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Ulcerative Colitis
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Posted 5/9/2013 12:46 AM (GMT 0)
We moved into our new house and we are about 50% unpacked at the moment. And more importantly, we finally got our cable and internet today! lol We still have a lot to do but now I have a bit more free time to come on here.

An update on me: the nurse came out and drew my blood for the Prometheus labs to check my Remicade levels on Monday. I go in on the 15th for my infusion. But things have slowed down a bit for me (bathroom wise) and I don't know if it's a coincidence or not but when I was moving, I forgot to take my Colazal. I would remember at night but I wouldn't take my morning and my afternoon dose. My gut pain has lessened as well as the frequency so now I'm wondering if the Colazal is the culprit and not the Remi wearing off too soon. I'm just afraid to reduce or stop the Colazal because last time I tried to reduce it, I ended up in the hospital for 3 days....but that was before I started on Remicade. So I'm thinking to try to reduce it again, just to see what happens. Good idea or no?
Posted 5/9/2013 12:52 AM (GMT 0)
I think it is a good idea. Before being diagnosed I had 2-3 bloody diarrhea movements per day. After beginning treatments I rarely have blood or diarrhea anymore but I have consistently have 6-15 BM's per day. I really think the Asacol helps get rid of the blood and diarrhea but is also responsible for my increased frequency. It is a double edged sword. I often think of cutting down my Asacol, and I have a little, but don't want to fall back to where I started as I know that if I should get worse the Asacol might not work as well when I increase it back up.
Posted 5/9/2013 6:48 AM (GMT 0)
I'd taper slowly rather than go cold turkey. I'm not surprised since you're sensitive to mesalamine, you could be to the balsalazide. Since you're on Remi, it could be that a lower dosage will have you fare better.

Good to hear things are going as planned with the house...

q
Posted 5/9/2013 9:55 AM (GMT 0)
Well I had some mucus again lately and I stopped Colazal as well. Because I cannot handle 9 monter pills a day. Now I'm doing my best with apple sauce and I'm doing better. I think Colazal is a strong and helpful drug.

I hope you get better too.
Posted 5/9/2013 12:37 PM (GMT 0)
Thanks :) I think I will taper down to six and see what happens.
Posted 5/9/2013 12:49 PM (GMT 0)
Welcome back...sort of. ;)

Glad your feeling a bit better. I agree with the tapering and see what happens.
Posted 5/9/2013 5:01 PM (GMT 0)
Whoops I misunderstood. So Colazal was giving you problems. I'm sad to hear that. Yes see how it goes with the taper. Keep us posted.
Posted 5/9/2013 10:44 PM (GMT 0)
I didn't have my morning dose of Colazal and I forgot my afternoon dose.....I'm having NO issues. No urgency, D or cramping. I will almost bet my life that its been the Colazal this entire time. My headaches even went away...which has been a daily occurrence for many years. I'm beginning to think that maybe the Colazal is what I don't need anymore since I'm on Remicade. I'm still going to take my night dose just to be on the safe side. If this good trend continues, I am going to bring it up to my GI especially if my Remi levels show to be in the normal range.
Posted 5/9/2013 11:57 PM (GMT 0)
Yeah, it could be an individual thing-- because I think Judy2 takes Colazal while on Remicade w/o side effects. All you can do is try. The oral mesalamines tend to dehydrate one's body. / Old Hat (32 yrs with left-sided UC; presently in remission taking brandname Colazal)
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