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Amino Acid Therapy Week 3 & 4 Results

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Ulcerative Colitis
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Posted 6/4/2013 4:54 PM (GMT 0)
So far-about 8 weeks in and about $1390. That should get me through one more urine test. So, for a consultation fee, all supplements and 4 urine samples, that is the cost thus far. I figured at this dosage that it would cost me 305/month in supplements. I should hear on Thursday about my new dosage.
Posted 6/4/2013 8:32 PM (GMT 0)
Hi Aussiet, I'm a month in and no improvement. I'm tired to a point where if I nap, I'm ok, but still don't have the "drive" to want to work out like I should, it's a struggle.

My test results should be in any day, this is a long wait period.

I sent it in on Weds last week and they said by Thursday I should know something. Turn around time is slow in my opinion.

Let's see how I do any this next dose change before taking the plung I would say.
Posted 6/5/2013 2:57 AM (GMT 0)
Hi all, sorry summer is here and I've been rowing a lot out on the water. I kind of live for the summer!

@ Miracles - That "drive"... I like that term. It took some time for that to come back to me. There were weeks where it was good and weeks where it was horrible - I had none. What I found was that I had to force myself - just do it and then after I felt great again for a while. It was just really, really hard to do.

I'm going to post a link for you and Lemmon - It's really goofy, but it helped me. I listen to this a lot and just zone out and exercise... always feel better after or when I was feeling down from the treatment www.youtube.com/watch?feature=player_embedded&v=rZTqRvWTRCk#!

www.gabis-meditation.com/p/morning-meditation.html and www.gabis-meditation.com/p/evening-meditation.html They help me relax and sleep at night. And sound great on an ipod if you run or exercise. Really helps bring focus and pick up the spirits. I tried it before, but was never big on it till I started listening everyday and noticing the difference. Specially falling asleep at night.

Anyway maybe it will help... maybe not... Just an idea.

I can email you mp3's if your interested at all. I guess it's sort of goofy though...

Post Edited (Canada Mark) : 6/4/2013 9:19:07 PM (GMT-6)

Posted 6/5/2013 3:12 AM (GMT 0)
I'm still somewhat reacting to food - wheat mainly. Sometimes it works fine and other times I get say one bout of D later the next day if I eat a lot of it. But it's not like UC type D if that makes any sense. It hits, then it's over, then it's back to normal stool. Very strange actually. No blood or mucus either. Really hard to describe. I went to a retirement party over the weekend for a friend, and ate the "party food" haha. Nachos, a small glass of beer, meatballs, cake, and whatever else was on the platters... i actulaly survived... The next day was actually semi-normal but more trips to the bathroom than usual.

That's what I have noticed most over the last week and a bit - If I add processed food or wheat products I'm in the can more often and don't feel top notch the next day.

Still though, it's nothing that bothers me to much. I'll take it for sure cause it's a million times better than how I felt before. And it's even better than how I felt on Remicade and SCD.

And again, for me - I have almost zero junk food cravings now. So the whole Palio/SCD thing is nothing.

I kind of wanted to be eating whatever the heck I wanted by now - but to be honest it's probably better for me to just eat healthy anyway with say a cheat day once or twice a week if I really want.

It sure is nice though... to get back to life here.
Posted 6/5/2013 3:18 AM (GMT 0)
Also I was thinking that maybe I just a wheat or gluten intolerance... I'm going to ask my doctor to test me just to find out. In any case I can eat rice pasta and potatoes without issue so that;s a life saver for me!

I'm not sure if things will get better from here or not, I do have a urine test scheduled for next week so I guess it's a wait and see thing. But I'm very pleased and owe Old Mike some serious thanks for finding and posting this on here!

Some days I forget anything is wrong, others it's minor symptoms like a single bout of D. But it seems that the mucus has pretty much gone away now. I very rarely see any. Honestly I can't help think that maybe it's just time that's needed to heal now... Which would be amazing.
Posted 6/5/2013 12:25 PM (GMT 0)
Mark-
Are you planning a c-scope anytime soon?
Posted 6/5/2013 12:30 PM (GMT 0)
I don't have one booked yet, but am going to put a call into the doc and see if he can schedule one. I want to see the before and after results. The problem is here in Canada it can be a long wait... a few months just to get in, unless you can sneak in on a cancellation.
Posted 6/5/2013 12:38 PM (GMT 0)
Thanks Mark, I really hope it works for all.
If it does truly work, then we have to ask some questions.
Why do the neurotransmitters get out of balance, what in modern lifestyle is the cause or multiple causes.
Can we fix the disease by some life style change, and not need these massive doses of amino acids.
Old Mike
Posted 6/5/2013 1:36 PM (GMT 0)

Old Mike said...

Why do the neurotransmitters get out of balance, what in modern lifestyle is the cause or multiple causes.


According to this paper:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3108661/ said...
"In recent years, a genetic defect of the OCTN1 and OCTN2 of the colon has been identified in patients with Crohn’s disease. The OCTN1 and OCTN2 are responsible for transport of cations, including the monoamines of the serotonin–dopamine system and their precursors. It is known with Crohn’s disease patients that there is a marked increased in serotonin levels of the proximal and distal colon associated with a defect in serotonin synthesis. It remains to be proven whether a transport problem exists in the serotonin–dopamine system induced by the OCTN1 and OCTN2 genetic defect found in Crohn’s disease."


Though, I've also found a lot of similarities between this approach and the mutations related to the methylation genes.

From mthfr.net:

http://mthfr.net/mthfr-a1298c-mutation-some-information-on-a1298c-mthfr-mutations/2011/11/30/ said...
The MTHFR enzyme appears to contribute function in both two major pathways: BH4 and Methylation.

The area which the A1298C MTHFR mutation works appears to disrupt function in the BH4 cycle.

The BH4 cycle is absolutely critical for these various functions:

assists the breakdown of phenylalanine
helps form these neurotransmitters:
- Serotonin
- Melatonin
- Dopamine
- Norepinephrine (noradrenaline)
- Epinephrine (adrenaline)
cofactor to produce Nitric Oxide (NO)
assists breakdown of ammonia

From Wikipedia:

http://en.wikipedia.org/wiki/Methylenetetrahydrofolate_reductase said...
Methylenetetrahydrofolate reductase (MTHFR) is the rate-limiting enzyme in the methyl cycle, and it is encoded by the MTHFR gene. Methylenetetrahydrofolate reductase catalyzes the conversion of 5,10-methylenetetrahydrofolate to 5-methyltetrahydrofolate, a cosubstrate for homocysteine remethylation to methionine. Genetic variation in this gene may influence susceptibility to occlusive vascular disease, neural tube defects, colon cancer and acute leukemia, and mutations in this gene are associated with methylenetetrahydrofolate reductase deficiency.

So, those of you that have seen positive results by this therapy (or those who don't) might also want to get yourself tested for mutations of the methylation genes. From my understanding the amino-acid therapy's approach tries to surpass the limited production of neurotransmitters by providing great amounts of their precursors. However the root of the problem might be the incorrect function of methylenetetrahydrofolate reductase.
Posted 6/5/2013 1:53 PM (GMT 0)
I'm locking this thread due to length so feel free to create a new post about this if you wish.
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