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Ulcerative Proctitus

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Ulcerative Colitis
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Posted 3/12/2013 2:01 AM (GMT 0)
Hello people, I am new to this Forum as well as this disease. I need help understanding the meds and how to cope with this uncontrollable disease!!!!!
I am 45 yrs old, just diagnosed with Ulcerative Proctitus 5 weeks ago from Sigmoidoscopy. I also had blood work done and I am clear of Crohns and Celiac. My GI gave me an antibiotic and put me on CANASA FOR 2 weeks . WOW IT started working after 3 dys! I went for my follow up and Dr said I'm good to go. Well just 2 weeks later my symptoms came back. Dr put me back on CANASA. I took it for 5 days and then suddenly had severe Naseau and dizziness, which put me flat on bed for 2 days. Horrible. Dr. Now switched me to hydrocortisone suppositories. Not working as well as CANASA? I am soo upset and frustrated because I am reading other Forums and I am realizing that there is no cure and it is just TRIAL & ERROR for medications. Dr. Told me it is a Bacterial infection that got into my stool. She asked me if I ate something bad or was taking Antiobiotics for something else? NO AND NO!! I don't understand if it is a Bacterial infection why is it CHRONIC? And why Antiobiotics given at time of diagnosis still allows bad bacteria to infect. PLEASE PLEASE SOMEONE TALK TO ME! How do you function at work when you feel like you're going to poop in pants? I'm actually wearing pads now just incase. Not cool!
Posted 3/12/2013 2:16 AM (GMT 0)
Hi Stacee. On the positive side, if you can get into a good remission, you could have a very long period of time with no symptoms at all. Did you see your biopsy results? It seems contradictory that she said you have ulcerative proctitis but she also mentioned a bacteria. Which one is it? Anyway, it's great that you had such great luck with Canasa but the symptoms you experienced could be a sign that you're sensitive to mesalamine which would make oral meds difficult for you. I wouldn't say it's definitely the case, maybe you had a bug that caused those side effects and it had nothing to do with the Canasa. Have you tried dit again since you felt sick from it? The thing about Canasa is that you should really find a regimen that works for you. Most people use it nightly or every few nights at the least. We believe that maintenance medication is usually required to keep us in remission. Try to stay calm, there is a lot of trial and error that goes into finding a treatment that works for you but you will get there.
Posted 3/12/2013 2:21 AM (GMT 0)
oh. you should ask her what bacterial infection you have. c diff is pretty common these days so that's what the antibiotics could be for. you might have inflammation caused from the bacterial infection which is not the same as ulcerative colitis (chronic lifetime illness). that would be WAY better to have and you wouldn't have to constantly be on meds or managing your diet.
Posted 3/12/2013 2:37 AM (GMT 0)
If it's proctitis, maybe you should ask for 5asa meds like asacol and lialda? Those seem to have a good response rate for newly diagnosed patients.

Antibiotics have the potential to make things worse.
Posted 3/12/2013 3:56 AM (GMT 0)
I say try pentasa but I'm biased. I have proctitis and it has never failed me. I'm on 1g enema at night
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