Gluten free doing nothing

Sucks that you are getting no relief from both those things. Its so hard to stay on any uber restrictive diet for so long with no benefit! Do you still have blood, urgency, etc?

Carb free is so hard, I've had to do that too, but not for a year! Have you tried any herbal antibiotics? Do you know anything about the bacteria balance of your gut? Like, do you have a gram positive or negative (e.Coli) over growth? Were you well, then BAM suddenly not? Or was it a slide into illness? Do you have anything else besides gut manifestations? Joint aches, muscle aches, chronic fatigue, reoccurring illnesses? Skin rashes? Anything.. Feel free to tell me to bug off too.. I just hate to see someone grinding it out for so long with so little payback..
Feel free to email me too if you are interested. If not, sorry for the intrusion :)

I'll answer anything. Let's see

I went to Seekers Centre here in Ottawa, and I did a very expensive stool test. Cost around 400$ it was a three day stool period test. Nothing special came back, no fungus, no yeast, except some weird thing. I'll get the name of it later on. In fact, funny enough, the Naturopath that prescribe the stool test said to me after reading the results that to get rid of that, only antibiotics can do it as the plant treatments aren't powerful enough. But he didn't say that thing had any relevance to my disease or not.

I didn't want to go on antibiotics because, Im scared of C diff, scared to be even worse than I am...


Was I well then BAM, not.

Yes and no. I was always in shape, had energy, but the last few years I started to get bloated and couldn't get rid of it. I'd go to bed bloated and wake up bloated. Eventually while at the gym, I started noticing blood in the stool and from then on the saga began.

These days, from time to time, I look a bit bloated but don't feel bloated.....

I can't say it was a slide into illness, it came somewhat quick.

Other manifestations, joint pains when remicade used to work. I'd know remicade was working somewhat when I felt joint pain, now the effects aren't there, thus no joint pain, but UC effects.

I am fatigued but to me that's understandable given that I'm flaring continously for 2 years.

Get the name of that weird thing :)

natural based antibiotics.. some of them atleast.. are not going to leave you open to c.diff. and they shoudl leave some of your beneficial flora, in theory. Its interesting to me you get pain in your joints when the remi is working.. it would make me think whatever was in your guts was seeking refuge in the safest place they can in the body due to low blood flow and oxygenation.. your joints.. but bugs are super smart and they develop resistance to things.

if you have a bacteria based problem cutting carbs is a good idea, unless you have porphyria
/en.wikipedia.org/wiki/Porphyria there are varying forms of it and nobody talks about how these ketogenic diets are bad for it

Well, did you know that mutated cells can be fixed? Even if you believe in the second theory there is validity to the first. If you believe in the second theory and not the first... STILL there is hope in nutrigenomics in getting your genes to switch back on :)

Janey, I starve myself like a Vietnamese POW...

I eat what the SCD book says. lol


Yeah, I eat vegetables and some fruits. Those are simple carbs...I think, which is ok.

Somedude said...
Janey, I starve myself like a Vietnamese POW...

I eat what the SCD book says. lol


Yeah, I eat vegetables and some fruits. Those are simple carbs...I think, which is ok.

Lol. I honestly thought you cut out every carb. You had me worried there. Is it working at all?

I'll get it, I'll go find that paperwork. I have it somewhere.

stereofidelic89 said...
iPoop, i wanna revisit this. Are you making sure to avoid everything with gluten?
1. soy sauce
2. deli meats and cheeses, milk shakes (malt),
3. oatmeal (unless certified gluten free)
4. restaurant food that is breaded, marinated and fried.

are you reading ingredients on back? look for allergen warning contains: wheat

Try eliminating dairy too. I don't know any of you handle dairy with a compromised immune system and inflamed gut. As stated by Elaine Gottschall in her SCD interview video.

Stereofidelic89, I told myself if I was doing gluten-free I was going to do it right and follow the rules very precisely (lol I am not a cheater). To start off with, I had a really good teacher brief me on everything, my boss who has Celiac disease (plus he gave me a pound of gluten-free pasta and some recipes to try). As far as your questions go:
1.) avoided
2.) avoided
3.) avoided
4.) avoided (I ate at a restaurant a couple times and chose from their gluten-free section of the menu).
5.) Yeah, I was reading the ingredients on the back of everything; my boss said this is a must.
6.) I've eliminated dairy once before, although not at the same time I went gluten-free. I noticed no difference with or without dairy, just as I noticed no difference with or without gluten in my diet. So, I reintroduced dairy into my diet because I saw no discernible difference in my uc symptoms.
7.) I'm a guy, so cosmetics are not an issue.

I have been eating gluten again for almost a week now (it will be a week tomorrow) and I feel good. For a couple days after reintroducing gluten into my diet, my bms were a little odd and off schedule, but since then everything has settled back down again. I also had a flex-endoscope the same day that I reintroduced gluten, so that little blip with my bms could have been from that invasive procedure as from the reintroduction of gluten. If something works then I will use it, but for me gluten-free did not, it was worth a try and I don't regret trying it out.

"just a reminder for some of you diet modders, i did NOT have success until i eliminated ALL grains - gluten alone was not enough - fwiw -"

Basically, he wants you all to look like vietnamese POWs. Or like me or for that matter, like him. lol

i may look like a vee at na meze pow, but i bet i can kick his ass -

somedude said...
Ipoop, I'll tell you what the true diet is. Anything that tastes good is bad for you. Follow this rule and you will achieve greatness.

Somedude, now aint that the truth haha. That would really take away what little fun that remains in life with uc. Right now, I subscribe to the "See food" diet; whenever I see food I eat it!