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mono/ebv
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Ulcerative Colitis
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killcolitis
Veteran Member
Joined : Dec 2009
Posts : 2396
Posted 2/1/2013 6:57 PM (GMT 0)
Once you've been exposed to ebv is it possible for it to be reactivated again? My daughter has had hives for a month. We met with an allergist and he's trying to exclude possible causes. She has had high levels of ebv antibodies show up in blood work ordered by her functional md. As a result this MD put her on olive leaf extract, curcumin and some other anti virals. about
a month into it she developed hives. The allergist said viruses are the main cause for hives. He called this morning and said he wanted a mono spot test done because she had spots in her mouth which are strongly associated with EBV (petechiae). Interestingly when she first developed UC we noticed she had small warts on her hand (HPV). She's had them for the past 3.5 years (we asked a few Drs but they suggested we burn them off and there was no connection to the UC). They've finally started to dry out. So, now we've potentially stirred up some viruses. Anyone know anything about
reactivating EBV or EBV and how it impacts UC? Or anyone try antivirals and if so what were your results (did you reduce your viral load and did it impact your UC)?
Old Mike
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Joined : Jan 2007
Posts : 4171
Posted 2/1/2013 7:06 PM (GMT 0)
Kill: Watch yourself petechiae can also develope on the legs,when my son was 16 he had HSP which is associated with strep. Dont believe he had strep,but his brother did. My sons immune system was reacting to strep. This was well before UC developed in him.
Does she seem sick,they can check for strep with a throat swab.
Anytime I here about
petechiae I get nervous.
Henoch-Schonlein purpura (HSP)
Old Mike
killcolitis
Veteran Member
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Posts : 2396
Posted 2/1/2013 7:11 PM (GMT 0)
Mike I thought of strep but she has no symptoms yet. She does have hives and all over the the petechiae in her mouth which this dr says are both symptoms of activated EVB. ? I'll look HSP up now.
killcolitis
Veteran Member
Joined : Dec 2009
Posts : 2396
Posted 2/1/2013 7:14 PM (GMT 0)
Looked it up. It's not it (hopefully). The potential for kidney damage is scary. I'm glad you son recovered fully.
kazbern
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Joined : May 2010
Posts : 8384
Posted 2/1/2013 7:16 PM (GMT 0)
antivirals are not a normal treatment for EBV (at least not to my knowledge). And while viral rashes are common, I can't believe anyone would say that viruses are the primary cause of hives? Hives are a histamine reaction to an allergen from what I understand. If you're daughter's been having lots of rashes or hives for months I would look first at her clothing, your detergents, her environmental triggers (dust mites), try an antihistamine to see if that improves things.....
You can get mono more than once according to the literature.
Old Mike
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Posted 2/1/2013 7:29 PM (GMT 0)
Kill: My son may have recovered from HSP but 5 years later he lost his colon. That was my first indication his immune system was over active,or dysfunctional.
Old Mike
killcolitis
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Posts : 2396
Posted 2/1/2013 7:46 PM (GMT 0)
Kazbern, According to the allergist, in children viruses are the #1 cause of hives. Our GI said this too. Allergens (looking into it, nothing new added recently) are the second.
We're using natural antivirals not pharmaceuticals. I know they are doing something to her virus load because the warts on her hand are finally drying up after 3.5 years. Now the rash in her mouth which correlates to mono/ebv?
Mike, yeah, looking back I can see some signs leading up to this too.
garylouisville
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Posted 2/1/2013 8:02 PM (GMT 0)
EBV can reactivate. That's what Thoreu has been going through. Has her platelet count been checked? Petechiae is often the result of a low platelet count, which can be very dangerous if too low. I don't think EBV makes UC any worse but it really sucks to have to deal with more than just UC at a time.
killcolitis
Veteran Member
Joined : Dec 2009
Posts : 2396
Posted 2/1/2013 8:17 PM (GMT 0)
Gary, no she'll have it checked on Monday. I'm just worried that we've stirred the pot and potentially added this to our issue list.
kazbern
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Joined : May 2010
Posts : 8384
Posted 2/1/2013 8:25 PM (GMT 0)
In my experience viral rashes are transitory. They come at the end of the viral illness and they last a couple of days. Is your experience different?
killcolitis
Veteran Member
Joined : Dec 2009
Posts : 2396
Posted 2/1/2013 8:37 PM (GMT 0)
Yes. It's been about
a month. But if the ebv has been reactivated by the herbs and the rash is caused by that then I guess it's plausible. At least according to the drs? I don't know enough about
it to be honest and am trying to figure this out. My daughters actually are prone to viral rashes - my younger one had one for almost a month with fifths disease.
kazbern
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Posted 2/1/2013 8:52 PM (GMT 0)
Oh, that nasty parvovirus! I had it when I was 42. That was not pretty! My eldest daughter got lots of viral rashes when she was little. And in addition to the 5th disease, I had a lovely virus called Pityriasis rosea that also lasted several weeks. Other than those I think a week was the longest.
My eldest now gets itchy when her seasonal allergies are peaking. If your daughter's rashes/hives are itchy I'd recommend trying an OTC antihistamine, topical antihistamine and/or moisturizer to see if that helps (eucerin).
killcolitis
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Posts : 2396
Posted 2/1/2013 8:58 PM (GMT 0)
Thanks Kazbern, she took some allegra last night. seemed to help fast.
kazbern
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Posted 2/1/2013 9:21 PM (GMT 0)
That seems like a good verification that the rash is a histamine reaction, not a viral rash, don't you think?
killcolitis
Veteran Member
Joined : Dec 2009
Posts : 2396
Posted 2/1/2013 9:29 PM (GMT 0)
Perhaps? Will bring speak to the allergist about
it tomorrow I suppose. If it comes back again today I'll try it again and see what happens.
killcolitis
Veteran Member
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Posts : 2396
Posted 2/1/2013 10:01 PM (GMT 0)
Hmm. Just spoke to the MD, he says that antihistamines will still work because the reaction to the virus still involves histamines and you want to suppress that. Does that make any sense?
Sibby
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Posts : 1366
Posted 2/2/2013 2:25 AM (GMT 0)
Seems plausible, just sounds a little hinkey.
Is she eating anything at all that can possibly cause this? I'm just trying to get my mind around this. Check the petechiae first to be sure it isn't mono again. Or strep. Or anything for that matter.
garylouisville
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Joined : Aug 2012
Posts : 9088
Posted 2/2/2013 2:54 AM (GMT 0)
Sounds plausible to me too.
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 2/2/2013 6:58 AM (GMT 0)
I think your daughter's system is overloaded with all the other stuff she's on.
Any herpes-type of virus can reactivate in one form or another.
The hives (or are they sores) are also saying her immune system is in overload.
The warts on her hands may not be warts, but a reaction as well.
Is the allergist a mainstream or alternative?
q
InSoFla
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Posts : 4691
Posted 2/2/2013 12:44 PM (GMT 0)
killcolitis,
Is it possible the stuff your daughter is on may have brought on some form of candida?
killcolitis
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Posted 2/2/2013 1:31 PM (GMT 0)
No my daughter's on a paleo diet, mezavant and some supplements. Nothing to cause candida. Possibly histamine overload to the system (from the diet). That's still a suspect but now I'm thinking virus.
Quincy, the allergist is a regular old allergist at her regular pediatrician's office. That's why I find it so odd that he thinks it's the EBV since that's what the functional dr has been working on. The warts are definitely warts - she's had then for years and many drs and dermatologists (friend) have looked at them. They're flat warts that spread to her knee and forehead. Now they're all gone/almost gone.
Sibby, it's possible. Her diet is very clean so that's why histamine is the suspect. Will have the bloodwork done and go from there.
killcolitis
Veteran Member
Joined : Dec 2009
Posts : 2396
Posted 2/2/2013 1:48 PM (GMT 0)
Other than virus the other suspects are - histamine overload from the diet, the meds (asas).
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