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Ulcerative Colitis
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Posted 2/13/2013 1:42 PM (GMT 0)
My GI prescribed daily use of Mesalamine enemas. Haven't got to that point yet, most I do is 3x a week.
I've had no blood or much mucus for a solid year now. I have a BM once a day, so I can hold the enema in for 20hrs.
I only use them now because I Try to listen to him, and they make my BM's more on the solid side.
You folks only seem to use them this often for a flare, am I using them too much?? Are they going to heal my colon if I use them daily?

TY,Bob
Posted 2/13/2013 1:45 PM (GMT 0)
So it sounds like you're in a pretty good remission?

I'm in remission and I use them twice a week (and also take Apriso daily), and I think that's enough for maintenance of remission. It's working for me, at least, as I've been in remission for over 3.5 years now.

However, if you start to notice any flare symptoms, I'd up it to daily immediately.
Posted 2/13/2013 2:20 PM (GMT 0)
Ty, Fruitgirl. Well, some remission I guess. Still got plenty of gas and bloating and gurgling yet.

I'm on 4 Lialda aday, and have been since Dec. '11, I tried going down to 2 over the summer, but got crampy and a little mucusy, so I went back to 4aday.

My next C-scope is in a couple of months, maybe if it's nice I can talk him into something like Apriso. Lialda being Very expensive.

Hope your Pregnancy is going well! You must be bursting at the seams now, lol.
Posted 2/13/2013 2:30 PM (GMT 0)
Well, since you're not 100%, I'd use them nightly to see if you can achieve a solid remission.

And thanks! I'm 37 weeks today, so yeah, getting close to bursting!
Posted 2/13/2013 6:36 PM (GMT 0)
They have not helped with the portion of my colon that is higher up but from November to January I was not using them yet and was hospitalized numerous times and now that I am on them, they have helped to reduce the frequency (along with other meds) from 15-20 times per day to 5-6 10 tops as I am still flaring. I don't care if I use them every day the benefit is to great as of now. I may be very new at this but I can say that the enemas had a great impact on improving my quality of life.
Posted 2/13/2013 6:46 PM (GMT 0)
coffeeman...Yes, nightly for sure. Solid bms doesn't necessarily mean remission...one can have bleeding and solid bms. Constipation is also a symptom of sime inflammation.   

No, you're not using them too much...you're not using them effectively. Not to keep beating the point, but I'm now in the 24th year of using oral/rectal 5ASA...increase enemas nightly as I need..taper to maintenance of every 3rd night or twice weekly..in other words, I can skip a night if I forget or don't feel like using it till the next night.

But...it would be great for you to give it a faithful go nightly. I would also suggest you ask for the Apriso since it's available and seems to be a successful maintenance med. not all really need the higher dosage. Many docs stick to high dosage initially instead of slowly increasing.

Do you have pancolitis or limited?

q

Posted 2/13/2013 8:34 PM (GMT 0)
Thank You Jacob and Quincy for the input.

Quincy- The GI only said I have UC, that's it. From the picts of my 2nd c-scopy, it sure was totally thruout me. And had been for years prior.
Posted 2/13/2013 11:27 PM (GMT 0)
You're doing pretty good for pancolitis....

hopefully even much better once on the nightly enemas.

q
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