hey I followed up on that ladies post and she wrote this after saying she was cured. It helped her but didn't cure her and she has posted anything since like '08 on CPN website
Here I am, back again after several months, with a report on progress. As it turns out, I don't appear to be fully "cured", as I had reported in June. Back then, I had been well for a half year. My ulcerative colitis had seemed to utterly disappear. I had ramped down Asacol, the inflammatory bowel diseasei drug, entirely by March. Shortly after my last post in June, I took 500 mg of niacini for four days -- first in the morning, and then just before bedtime the last three days. The niacin gave me an immense flushing. During that same time, I also started a very mild dose of levothyroxin, having tested slightly low in thyroid function. Rectal bleeding started up again then, and I resorted to taking 1200 mg Asacol three times a day, and using an occasional Colocort steroid enema to keep these symptoms away. I continued with the metronidazole pulses. Gastroenterologists seem to insist that Asacol is required to get ulcerative colitis into remission and keep it there. I'd been advised to keep taking it for life. It has always given me mild headaches, and sometimes extreme flatulence. A couple of weeks ago, I started increasing the dose to 1200 mg four times a day, and then even 1800 mg at times, trying to get in shape for travel. I then had what I believe was a severe reaction to Asacol: severe headache lasting over 24 hours, with nausea and vomiting. This prompted me to quit Asacol point blank. Quitting Asacol is, according to conventional medical practice, cause flare-ups to become worse, and this one has in my case, with increased bleeding. Cortocol enemas are helping now, and I have resumed a pulse. I go back to my gastroenterologist in a couple of weeks. Meanwhile, I'm hanging in there. Sue