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Trying not to panic blood?

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Ulcerative Colitis
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Posted 2/6/2013 2:26 PM (GMT 0)
After a year of fighting a flare (mainly bleeding), I finally got of Prednisone in December.  I tried 6mp but elevated my liver enzymes too high.  GI wanted me to "hold my breath" to see what our next course of action would be.  I have had long periods of remission.  I am trying naturopathic and diet things.  Although lately I've been so depressed I have had trouble keeping on the diet.  I also have been having this on and off nausea for a few months now.....I go for endoscope end of Feb for that....

So I was trying to double up on probiotics and then I stopped them for a few days... stools are now large and hard to pass.  Well today I looked in the bowl and there were slight streaks of blood on stool.  Not sure if it's from large stool, my period that just started or the dreaded UC..  I am in a panic because I really don't want to do Remicaide and I bet it won't even work for me.  I can never tolerate anything.  Only Prednisone and that gave me osteoperosis!!!

I am so down I can't take this anymore

Posted 2/6/2013 2:59 PM (GMT 0)
Theres a good chance that if pred worked for you, Remi will work as well. Dont be so negative. What are you taking now? Diet/med wise. Are you going often?
Posted 2/6/2013 5:16 PM (GMT 0)
Don't count your chickens before they're hatched, or something like that. The blood may only be a fluke. Don't give yourself a flare just worrying about one.
Posted 2/6/2013 5:47 PM (GMT 0)
Thanks I know...it's just so many things. I have been researching a variety of odd chronic ailments that have been plaguing me. And I have redone my diet a billion x I feel like forget it...I just don't even want to eat!!! There is someone who says that almost everything edible has something wrong with it for uc

No I'm not going to often 1 to 3 x a day. All formed stool. I did pass some mucous here and there recently but that has stopped. IMO that was coconut milk consumption which I stopped.

I am on LDN and a bunch of other supplements. You know probiotics, fish oil, l glutamine etc...Also stuff for twitching b12 shots stuff for osteoperosis.... Diet is mostly paleo. Cheated here and there recently though. Dairy and GF forever. Mostly grain free. I eat a lot of home made chicken soup and grass fed beef... green smoothies etc

Sorry for the negativity but this which is big is only a small portion of the other stresses I have going on
Posted 2/6/2013 5:50 PM (GMT 0)
As far as UC goes it looks like you have found a good path to be on. Hope the other things in your life get better.
Posted 2/6/2013 7:52 PM (GMT 0)
do you have a signature with the meds you are on at this point?

what are you on?

what about steroid rectals?


q
Posted 2/6/2013 7:59 PM (GMT 0)
Seasons- you would know better than anyone if the blood is from actual flaring or not, based on whether it has those familiar flare pains... But could the blood be from hemis? Big formed stool and blood sounds a lot like internal hemis to me- those can hurt but at least they wouldnt necessarily be related at all to the UC, other than the fact that you have to strain or go to the loo more and rupture the hemis.
Posted 2/6/2013 8:09 PM (GMT 0)
I agree with probiotic. "Streaks" sounds less like friable UC tissue seeping blood, and more like hemorrhoids marking large stool.

lets hope for the best
Posted 2/6/2013 8:16 PM (GMT 0)
not necessarily...depends on where the more severe inflammation is.

q
Posted 2/7/2013 12:26 AM (GMT 0)
I don't know how to do a signature after all these years :)

Well I have had flares start like this. We will see what happens tomorrow, no more bms for today.

I did wean off steroid rectals a while ago but I was using them a lot for the past year. If I see blood tomorrow I may try that. I just know over use can thin things out no? I can't use mesalamine.

Saw my ND today. Between my stomach and this we are doing a stool culture, abdominal u/s and another food sensitivity test. I have the endoscopy for stomach end of Feb.

I just feel scared to death knowing what I have left as far as Rx.

Would any of you try Imuran if 6mp made you liver enzymes high?
Posted 2/7/2013 3:19 AM (GMT 0)
You have alot left as far as Rx... New meds are comig out like Uceris etc, and you have your beautiful soul and courage. This disease feeds on fear, and then the symptoms make you more scared. It's a cycle. Just say to yourself everyday that you are healthy and strong, or getting healthier and stronger. It's hard i know ive been there but don't let the fear get to you.
Have you tried vit E supps? Or vit E enemas? Also i noticed somone in another thread suggested a product calked Wise Women Suppositories by Rockwell Nutrition. They have marshmellow and vit E plus other herbs.
Stay strong, we are here to help you..
Conquer
Posted 2/7/2013 3:32 AM (GMT 0)
Thanks Conquer UC..you brought tears to my eyes for taking the time to post such nice words.

I did try vitamin E but then one of my docs said that it can cause more bleeding??? So confused.

Also I tried Wise Women Herbals a long time ago and they did seem to help a little. My very first naturopath had me use them. I may order some again, thanks.
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