine with a couple heaping teaspoons of orange Metamucil and about 4oz of water.
Posted 1/23/2013 5:16 PM (GMT 0)
I mix mine with applesauce, yogurt or have it in a smoothie.
Posted 1/23/2013 5:26 PM (GMT 0)
I think it tastes absolutely horrible. I also think it smells like throw-up.  If I can, I try to mix mine in a protein shake with some chocolate protein powder, a banana, milk and a little peanut butter. That way I can't taste it at all.  If I am not having a protein shake that day, however, I mix it with G2 Gatorade (red or purple).  I second the putting the powder in the glass first and then the liquid. That was the best advice I got on here about it - it definitely mixes better that way!  I also try to drink it quickly or eat while I'm drinking it. Anything to get rid of the taste. After you've been drinking it awhile it does get a little easier to drink. But I still think it tastes bad.

I'm going up to 1/2 packet twice a day now - I tried a whole packet at once and its just way too much powder to mix in at a time.  Plus it can make you gassy.

Posted 1/24/2013 6:33 AM (GMT 0)
How do you best measure half the packet? How long do you wait to move up to a whole packet?
Posted 1/24/2013 4:47 PM (GMT 0)
I just sort of eye it up. I look at the packet and put my finger where I feel the powder ends. I figure out what half of that would be, put my finger there and empty the packet out to that point. It seems pretty close. I'm sure you could empty the whole thing out and measure it then take half of that too.

I just waited until the extra gas caused by the VSL started to subside and get back to normal. Once that happened and it seemed like it was helping, I decided to try 1/2 packet twice a day.

Posted 1/25/2013 1:27 AM (GMT 0)
I am so mad. I called my pharmacy to see why they hadn't mailed VSL. There was some kind of problem so they rejected the rx as not covered. So I get the girl to look into it and it really is covered. So she overrode it. But I thought I would have it tomorrow and now it will be some time next week. They don't even keep it in stock so they won't even order it till tomorrow. I just don't get why they didn't call me. The tech said policy is to send out a letter not to call. Plus on top of that I ordered Rainbow light from Amazon and it was not mailed today either. I did the auto ship thing so it could take forever to get that too. I am just having a really bad day. We got news someone I depend on financially is losing their job. I tired to get $10.00 out of the ATM and accidentally got $100.00 and it was too late to go put it back in. I am not sure if it will cause anything to bounce. Several other little things. Ugh
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