CCFA needs diet study participants for questionnaire

I got an email asking me to participate in a UC diet study questionnaire (not food monitoring in other words).
I think this is good news that CCFA is sponsoring research into an area that has benefitted me so much and could benefit thousands of others.

Here's the contact info for anyone interested. And if you crash her email so be it. I'm going to spell it out so spider spambots don't wreak havoc, so fill in the email address blanks you "smarter than spambots" you.


beth(underline)jaeger at med(dot)unc(dot)edu ask about the D.R.E.A.M study (Diet’s Role in Exacerbations of mesAlamine Maintenance) and will be researched through Brigham & Women’s Hospital (Boston, MA) and Harvard Medical School. If that doesn't work email me and I'll give her direct phone #.

I may not be accepted for this study because it specifies mesalamine and I'm on Balsalazide which is not mesalamine (or is it?)

I emailed and she responded almost immediately with some info and a link to the project website. I'm not eligible because you have to have had at least one flare in the last 18 months.

Yeah, I wrote her back and said that I wouldn't be able to participate because of that, but that I wasn't sorry!

Guess I'll "fail" to qualify also then due to having no flare in 2 years due to diet modification, which I'm guessing is what the research seeks to determine.

Thanks for the info that I am indeed on mesalamine. I truly do not know if it has any effect on my remission at all because it was not doing anything positive at all before I started serious diet mod. and years of Asacol did nothing for me except give me tinnitus and possible loss of some hearing.

I hope other people will participate in the questionnaire.