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Prednisone - getting worse?

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Posted 2/20/2013 8:50 PM (GMT 0)
I'm still waiting for this 60mg a day to help. Yesterday I was hopeful - had a few less bathroom trips & less leg pain (but also only ate 1 banana & 2 pieces of toast all day.)   Today - it's as if I'm not on Prednisone - all my symptoms are what they were on Monday when I began it (even a touch worse)... GGrrrrrr

Anyone else with this problem?  In the past the 40mg a day worked immediately....

Posted 2/20/2013 8:54 PM (GMT 0)
could be that prednisone is not going to do anything for you.
Posted 2/20/2013 9:02 PM (GMT 0)
My second time on pred it didn't help. I just had to stick with the enemas nightly and my Lialda.

I see your on Humira. Some on the board have gone to doing Humira weekly and are doing much better with that. Just a thought.
Posted 2/20/2013 9:03 PM (GMT 0)
You might need to try to eat more. An empty stomach always made my gut act up even more.

Sorry you are suffering
Posted 2/20/2013 9:07 PM (GMT 0)
Predinsone does not work for me. I was put on 40 mg/day for this flare....then upped to 60 and it didn't help me at all, and this is my first time on it. After just over 2 months I am still on 35 mg/day because my GI says if nothing else it may be keeping me from getting worse, and so far we can't get this flare to stop. Apparently my UC is steroid refractory, which really stinks. Maybe give it a few more days and you'll get lucky and it kicks in.
Posted 2/20/2013 9:19 PM (GMT 0)
garylouisville - I'm wondering about that..

sherbear46 - I have already failed cortenemas and canasa suppositories - they actually made me alot worse this time around. It was my 3rd try for both of those. Oddly enough - I went onto Humira in my first Prednisone free week and the day after I began it - all hell broke loose. My 3rd shot is Friday though - so I'm new at it.

Peety - yeah, probably should - just scared anymore I suppose, I'm making some chicken soup right now (homemade - organic, etc)

UCwhat? - have you seen any improvement with the Remicade? My GI did offer to do Imuran with my Humira - but admitted that it is very toxic to the body & there's no way I'll do both for fear of cancer
Posted 2/20/2013 9:54 PM (GMT 0)
I have only had 2 remicade infusions so far, so might be a bit early to really say. But, I did feel much better a couple days after my first infusion, and that lasted about a week. Two days after my 2nd infusion I was hit with a C Diff infection, so that had me feeling awful for a while. Now that it is clearing up I am back to basically feeling the way I did when I got my 2nd infusion. Right now I'm not sure if/when my 3rd infusion will come because of the infection and the fact that I'm thinking about surgery. I hope you find some relief soon!!
Posted 2/20/2013 10:06 PM (GMT 0)
Read my signature. One day the pred that cured me instantly, just stopped working. (
Posted 2/20/2013 10:46 PM (GMT 0)
I have been on and off of Prednisone for nearly 20 years, and for me it works a little less each time. It also depends on when I last took prednisone. If the time between Pred cycles is less than 2 years, I know any new flareup will have an awful tapering period to it.

Good luck with your flare - I'm suffering through one now, and I'm in the awful tapering period.
Posted 2/21/2013 12:01 AM (GMT 0)
ahnadlass1 - maybe that's my issue.

Was on it 40 mg day from 6/2012 weaned to 5mg & failed 10/2012
-- put back onto 40mg a day weaned totally 1/15/2013 & failed 1/22/2013
-- refused to go back onto it & gave in 2/18/2013 after the enemas & suppositories made it worse

BLECH....
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