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Is uc hereditary?

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Ulcerative Colitis
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Posted 2/23/2013 1:44 AM (GMT 0)
Hello everyone just thought I would get an opinion from you guys on here. I have had uc for 13 years now and am wondering if my daughter has it.. She is 15 and been having problems for years now but no doctor is really doing anything about her problem.
She has these symptoms

Constipation - diarreha goes from one to other
Very low B12 a she is having weekly injections for past month
Cholestrol- but she is not over weight

Extreme tiredness where she can't function


I have tried to tell them to test for uc but they won't as she is too young to have a colonoscopy they tell me.
They have tested for gluten and celiac and she is fine.
She can't see my gastro dr as she is not old enough..

We have done diet cut out fat etc for cholestrol and limited junk food.

Does anyone have any ideas for me . idea
Posted 2/23/2013 1:51 AM (GMT 0)
It certainly can run in families. I have several family members with uc. Knock wood...my kids have no signs of IBD.

I don't understand why they told you 15 is too young for a colonoscopy. My friend's 14 yr old just had one this past fall being tested for Crohn's/ UC. I would get a second opinion from another GI doctor....preferably a pediatric GI.
Posted 2/23/2013 1:59 AM (GMT 0)
Thank you for your reply :) I am in Australia and have had several different opinions with no answers..... I have been pushing the issue for them to test her but as she is under 16 she has to se a pediatric doctor who will not do it... She will be 16 at the end of July this year so the day she turns 16 I will be asking for her to see my gastro doctor.. We have been to so many doctor to try and sort this out but no one is giving us any answers at all... She is starting to become depressed as most days she has stomach pain and bad fatigue so much so she has missed a lot of school :( am just not sure to do to get her help :(
Posted 2/23/2013 2:03 AM (GMT 0)
It sounds like she could but it could be IBS or something else so I wouldn't go crazy thinking it's anything more than regular ups and downs until you know for sure. I have heard of kids way younger than 15 having colonoscopies. I can't believe they told you she was too young. How else would they diagnose UC or Crohn's?

I would definitely have her see a GI or a ped GI. UC does run in families but just because you have it doesn't mean she will. The chances are actually on her side that she won't develop it. I've heard having a parent with it increases the chances but the chances are not that high. Although I've heard that, I have to say, I've seen a lot of people here with children or parents who have it. I personally do not have it in my family as far as I know.
Posted 2/23/2013 2:05 AM (GMT 0)
that stinks that she has to wait so long for a colonoscopy!! i had my first one at 16 but i know of people younger than that who were diagnosed as little kids.

she could try a diet like specific carbohydrate diet, gaps, or paleo. these are the most popular for this disease i've noticed. they are very strict and will most likely be hard to follow at first, but if she feels crappy enough, she'd probably try it.

my dad has UC, too, so it can definitely pass onto kids.
Posted 2/23/2013 2:09 AM (GMT 0)
I too was wondering about IBS. IBS can often present itself as either constipation or diarrhea or both. UC is technically not hereditary but you can inherit a genetic predisposition to autoimmune diseases such as UC. That just means that if you have this genetic predisposition and the right trigger or triggers happen to you then you can come down with the disease. You may have inherited the genetic predisposition but if you do not run into the trigger or triggers at any time in your life then you will not get the disease.
Posted 2/23/2013 2:10 AM (GMT 0)

bananagirl said...

she could try a diet like specific carbohydrate diet, gaps, or paleo. these are the most popular for this disease i've noticed. they are very strict and will most likely be hard to follow at first, but if she feels crappy enough, she'd probably try it.

No 14 year old wants to try crap like this.

-Hey guys, let's go eat Mcdonalds and then we go see a movie.
-Nah, my mommy told me to eat gluten free cause my tummy hurts.
-Gluten what? what is gluten....you crazy

*sigh*

shiiiiit, I'm mature enough and I still hate it. Shiiiiiit, I hate it even more cause it doesn't work.

Kids want to eat candies, they don't need to know about celiac, or gluten this or that, or IBS.
Posted 2/23/2013 6:25 AM (GMT 0)
Strange rules in Australia...here in Canada they definitely would scope a 15 yrs old especially with family history of IBD and symptoms of bowel issues...it's a shame they would make her wait and suffer when if in fact she does have an IBD (it could be either UC or crohn's...my mom had UC and I have crohn's) she could instead be getting treated for it.
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