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IBS or UC advice on what to do next

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Posted 2/13/2013 12:30 AM (GMT 0)
I had posted here a week or so ago that I was concerned after seeing blood that my uc could be acting up.  I had formed and larger stool plus my period at the time.  So I was unsure.  Since then my period is mostly gone and I'm not really seeing any blood.  Still formed stool no D. 

But tonight I had an urgency at dinner.  I knew it would be mucus and it was, just that.  Not bloody but I am so afraid this is UC starting to rear its ugly head. 

I have been on Prednisone most of last year.  Got into remission when I added 6mp, but had to stop because of liver issues.  CAn't take Mesalamine.  So what is left?  GI wanted me to "wait and see".  I've been good for maybe 4 or 5 months now.  LDN is my only real med. 

Now I've been told I have IBS too that came way after uc.  This type of thing has come and gone before but now that 6mp is out I'm petrified.  I really really don't want to do Remicaide..what else is there? Humira?  Oh and is that made from something human/fetal?  I wouldn't use it if it was. 

I hate that I seem to have so few options to treat this.  Any advice??

Posted 2/13/2013 12:37 AM (GMT 0)
Just relax, do something to take your mind off of this SINGULAR BM and don't stress yourself out to the point of insanity before you know what's happening for sure.

If things get worse you can call or go to your GI and see what he/she suggests. But don't panic.

I feel like this is advice that I could take myself but it's hard to see the forest from the trees when you're not feeling well. I've been there and will again. Just try to keep calm and get your mind off it.
Posted 2/13/2013 1:02 AM (GMT 0)
Thanks sfc425, I know there is wisdom in that but it's hard not to worry, when you have less treatment options and you are not on a lot of maintenance.

I just have a bad feeling.


I have cort suppositories and enemas here but worried about using them too. I already have osteoperosis



It hurt to go
Posted 2/13/2013 1:10 AM (GMT 0)
What exactly are you on right now? Have you tried the sulfazines instead of the 5ASA's? How about diet, supplements, or probiotics?
Posted 2/13/2013 1:12 AM (GMT 0)
I would use the supps if you have another trip to the bathroom with urgency and mucous. One time thing could be food related but more then that I would take action.
Posted 2/13/2013 2:00 AM (GMT 0)
Thanks. Right now my main Rx is LDN. I take a lot of supplements for all different reasons. Vitamin D, C, probiotics, Fish oil, coQ10, homeopathic flu remedy for prevention, l glutamine on and off and some stuff for osteoperosis (just started those a few weeks ago, wondering if that is it) GaBA and Taurine probably more I forget. I have to figure out how to do a signature

Diet was very restrictive last year. Still paleoish but have fallen off lately. Still GF and DFree and mostly grain free.
Posted 2/13/2013 2:12 AM (GMT 0)
Sorry for the issues seasons.

Try slippery elm powder. If you buy it in bulk at a health store, its considerably cheap! Like a small bag for $3 bucks will last you a few weeks.

After one week my stool is formed!

(i was using it in combination teas prior to using it in powder form).
Posted 2/13/2013 2:27 AM (GMT 0)
I was thinking of adding that again
I used to use it but it never stopped bleeding. Right now I'm having some minor pain and mucus. Possibly blood but I'm not even sure. I wonder if I did it earlier like now it would be more effective. I know its a no no for people on SCD but I may try it

I just can't take another flare mentally.

Stereofidelic89 what else are you on med and diet?
Posted 2/13/2013 2:38 AM (GMT 0)
seasons, i'm on 800mg of asacol (tapered in oct and dec from 2400mg)
I'm holding my breath over those mysterious joint pain episodes that it was from asacol!!

just getting over a flare by using slippery elm, seems to be helping.

I take inflaguard, vsl#3, and wise woman suppositories #2. Maybe you could try these?? I've tried canasa and butyrate supps in the past with no relief, until these.

iron & enzymes, now going to try Betaine HCL (increase stomach acid to help with digestion)


There was a recent UC thread on Cherry concentrate being anti-inflammatory...

Do you think your GI problems are digestion related? or just out-of-nowhere bleeding/pain?
Posted 2/13/2013 2:53 AM (GMT 0)
stereofid.. I wish I could use asacol or something. Everything I take makes me sicker. I am eating applesause right now with slippery elm in it, I still had some. I am going to order the wise woman herbals right now. I used to take those too. What did they help with you. Bleeding? Mucus?

Have to look into the cherry thing. How do people take it.

I am thinking too much almond flour a slip up with swedish fish or just plain anxiety/depression. Who knows. I used to have years of remission, not it's all changed. Very mild so far and maybe just IBS but I just don't want to wait too long. What are you eating now? Do you follow anything special?
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