To those who have replied. Wow, thank you so much for this! It's such a relief that there are people that understand!
I did send my bosses an email last spring about
my disease with website links for them to read. At one point, though, I wrote another letter after one boss asked to speak with me after business hours at the end of my day and he repeatedly asked over and over again why. I explained that I am going through a health issue and would rather not go into detail, that I will do my best to arrive at work. He continued to ask again and again until I started crying and explained all the details of my condition, (basically, what is in the toilet bowl and the cramping and I then I got kind of nasty and said something to the effect "let's see how you feel after you **** blood"). I did not like responding that way! It was about
a 30 to 45 minutes questioning. In any event, I ended up having to send an email to all EE's of my new office hours and post that notice on my door. I felt like I was being singled out and said so in my letter.
My job is not to relieve another person from a shift, so it does not affect others that way. My recent performance evaluation did state my lateness but answered that I do stay later in the day to make it up. I was told later that any time I do stay to late to make it up does not matter and does not count towards that fact that I arrive late. I was told I can't use vacation time to make up for my pay, it has to be deducted. I am very frustrated and feel pressured. Do I have to show them my medical file? Do I have to copy my prescript
ion list for them? Does have to get to a point where I let them know if I've used an enema the night before and not expect me to be on time? I don't think so but it feels I have to defend myself some way. I've been there for 7 years and was hoping to retire from there at age 55. Is this disease a "disability" of sort?
It's hard to know what you will need to go to a bathroom and they don't understand that. I don't have far to travel to work but last spring during my flare, it was a battle to rush out of the house (after going to bathroom), into the car and drive as fast as I can (minding the speed limit and traffic) to work, in the expectation to make it on time. A few times I had to stop at a couple of gas stations on my way, which then delayed me. I don't know anymore....
Mark, you're suggestion for your co-worker Adam to draft up something would be so very helpful!! We can all work on this.
I'm not using this disease as an excuse, we all know it is definitely not "fun?"!