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Vitamin E enemas ( No Meds log )

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Posted 4/29/2013 3:11 PM (GMT 0)
I am now certain this is how I had 3 months of med free remission last summer. I dont know if any of you recall this but I been struggling lately with Canasa and was thinking and it dawned on me that it was not the fresh salad I was eating from my garden it was the almost 4 weeks of the enemas I tried last summer duuuuh!@ lol. I an now on day 4 of the enemas with 4th being tonight and I and not seeing barely any B now at all. My stools are really getting formed and actually hard! I am also seeing how the side effects from the canasa were effecting me now that it has been 5 days without it. So without explaining my old post about last summer I decided to do the enemas again because I am certain that wss how I had such a good summer without meds last year. I already feel much better and its only been 3 days and I feel fine not taking meds. As long as my symptoms anre non existant I will continue. Like my doc said " the disease will let you know how good or bad yiour doing based on symptoms." anyways I plan on updatingg this and plan on doing the enemas for at least 3 months religiously. I purchased anough of the certified Vitamin e and am good to go. I am going to list the study I referenced last summer from which I tried this for those interested. I also will share what I used and how I use it. I have to add that I have lower left sided colitis which from what my doc said is about 1 ft up and is about 4cm long. This being the case it would appear that the Vitamin E reaches the effected area and helps it. I want todocument this here and also share it with evetyone how I do in the coming weeks. Once again I plan on doing this med free for 3 months and then will most likely if everything goes well well go to every other day from there.

Here is the study I used.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2760182/

Materials used

Baby enema syringe

8- 1000iu Vitamin E as d-Alpha Tocopheryl Acetate) (Certified) mixed with aprox. 1.5 oz of distilled water.

Any support would be great..

Steve

Post Edited (twiggs) : 4/29/2013 9:47:10 AM (GMT-6)

Posted 4/29/2013 3:41 PM (GMT 0)
I am totally interested in this. Pls continue to keep us updated. I just ordered now brand liquid vitamin e a few days ago and am waiting for it to arrive at my house.
B
Posted 4/29/2013 8:07 PM (GMT 0)
Bump.
Posted 4/30/2013 12:34 PM (GMT 0)
Quick update. I just had my morning movement and it was perfect! No B at all. I am 6 days without meds today. It seems as my movements move later in the am the better. Prior to this I was going by 7. I remember when I was not sick I would be right on schedule by 8:15 - 8:30am at work. So this is encouraging to say the least. I just had my normal movement at my normal pre dx time. I was struggling with 3 movments a day and in the last couple weeks had one day with 4. I have been having one good movment in am and one small one before lunch in the last 3 days. I hope to get it down to one soon. My fingers crossed.

Had a 2nd movement formed no blood at 11:30am. Much less amount of a movement like the last couple of days.


Steve

Post Edited (twiggs) : 4/30/2013 12:11:26 PM (GMT-6)

Posted 4/30/2013 3:37 PM (GMT 0)
Can you please provide links to your syringe and Vit E source?
Posted 4/30/2013 4:15 PM (GMT 0)
Eph, I am using Puritans Pride brand of Vitamin E (as d-Alpha Tocopheryl Acetate) which is certified natural. I buy the 200 quantity and buy one get 2 free or 600 of them. I paid 85.00 which included shipping.

http://www.puritan.com/vitamin-e-1000-1290/vitamin-e-1000-iu-100-percent-natural-070923

Baby Syringe - I did not get mine from CVS but it seems they have pretty much the same one. Mine is a Cara brand infant enema syringe 2 ounce capacity. I cant remember the site I got it from but will provide a link.

Go to this link and scroll down to the #16 2oz.

http://www.caraincorporated.com/page7.html

Steve

 

Posted 4/30/2013 4:22 PM (GMT 0)
Steve,

Thanks for the links. So, how do you open/empty the capsules? Do you just mix in a glass/cup? Have you ever looked to see if there is a liquid form of Vit E that would be easier to mix with the distilled water?

Oh, and when do you use it? At bedtime? Are they as easy to retain as other prescription enemas?
Posted 4/30/2013 5:00 PM (GMT 0)
Eph, I have thought about the liquid vitamin E but I cant find any quantity of it without paying for it dearly. I have this down to a science now so opening each of them is not an issue for me. It takes me 15 mins start to finish the whole procedure now. I open 8 -1000 iu caps into 1.5oz of distilled water which I use a pyrex for. I first microwave the pyrex for 20 seconds to kill and germs let it sit then add my water and open each capsule into. I have to say that using the room temp water helps because it seems not to settle to the bottom of the glass pyrex and allows me to draw it straight into the syringe. The key is not to let it settle because it will stick to the bottom. I tried cold water and it didnt work at all as it Made the vitamin e too thick. So room temp is the way to go. I open each capsule with a good pair of kitchen sheers. I snip the tip of each and then just pich the capsule between my fingers squeezing it into the water. I try not to disturb the pyrex and water once I start to empty these into it so it forms like a ball of vitamin e in the water. The glass pyrex lets you look from the side to see if your getting it right and also to see if it settled to the bottom. Mine seems to float and beleive the room temp water helps with that. I get most of it then of course draw in some water and remaining vitamin e untill its full. It certainly is something you will get better at with time. It doesnt bother me at all to do it because it really is soothing after so I look forward to it now.

I think after 3 months I will go every other day and then use the Key E suppositories everfy other day providing I stay on this track of getting better. Then maybe just suppositories daily after a couple months of that. We will see I guess.

As far as buying it I will stick with the 200 quantity from Puritans which is the best bet for now. I did th math and it is about 1 dollar a day.

Steve

Post Edited (twiggs) : 4/30/2013 11:03:16 AM (GMT-6)

Posted 4/30/2013 5:24 PM (GMT 0)
Thanks! Did you previously try the Key E suppositories unsuccessfully?

I just have persistent proctitis, so I'm thinking about just starting with the supps. Thoughts?
Posted 4/30/2013 5:40 PM (GMT 0)
Eph, Oh I didnt mention that I did the enemas after dinner around 7pm. I could wait till just before bed but like to get it done before relaxing prior to bed. I have never ued the Key E but am very optimistic that they it will be key no pun intended in helping / maintaining down the road. I absolutely think it is worth a try for you especially since you have lower issues. It is relatively easy to do and comparitively inexpensive.

If it does what it did for me last summer I plan on being in remisson for a long time god willing. My wife even remembers me and how I was acting like nothing ever happened. I thought I was cured but didnt realize it was the enemas. I did them for just short of 4 weeks and then was feeling so good that I stopped and thought it was all the salad I grew in my garden which had just been growing and eating like crazy. I am hoping that the full 12 weeks like the study says will do it. Like I said I wont stop completely but will work my way to jst a Key E daily as long as thing go as planned.

Let us know if you do it. I cant see it hurting and only helping.

On another note I think that once the colon is healed I can start taking probiotics also. I have some suspicion that with a colon that is imflammed that it wont take in the good bacteria like a healed colon would. I am just thinking down the road and perhaps then will try some probiotics once healed and in remission.

Steve

Post Edited (twiggs) : 5/2/2013 6:53:45 AM (GMT-6)

Posted 4/30/2013 11:41 PM (GMT 0)
good read , thanks
Posted 5/1/2013 12:48 PM (GMT 0)
Day 5 of the enemas and a week without meds so far.

This am as of right now I have not had a movement yet. I feel one coming on but it feels different with less urgency. I  have made my smoothie for me and my wife and already drank it. I am now eating a large two scrambled egg breakfast with 4 organic chicken sausages and hash brown and one slice of sourdough bread. I think soon after I eat this I will have to go as I am haveing some gas with the feeling of a solid movement coming on much like the old days except without that awful uncertain urgancy. Solid meaning formed. I can tell now how it is going to be based on time and the feeling I have prior to it.

I will update after I see what happens with my first movement.

10:50am - first movement and like I thought it was really formed and firm. I wiped and had some red blood and vitamin e on it. I wiped again and nothing. I am assuming it was the really firm stool that agrevated my rectum. I have not had one movement at 10:50 like this before. I usually and about to have my second by 11:0am ish. Otherwise I feel great. I was outside prior working in my yard and ripped up 4 bags of english ivy from a coner of my yard I am reclaiming then had to come in to use the bathroom.

4:15 pm second movment which is strange for the time. It was hard chunks but not alot. I wiped a tiny bit of bright red and nothing else. I still feel fine otherwise.

Soy: I am definatly eating salads everty day along with my spinach kale smoothie..I am growing the same stuff I had last year again in my garden. I see it just starting to grow now..

Thanks for looking out..

Steve

Post Edited (twiggs) : 5/2/2013 6:17:55 AM (GMT-6)

Posted 5/1/2013 1:29 PM (GMT 0)
keep eating the salads - it may have been the combo -
Posted 5/1/2013 10:14 PM (GMT 0)
Twiggs, you don't shake the mixture of distilled water and vit.E?  I realize oil and water don't mix, but wouldn't shaking help to distribute the fluid more evenly?   Just a thought.

As to nuking the pyrex, I'm not sure you have to worry too much about germs when dealing with the most bacteria-ridden area of the human anatomy either.  I used to sterilize everything but my GI said that it was a waste of time.  Just a normal wash/rinse/dry would suffice.

Distilled water makes sense though as it's the purest you can get.

I might try starting this again seeing as you seem to getting some results. I used to mix E with hycort enemas but I was never sure whether it was the steroid or the E that was helping me.

You can buy certified E in liquid form from a lot of health food stores in Ontario, comes in a dropper bottle and is not expensive.  Saves a lot of hassle chopping up capsules.

Post Edited (Mackster) : 5/1/2013 4:20:09 PM (GMT-6)

Posted 5/1/2013 10:49 PM (GMT 0)
Good log. I'll be watching.
B
Posted 5/2/2013 2:05 AM (GMT 0)
Isn't 8 x1000 iu vit E too much? It can thin blood.

Personally i used 500 iu. I found that 1000 iu gave me heartburn (eventhough it's rectal it's still absorbed in the blood stream; and vit E blocks the production of prostaglandins which line the stomach and protect it from the stomach acid). Btw i only knew this after i searched online bc i noticed the heartburn after 5 days of the enemas.
Maybe mine was more potent coz it was water-soluble vit E?
Posted 5/2/2013 12:37 PM (GMT 0)
Mackster, I dont shake it no but I am sure when drawing it into the syringe that it is mixing with water. I am definatly getting it in because I see some of it after the first movement floating in the bowl the next day. I fill the syringe with water and the vit e so a total of about 2 oz. I lay on my bed on my back and hold my hips and legs in the air for like 5 mins right after.

Conquer, I did this for just short of a month and had no issues with heart burn last summer and had a 3 month med free remission. I am feeling like my old self again slowly. The study I am using calls for 8000iu daily for 12 weeks.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2760182/

Otherwise so far I am feeling great!

Steve
Posted 5/2/2013 12:51 PM (GMT 0)
Checking in, As of this am no movement yet. I had my smoothie and a large breakfast and been up since 7:00am. I feel really good. Will update as soon as something happens.

Frst movment at 9:00am. It was mostly formed had a little streaky blood on it. I wiped and had some red blood on it then wiped again and nothing. I Feel fine otherwise. Strange I am having my movments later in the am by a coouple hours and seems to be two a day since start of this. 8 days without meds and day 6 of the ememas.

Second at 11:00am. Same as first but more stool and long and soft formed.

Third at work 4:00pm. Had me concerned  it was a small formed but soft and I wiped some b after. I didnt feel myself ctually. I had alot of gas and really thought is this the turn of events. Being day 8 of no meds It was in the back of my mind. I work 2nd shift so I figured I would see what the next morning brings and another night of enemas.

Post Edited (twiggs) : 5/3/2013 6:31:54 AM (GMT-6)

Posted 5/3/2013 12:44 PM (GMT 0)
Read the end of my prior post..

I made it another morning but have to say I woke early like ar 4:00am with alot of gas and cramping. I was laying there thinking and of course a bit nervous thinking this is it I will find out soon if I need my meds or not. I had that early nausea feelng which was not good for me and is a sign of bad things. I think I fell back to sleep a couple times and then we got up at 7:00am. I mentioned to my wife who is monitoring me also that I didnt feel good and perhaps I will have to start my meds this am. I figured I have a months supply of asacol left from a while back in my drawer in case. I told her as soon as I have my morning movement I will know for sure. While waiting and making our smoothies I began to think about what I been eating the past 3 days and it hit me that it could be just alot of gas and bloating from the brussels and broccolli/ pasta garlic I had for 3 days in a row! I was releaved for a sec but knew that I still had to get by this am and see what happens after my movement. A few minutes later and alot of anticipation and worry I had a huge movment which was formed but soft and of course acompanied by alot of gas. I immediatly looked and I was sooo releived! to NOT see a ton of blood. I wiped even though I was not quite done and saw nthing but green from my smoothies poop! I sat about 5 mins more and I didnt another soft but formed bit and wiped and nothing again!. OMG I as terrified to be honest I has been a little over an hour and I feel alot better. I will tell you one thing for sure. I WILL NOT EAT BROCCOLLI AND BRUSSELS for a while! ASnd to think we had veggie burgers last night and my wife almost talked me into opening a can of baked beans to have with it but something told me not to do it. I cooked last night. For now still I am still on track. I feel like I completely emptied today and have a feeling it will be a one or maybe a two movement day. I will of course be very careful what I eat that produces excess gas/cramping in the future. I have to ask could that have been why I had 3 mopvmernts yesterday and wiped blood all three times? I have to wonder but I guess today and tomorrow morning will be a good test.

2nd at 11:15. soft formed small smount. wiped a tiny bit of b after wiping thats it. Otherwise clean wipe.

Today marks the 9th day without meds and the 7th day on the enemas..

Steve

Post Edited (twiggs) : 5/3/2013 9:21:51 AM (GMT-6)

Posted 5/4/2013 12:07 PM (GMT 0)
Yesterday was a good day as compared to the day before when I was dealing with the effects of the foods I ate the 3 days prior. Once that was eliminated yesterday morning not long after I felt really great and continued to all day through work and that evening.

Today first movement at 7:55am. Formed pieces about 4 inches long but only like 3 of them. They were hard also. I suspected a little bright red b after wiping which I was right. It seems as my colon is healing the very hard stool may be aggrevating it creating some bright red b. I wiped once and there was a little on the tp then again and nothing.  Side note I had 2 beers and a cigar with my wife and a fire in our outdoors chimnea last night. Very relaxing. Slept well 7 hours. Day 8 of the enemas and 10 days without meds. Changes so far. My stool is firming up big time and  dont see any puss only the smal amouts of bright red B. I feel great as all side effects of meds are completely gone. I say that because we get so confused having the disease and the meds we dont know sometimes which is causing what.

 

Posted 5/5/2013 12:17 PM (GMT 0)
Yesterday was a really good day with only one movement. I worked in the yard worked on boat and planting flowers with my wife. Layed in the sun a bit and we had steak and a couple beers last night also.

Today. First movement at 8:10 hard formed chunks. Litte red B after wiping. I can tell the hard stool is making my rectum produce that red B. It feel like pinching when passing but otherwise no problem. It was even less on the tp today. Feel great. Received my key e suppositories and my wife used one. They seem to be quality for the price.

2nd movement at 11:15  Formed hard movment no B at all when wping. Barely anything to wipe also. I still feel great.

6:50pm and feel great. I am about to do my 9th enema and it also marks 11 days without meds..

 

Post Edited (twiggs) : 5/5/2013 4:52:40 PM (GMT-6)

Posted 5/6/2013 11:44 AM (GMT 0)
7:35 am first movement. Formed log about 13". I wiped and a tiny bit of b on tp the wiped again and nothing. Clean. I slept 8 hours nice. Feel really good.

second at 9:15 am.. formed but a little softer wiped some poo but no B at all. I suspect that will be it for the day.

So far so good..Every day I get more and more confident this is the trick for me. Side note. I am selling my offshore boat and been getting it cleaned up. I have someone coming from NY to look at it this am. I seem to be a little bit gittery and of course it is because of selling my boat. They say they best two days of boat ownership are the day you buy it and the day you sell it. How true.

Post Edited (twiggs) : 5/6/2013 7:27:33 AM (GMT-6)

Posted 5/6/2013 12:19 PM (GMT 0)
Sounding great so far!
Posted 5/6/2013 4:23 PM (GMT 0)
Do you guys think the Vit E suppositories will work as well for those of us with just proctitis?
Posted 5/6/2013 5:23 PM (GMT 0)
Eph, I am not too sure about that until I use them myself. I believe the suppositories have only 30iu of vitamin E in them. I guess you can give it a try but I would definatly suggest doing it regularly and for some time. Seeing you have proctitis it may very well be enough. I can say this for sure now that the vitamin E helps me. I have the suppositories on hand for when I wean myself off this protocol after my 12 weeks. I am hoping they will do the trick as they seem like a quality brand.

Let us know if you give it a go..

Post Edited (twiggs) : 5/6/2013 11:26:30 AM (GMT-6)

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